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Author Topic: Weird vision issues, anyone else?  (Read 294 times)

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Offline Coreen15

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Weird vision issues, anyone else?
« on: September 04, 2014, 02:06:30 PM »
For the past year I have been have odd vision issues. It escalated more during my pregnancy but it first started with floaters and freaking out over that. Then seeing sparkles dance around my vision on bright surfaces, then black spots in my peripheral vision that lasts a second but not a floater cause it doesn't move just appears and dissappears. Then during pregnancy I developed double like vision but only on letters far away and I don't see it all the time only when thinking about it. I noticed it one day why googling ghost image and after that I noticed it on my tv. On a black surface the white letters sat above the real white letter image. Then I got glasses and it improved a bit but I still see it if I squint or something. My opthamologist said my eyes are healthy which makes me think it's my brain. Does anyone else get these odd vision issues? I also get after images, trails of images and sometimes when I'm driving at night I see halos around lights and also black lines that appear to be what looks like the electric wires along the road but it's only in my peripheral vision and when I look there it's gone. I posted about worrying of a brain tumour or something else going on.
Saw my GP and he said highly unlikely with all the tests I've had done but he will do a CT scan to put my mind at ease. Now I'm worried of the radiation from the scan and it causing cancer. So if I do the scan will I nice in to worrying I have cancer? I just don't know whet to do and I'm looking for some support
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Offline Slangevar

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Re: Weird vision issues, anyone else?
« Reply #1 on: September 04, 2014, 02:45:32 PM »
Sixpack would be a good resource for this - she has experience with symptoms of brain tumors. But it's been a year, so it seems like you would have other symptoms by this point if it was that. 

I personally have dealt with floaters my whole life - they seem to increase during periods of stress, dehydration and hormonal changes. I also had the sparkle thing and other vision issues when I got two hormonally induced ocular migraines. It's possible it could have been pregnancy related.

If your doc feels the head CT scan is necessary, it's not nearly as bad radiation-wise as some of the other CT scans. But it sounds like you've had all the right tests and no one seems to be worried. (My first concern was glaucoma, but you covered that - well done!)
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Offline Coreen15

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Re: Weird vision issues, anyone else?
« Reply #2 on: September 04, 2014, 02:48:09 PM »
Thanks yah sixpack did post on my last one about the brain tumour. She calls it a magical tumour lol.
I just want to know if there are others dealing with anxiety that have a similar issue but no explanation
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Offline sixpack

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Re: Weird vision issues, anyone else?
« Reply #3 on: September 04, 2014, 02:50:08 PM »
slangevar...

coreen and I chatted at great length about all of this on her other thread yesterday.  as far as I can see,  the only way this stuff could be a brain tumor would be if it were a "magical tumor"   :yes:   
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline sixpack

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Re: Weird vision issues, anyone else?
« Reply #4 on: September 04, 2014, 02:51:32 PM »
Thanks yah sixpack did post on my last one about the brain tumour. She calls it a magical tumour lol.
I just want to know if there are others dealing with anxiety that have a similar issue but no explanation

there IS an explanation.   Your anxious thinking just doesn't agree with or accept it  :winking0008:
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline Coreen15

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Re: Weird vision issues, anyone else?
« Reply #5 on: September 04, 2014, 03:00:12 PM »
Yah it's like a switch that keeps turning on that anxious mind set that won't let me let it go. I m trying to thnk about what you said and then also what my husband thinks as well as my mom and it still just doesn't sit. It's like how does anxiety cause such real physical symptoms mainly weird vision problems? How is it really the culprit of all this?
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Offline Riddle

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Re: Weird vision issues, anyone else?
« Reply #6 on: September 04, 2014, 03:22:37 PM »
I'm having similar problems and have got the same worries as you. I get the sparkles on bright surfaces and the sky, find it hard to focus my eyes at a distance so I start to get a double image (it gets worse and worse the more I test it), weird black shape like you describe except mine is central to my vision and only happens in certain lighting. At other times I get a white camera bulb like flash in the same place. I know it's in the brain as it's identical in both eyes. After images sometimes, halos etc.

Had my eyes checked and waiting for an MRI in a few weeks (I was similarly worried about the CT scan so requested they change it to an MRI and luckily they agreed).

Terrified it's a brain tumour as well and going out of my mind with anxiety the same as you.
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Offline Coreen15

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Re: Weird vision issues, anyone else?
« Reply #7 on: September 04, 2014, 03:38:42 PM »
Yes I get that bulb like flash same as you and it's only if I been looking at a light source or aometimes. The black spot same thing only in certain lighting more so in dim lighting. And it's not all the time just once in a while. Like it went away for a month and then when it comes back it happens usually at night in I'm lights and sometimes. It's both eyes as well. Did you have your eyes checked? Did the doctor think the and way? Reluctant on sending you for a scan? We have a huge wait for an MRI. Id love an update once you get it done.
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Offline Riddle

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Re: Weird vision issues, anyone else?
« Reply #8 on: September 04, 2014, 04:12:16 PM »
It's all the time for me in the right lighting anytime I blink or move my eyes the black spot/shape thing appears. However, my mother also can see one - I've asked her enough vague questions and she's described the exact shape, movement, characteristics of the black shape. The only difference between me and her is that she doesn't worry about hers!

Flashbulb mostly happens when I blink or turn my head quickly towards the sky or a bright window, like the white of the net curtain. I see those sparkles on the white curtain too and the area of my vision with the flashbulb is very sparkly after I notice it.

This all started around the same time I got visual snow (which I think was probably caused from years and years of anxiety attacks and worrying but not sure).

My eyes were checked by an ophthalmologist at the hospital a couple weeks ago, but I've been noticing these issues since April. The doctor didn't know offer any theories and was her idea to order the scan (although I wanted one too) though she said if they suspected anything like a tumour I'd be having an urgent scan in the next week or so. I'm also going to have an electroretinography.

The only things that have reassured me slightly are 1) my mother sees all the same things as I do, and seems to have the visual snow issues too, which makes me think it's all connected to that 2) a lot of people with visual snow and these symptoms come back with clean MRIs.
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Offline sixpack

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Re: Weird vision issues, anyone else?
« Reply #9 on: September 04, 2014, 04:27:40 PM »
Neither one of you have brain tumors.  You both have anxiety that is wrecking havoc on you physically.

I am not trying to sound belittling and I apologize if it comes off that way but I don't know another  way to say it.   :goofy:   From what I have seen here for the past 5 yrs is that anxiety disorders and potential recovery  seems to have stages.  It looks, to me,  like you guys are in the "reassurance" stage of anxiety disorders.. This is the time when  peeps want family/friends to reassure often and need doc visits and tests to make "sure" it isn't a terrible disease.  I went through that for myself  and most people have.   At some point, though, in order to getting on your healing path, you will have to move passed the "reassurance" phase.  Hopefully the next round of testing you have will be the end of this stage.  After this round hopefully you will be able to truly begin  accepting that anxiety isn't innocuous and causes all kinds of physical issues in a body.

Good luck and be well   :action-smiley-065:
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline Coreen15

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Re: Weird vision issues, anyone else?
« Reply #10 on: September 04, 2014, 04:31:44 PM »
We'll I'm glad there is someone else out there that has similar issues. Do you think once you have the scan you will out it at rest? I hear a lot of people think of somethig else going on or that maybe something was missed in the scan? I have had my eyes checked 8 times in the past year and 3 of then were emergency ones. The last two times were an opthamologist and he even did a visual field test as well as an oct test to put my mind at ease. He had no suspicion of a brain tumour and doesn't think a scan is necessary. Even my GP said it's not necessary but he is wiling to do one for piece of mind. They say a ct scan of the head has the lowest radiation and it only increase your chance of cancer by .02 % which is low. It's the same amount of radiation we get from the environment in one year. Just debating what I should do. I also get tingly sensations in my arms and feel woozy and dizzy at times.

Sixpack since your words of advice have impact a lot of people on this forum what would you so into situation? Would you go ahead and get the ct scan over with and be done with the whole brain tumour thing or just suck it up and live on knowing it still could be a possibilityand try to let it go? I'm stuck with trying to make this desciaion even though I have never had any X-rays, ct scans done ever in my life. Except an X-ray at the dentist but that's it.
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Offline Lalaland

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Re: Weird vision issues, anyone else?
« Reply #11 on: September 04, 2014, 04:44:37 PM »
I have this :)

The ophthamologist calls it 'ghosting' and he said it's caused by either astigmatism (the way light is refracted into your eye) or a bump on your eye he called an arberration (or something like that?). I have both of these and the ghosting is definitely noticeable.

Both are completely safe but he said that with our current glasses technology we won't be able to fix it 100% right now, so there will still be some ghosting around objects. Apparently they're working on a way to correct this, but it's a while away.

I particularly notice it when I try to watch tv at night and there is white writing on a dark background.

Hope that helps!
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Offline Lalaland

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Re: Weird vision issues, anyone else?
« Reply #12 on: September 04, 2014, 05:01:03 PM »
I forgot to mention.

Astigmatism is very, very common and it can also cause halos around lights. It's very noticeable at night when I'm driving - and again, it's something glasses can't quite fix at the moment.

My opthamologist only ran the aberration test when I mentioned something to him about the ghosting. He'd already done a thorough check and knew my eyes were ok. Turns out my eyes are really lumpy haha

It's possible you guys have this too (also super common).  Most people have some kind of aberration. He basically described it as a test that compares the surface of your eye to a perfect sphere. It just depends where the bumps are whether or not you will notice them.

As I said before though. Both of these are perfectly safe. If there was anything dangerous in your eye they would have picked it up. Initial exams they seem to run the tests for anything dangerous - this was my 3rd visit to my doctor and I just mentioned it in passing so he ran the test because it was annoying me that my glasses weren't working
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Offline sixpack

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Re: Weird vision issues, anyone else?
« Reply #13 on: September 04, 2014, 05:06:59 PM »
coreen--

when I was in the "get med test phase to reassure me that I am okay" I would get tests.  Eventually I figured out "reassurance" med testing simply doesn't do what the anxious thinking says it will do.

What happens is either 1.  peeps find fault in test.  they just don't believe the results or the test was done too early or it wasn't the right one.   OR  2.  the person believes the test but soon succumbs to a new ailment not covered by the 'previous" reassurance testing.

You see evidence of this posted on this forum daily.  YOU, coreen, are evidence of this   :yes:  .  I've done this.  I used to be the "doubter" of the test person.  Then, eventually, I moved to the "moving to new disease" person.   I *think* the #1 type person is in the earliest stage of acceptance of anxiety disorder.  the #2 group seemed to have learned that doubting tests is  :dazed:    Meh, that is what I think anyway.

Now what would I do and what DO I do?   Well, first, I finally accepted what anxiety does to people.  I understand how my thinking works  etc, and blah, blah blah.....   :laugh3:  I mean I came to this kicking and screaming at times but.....   

so.....  I have not had ANY reassurance testing since May of 2009.   Have I had weird things happen in my body?  Yes  OH yes.  and I had to, at times, really talk myself back to being logical. 

Have I had medical things go wrong with me?  Yes.  and I went to the appropriate docs during those times.    I actually have an eye ailment, ultimately caused by stress--an ACTUAL organic eye disease due to too much adrenaline   :sprachlos020: 

How often to I go to the docs?  well for actual sickness--ie ear infection.  I go for annual physicals--reg doctor, gyno and mammograms (I have to make my appointment for that, ugh) and regular ophthalmologist.  This year I had my first colonoscopy because I turned 50.  In the US that is protocol.   AND  I see the retina specialist for my eye condition 3 or 4 times a year.


SO AFTER THAT LONG ANSWER:

If I were you:  the stuff you describe happening would have already been filed under stress/anxiety symptoms.   so no I wouldn't have any type scan. 

that isn't saying you can't make a different decision.  what you decide is what you decide.     
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline Coreen15

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Re: Weird vision issues, anyone else?
« Reply #14 on: September 04, 2014, 05:25:46 PM »
Interesting my eye doctor never mentioned what you described. Wondering if it's because he thought I just have myopia which is a mild case of nearsighted which could also be why I see slightly double far away on bright stuff.

Thanks sixpack...you always know the right things to say.
I just talked to my dr on the phone and he thinks that I should just get the scan over with because me constantly worrying over this will do more damage then one scan on the head will. Mentally I'm hurting myself and this scan will rest assure me that nothing is going on in the brain if nothing is found that is.
He thinks I need to start anti depressants and recommends Zoloft cause I'm nursing. Will that even fix the problem?
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