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Author Topic: A Thread for Newcomers Worried about Multiple Sclerosis (MS)  (Read 117890 times)

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Offline anx247

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #150 on: January 20, 2014, 04:07:11 PM »
Louise, I went through something similar a year ago. My symptoms started during a very stressful time in my life. I was sleep deprived, specializing in my RN career, a new baby and toddler at home. Anyway to make a long story short I developed what I was convinced were MS symptoms... all of them! vision issues, body buzzing/tingling, extreme fatigue. It was a very stressful and dark time in my life. I frequently went to the ER, specialist visits, and also saw a neurologist who ordered an MRI. Mine also came back with a couple non specific tiny white matter lesions. My neurologist said that they are seen in normal people and that what she thought I had was anxiety. I was suffering from frequent anxiety attacks and didn't know it. I decided to take charge of my life and get help for my mental health, went to councelling, started working out, eating healthy, reading self help books, and after a lot of work I had my life back. I now look back and can't believe I wasted almost a year of my life worrying about a disease I never had. I realized that my anxiety is something that will always be a part of me but with coping mechanisms, it is manageable. I wish you the best in your journey. Don't hesitate to pm me if you have any questions
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Offline Rangers14

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #151 on: January 29, 2014, 09:10:31 AM »
This is a great post. I have gad and it makes me doubt even the doctors. I wish i could break the cycle
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Offline Nomadah

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #152 on: February 05, 2014, 02:47:27 AM »
Thank you so much for this post Pan.  It's helped me tremendously.
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Offline I8crayz

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #153 on: February 06, 2014, 10:55:09 AM »
hello I am new to this forum and new to what is going on with my body. I have been convinced that I had MS and that I was going to be crippled the rest of my life. It was so real to me and I worried for my wife and 3 children. I am still having real symptoms but am not so worried about MS anymore. I don't have some of the typical optical and weakness that seem to be associated with MS. I am worried that these body tremors, muscle twitches, numbness on the left face, arm leg, back and stomach, and sleepless nights are going to last for ever. I still need to go to the doctor, but I am just amazed that this could be anxiety or depression. Will I ever be back to normal? I have so many questions and so few answers. This is the craziest thing that I could ever imagine my own mind doing to myself if this is in fact stress or depression. I know this may seem wierd, but I feel jerky in motion sometimes, like there is disruption in my nerve transmission. I also have a weird sensation of vibration when I am trying to go to sleep. This creates sleep deprivation and then i worry that I can't let my mind heal if I can't get to sleep. Sleeping pills don't seem to work but for  a small period of time, then I wake up and can't get back to sleep. Any advice or encouragement? 
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Offline Hypo84

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #154 on: February 07, 2014, 01:19:49 PM »
Any advice or encouragement?

Yup. Go to therapist if you have money and if necessary start taking antidepressants. You need to start working on your health anxiety.
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Offline anx

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #155 on: February 21, 2014, 06:15:16 AM »
Hello

I have read this posts a couple of times. I have had a couple of health anxiety episodes in the past and I am well aware of that. I had my first on my first year in medical school. I had blood with feces so I was convinced for 2-3 weeks I had colon cancer, nothing else came to mind, this turned out to be small ulcer. 3 years later during a hard time in my life I had a panick attack as I thougt I was having a heart attack. Testicular cancer and lymphoma are also on my list in the past.
8 years ago I got tingling in my thighs and later my rigt foot was a bit weird. I was at that time studying neurology. I instantly diagnosed first symptoms of MS. As I only knew the worst case of MS, I shourtly came extremly anxious and depressed. I spoke with a neurologist who diagnosed anxiety, of course. With zoloft these symptoms faded away. I have had this MS thinking in the back of my mind ever since. 1 1/2 year ago during a stressful time in my life these symtpoms came back. The feeling in my leg was a slight different and I of coursed diagnosed my second relapse of MS, symtoms in leg must be spasticity. I examined myself every day. I started reading about MS symtoms from chat rooms and my anxiety level went thru the roof. I spoke with the same neurologist about this. Anxiety and somatic symtoms to stress he said. Zoloft again and symtoms fade away. Now these symtoms are coming back. Started after 4 week of feeling a bit depressed and I start thinking MS of course. I only read this forum as I am trying to convince myself that this is anxiety and/or depression. Started taking zoloft again an hope this will go away.
I know this could well be the starting symptoms of MS, as can any weird body sensation. I dont have signs of neurological damage so I dont have MS and would never get that diagnosis even though MRI would show white spot or whatever. I do know that I have a history of being dramatic over symtoms and hypochondria, and SSRI have always helped my.
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Offline monicav82

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #156 on: February 25, 2014, 09:14:45 PM »
This is definitely a fear of mine. My uncle has ms and my grandma had parkisons and my auny now has it as well.
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Offline I8crayz

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #157 on: March 04, 2014, 10:19:25 AM »
So does anxiety or depression or stress actually cause a central nervous system lesion that mimics MS and then takes time to heal even after anxiety is gone? How can symptoms linger such as numbness, muscle twitches and such after a person seems to feel better? Does it require anti anxiety medication and actual therapy sessions to go away or can someone self heal? I know it is different for everyone, but for those that seem to have symptoms for days, weeks, or even months what is the explanation for the symptoms remaining though the fear or anxiety has subsided? Any medical explanations?
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Offline MobileChucko

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #158 on: March 04, 2014, 12:40:35 PM »
Hi Crayz...  Welcome to Anxiety Zone!

Stress hormones, such as cortisol, can actually destroy brain cells in the hippocampus region of the brain.  This can cause anxiety/panic attacks/depression, and the symptoms that go along with these disorders.  A cycle occurs, and anxiety/panic attacks/depression become the default setting of the brain.

The term "anti-anxiety", regarding medication, refers merely to tranquilizers, such as the benzodiazepines (Valium.  Ativan, Klonopin).  These medications only mask symptoms, and do nothing to repair the brain.

Anti-depressants, such as Zoloft, Prozac, and Celexa, actually stimulate the growth of new brain cells in the hippocampus region, thus repairing the damage.  That is why anti-depressants take so long to work.  Therapies known to work on repairing the brain include the anti-depressants, therapy (such as cognitive behavioral therapy-CBT), exercise, and the use of omega 3/fish oil.

I hope this helps to answer your questions.

The very best to you, Crayz!...  Chuck :grinning-smiley-003:
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Offline I8crayz

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #159 on: March 04, 2014, 02:33:54 PM »
Chuck,

Thank you for the reply. That does make sense. I have been reading "The feeling good book" and feel I am becoming more aware of my damaging train of thought. My symptoms are subsiding. The tingling and numbness on the left side are still there, but seem to be less intense. I still have muscle twitches mostly in the evening when I slow down and have time to think and be aware of my body. I still get the headache jolts to the brain as  I am trying to fall asleep, but they are getting less frequent.  It is still so hard for me to comprehend that these symptoms are being caused by my stress. So the fact that I have caused damage to my brain by excess stress and worry makes sense. I have been worried to exercise out of fear that it would make things worse. I will start to exercise and take my fish oils and continue to use the feeling good work book. I am hoping to get better without having to go to the doctor, I just keep worrying in the back of my mind that this may be MS, but logically it doesn't seem to fit. But I may just need anti-depressants if I can't shake these physical symptoms. 

Crayz
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Offline Bakke4

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #160 on: March 07, 2014, 03:39:00 PM »
I am a new one to this site but reading over most of the posts make me relax a bit but not much. I am a 34 year old male with anxiety issues about my health.  It started with ms and then went to als and now back to ms. I am not  worried about als that much anymore but ms is at the top of my list.

I have most of the symptoms that everybody else has here and they started oct 2012. I have a great neuro here and I trust him plus he is very upfront with me about everything. Which is good and bad in many ways.

Symptoms

Started with a numbness feeling in my fingers that would come and go to start with. Numbness lasted first time  a couple of hours.  But the numbness would come and go and it still is doing it to this day. Mainly pinky and ring fingers on both hands. Most of the time though it is on the left hand 70%. With the left hand now being numb a large part of the day.  I read lots of people are able to shake it off this numbness but I have never been able to do this.  Also numbness on top of my head right side

After 2-3 months at the start the numbness and tightness went down to my left foot. Not to the toes but the top left front of the foot just before the toes.  There was nothing that I could do to relax anything down there. After a couple days straight there was a tingle and tightness that went up my left outside of my leg to my calf. The tingle went away after week or two but the tightness is still there. It has also moved to the other calf and has stayed there too. At the beginning it would come and go, where I would have two weeks with it and a couple days off but now they are alway tight.

Muscle twitches.  They never stop started at my right eye and now everywhere. Mainly in legs all over but go into arms, back, stomach and everywhere else.

My hands hurt at joints very badly for most of the time but it does take some time off.

My right eye seems to be way out of focus and never really seems to get lots better over the day/week/month.

I have had a bit of a Blatter issue in the last few years were I finish urinating and zip up and I am not totally empty. Thus I have some dripping issues. I have not heard many people with this issue here and I am not sure if they are embarrassed about it or what but I just need some help.

Also shaking inside and out through this whole thing

Dizziness has come and gone with this

Headaches that never go away

Diarrhea has been present from the start and varies in severity. I haven't had a normal crap since this started and yes we tested that too.

Since the start of this year 2014 I have had pain in my kidney areas on both sides for the last month. Also back pain starts at the base of my back and works it's way up to mid back.  Last two days tingles in left foot and burning in hands

My family is amazing and they know that something is up with this and they all think it is also stress and anxiety. I just don't know what to do anymore. I have

Medical tests

First sign of issues went in for physical with family doc
   High cholesterol was what came out of it. I asked about an mri just to ease my mind about ms. Got one and there was nothing there clean. I don't know the mri power and cannot remember if the dye was used.

I went to first neuro and he was a donkey. So it didn't help me much when he said nothing was on mri and I can't find anything. He just totally brushed  me off and never listened to any questions I had.   He said anxiety.

Second neuro was the guy that I trust and is very good. I went in and was a mess when I talked to him I the listened to every little thing. We did every blood test under the sun and nothing came up. I see him every six months just to update him and talk about everything that's going on. In jan 2013 I had an emg and nothing was found with it.  Last spring 2013 April I had another mri at his clinic and everything came back normal. I did ask him if I could get a referral to mayo clinic in Minnesota. He said he would but i don't think they will respond. They did and i was seen in feb 2013. The doc was great both the neuro and reg doc. Both of them did physical exams and nothing was there. They took some blood and nothing was there and also did another emg and nothing.

The last trip to the neuro  said that there is no sign of ms but I understand and I can see some of your symptoms but there is nothing that I can say that is definite this or definite that. He then told me a story of a guy that had some of these same things that after three years went on to be diagnosed with ms. He also stated that he had four other people my age that were  having these same issues under his care. He is very good at what he does but I can not get ms out of my head and need some help.

I am not sure if I am posting in the right area so I am sorry
Thanks

 
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Offline 2Bogey

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #161 on: March 12, 2014, 08:48:16 PM »
Bakke4:  you said that the neurologist told you that he cannot be definite either way.  That is the limbo that I have been in for the past 13 years.  It has affected my life greatly.  A lot of fear and worry.  Of course it would be awesome to never be diagnosed with MS, but at the same time, that would mean that we wasted a lot of our life worrying and not enjoying life.  That is very sad.  I feel that we have to get to a point of acceptance that if we had MS, it wouldn't be the end of the world.   We can't fear it!!!!!  The fear is equally debilitating! 
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Offline eizeral

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #162 on: March 19, 2014, 01:02:20 PM »
Does anyone know if you can get new symptoms 2-3 weeks into a possible MS flare up? Nearly 1 month ago, I was exercising at the gym, contracting my abdomen and neck when all of a sudden, I was overcome by a head to toe pins and needles sensation, which remitted in less than 10 minutes. However, later on in the day, I started feeling this prickling sensation in my arms, back, and much less often in my legs. After investigating the pinched nerve, seeing my doctor, etc, she wanted to pursue an MRI because she suspected I injured my neck. I was also in a bad accident the month before the gym incident (hit by a car going 90mph on NJ Turnpike), and that week was my first week back to the gym. Anyway, I ended up getting denied by my insurance for the MRI because I do not meet the clinical criteria, and I went in and saw the doctor for a second time.

This time, I went through a very extensive history of my paresthesias, and this tight, painful sensation in my thighs (Left>>Right), and a cold, tingling sensation in my left lower leg and both feet. This happened 20 days after the paresthesias started. I have also experienced a number of various aches and pains (mild jaw pain, mild chest pain, abd pain, bilateral arm pain and soreness, etc) since the start of all of this. I have been sick with worry imagining that I might have MS. The doctor told me twice now that she does not think it's MS, and the paresthesias in my arms and back have improved a lot since then. Also, the symptoms are always pretty much nonexistent when I am with friends and happy/not thinking about all this crap. I was beginning to think I maybe didn't have MS. However, I read that the muscle tightness is a symptom of MS...so my question is this:

Even though I still experience the prickling sensation in my arms and back from time to time, supposing that was a flare up...would it be possible to get a new symptom 3 weeks into it? I can't remember what my doctor said but she said MS doesn't move around like that but I don't know if that's the right answer to the right question...Do you think my anxiety could be causing all of this? I have had the muscle tightness and tenderness in my leg for about 5 days now, and the only thing that seems to relieve it even a little is applying heat to the area. I have also had 3 completely normal neuro exams. Anyway, any help would be much appreciated!!
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Offline Blueberry

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #163 on: March 28, 2014, 08:25:23 PM »
I'm surprised this is a common enough worry to have a thread. I guess hypochondriacs imagine intense illnesses first.

I worried abou either fibromyalgia or MS a few weeks ago but my anxiety has gone mostly away. I remember freaking out when I saw one of the first Google auto-results was "multiple sclerosis life expectancy" but after a few searches I learned it's not a terminal, or even deadly, problem and that helped my anxiety.

I had a few symptoms but the problem with symptoms is they can be from anything. Dozens, hundreds, of illnesses consist of normal ailments like body pains, headaches, poor mood, etc.

I've always been a clumsy, forgetful person. You can tell me something and I'll forget it 3 minutes from now. For the past month I've been getting weird skin sensations, like cold water under my skin or my foot having the pins and needle feel without falling asleep. Sometimes I get muscle spasms, usually in my legs, and I get 1 second stabbing pains in my abdomen or cervical area. For about 4 or 5 weeks I felt horribly fatigue constantly, or I'd have bouts of fatigue that came suddenly and disappeared within 2 hours. I sometimes feel weird - I guess faint or lightheaded but not really - for no reason.

I chock this all up to stress and anxiety though. It causes the worst symptoms.

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Offline Princess23

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #164 on: May 29, 2014, 04:51:50 PM »
OMG Pan if you were infront of me now I think I would hug you lol... I get all of those symptoms every day but varying, I find the buzzing on the inside and fuzzy head the most worrying, infact I find them all worrying .. I have never read it put that way , that someone out there is getting all those symptoms too!!! I also get more sensations...your post has made me understand that I'm ok and I will think of your post when having my sensations to allow them to happen and accept them, as I've read worrying about them increases the stress and prolong the sensation and symptoms... A brilliant post.. Thankyou again!!!!! Lynn :action-smiley-065:
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