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Author Topic: Constant worry I have a Brain tumour  (Read 254 times)

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Offline Coreen15

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Constant worry I have a Brain tumour
« on: September 03, 2014, 01:00:46 AM »
For the past 2 years I have been worrying that I have an underlying issue that isn't diagnosed, specifically a brain tumour. It started out with seeing dots in my vision that float around. I visited the optometrist and he checked my eyes and said they are just floaters and not to be worried. I also would get dizzy spells before that and even till this day. It comes and goes and feels more like woozy feeling and sometimes as if th ground is moving. After I noticed the floaters I would also see these shimmery dots move around and I only see them against a bright surface. The optometrist didn't have an explanation for that but that he didn't see anything concerning with my eyes.
I then started to develop other weird symptoms like tingly in the hands and arms. I get it more when I'm sleeping but it's not on the side I'm lying on. It's the opposite arm. I don't get the tingly feeling if I straighten my arm out across or hug a pillow.
Now my vision has become even more wonky. I would get after images, see black spots in dim light for a second but it's only in my peripheral vision. I also get static like vision once in a while at night time or as if there are lights flickering on and off but there isn't anything there and it's only in the complete dark. So I had my eyes checked again but by an ophthalmologist and he didn't see anything concerning. I then became pregnant with my second child last year and started to almost see double vision on letters far away. It's more like the letter sits on top of te actual letters in the image. I told my GP and he again referred me to the opthamologist for another test. He checked again and said nothing to worry but he would agree to do a visual field test and OCT test to put my mind at ease and he knows I have a brain tumour worry.
Everything came back normal
What is going on with me then? I have had many blood tests, ECG and holster monitor as I get heart palpitations upon relaxing.
I have seen an ENT specialist. The only thing I haven't seen is a neurologist and had a ct scan or MRI.
Should I get one done, would that even put my mind at ease? I'm scared of the radiation from the ct scan and MRI has a huge waiting list.
 
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Online fishmanpa

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Re: Constant worry I have a Brain tumour
« Reply #1 on: September 03, 2014, 07:48:25 AM »
Hi Coreen,

Sorry you're experiencing so many physical symptoms. Everything you describe are symptoms of anxiety. BT fear is one of the top fears as well. You've been cleared by medical professionals and tests so what does it leave? Anxiety cause real physical symptoms and many are unpleasant. Treating the real illness treats the physical symptoms as well. Reassurance is a short lived reprieve at best.

Positive thoughts
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"Eat. Drink. Enjoy the work you do. Be thankful for the blessings in your life. Live. Love and seek out the things that bring your heart joy. The rest doesn't matter!."  King Solomon.

Offline sixpack

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Re: Constant worry I have a Brain tumour
« Reply #2 on: September 03, 2014, 09:18:29 AM »
You've been "worrying that you have an underlying issue that is undiagnosed"  well, honey, welcome to the "catastrophic thinking club".   :yes:  that describes most people here.   :winking0008:   which, coincidently, is what hypochondria is.   ;D

the things you describe are NOT evidence of brain tumor-----not even close.    What it IS evidence of is anxiety gone physical and/or just minor aches/pains ---little hitches in your giddy-up---that you have turned into something catastrophic.   As long as you monitor, ruminate, freak out over, look for abnormalities, the longer and worse these things get. 


Listen I've known 7 people either directly or indirectly with brain tumors.  One was my dad and one, my sister.  One a high school classmate who was dx'd with a glioblastoma 3 yrs ago.  He has a recurrence now.  In the last day or so  he had another surgery.   OOPS actually 8.  A friend of ours had an acoustic neuroma a year or two ago.    Not only do I know all of those peeps with brain tumors, my eldest has a serious brain malformation that causes all kinds of neuro issues with her.  I've seen what neurological cancers/tumors and dysfunction do to people.    So I will let you know when you get a symptom that looks like a brain tumor to me.   I am not one to give endless reassurance as it doesn't help but I will tell someone if , IMO,  they have an organic med issue that should be looked into. 
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline Coreen15

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Re: Constant worry I have a Brain tumour
« Reply #3 on: September 03, 2014, 11:55:52 AM »
Thanks makes me feel better. I had a co worker that has a brain tumour on the pituitary gland and she had no symptoms other then her period coming and going oddly so she had her prolactin checked and it was sky rocket so they sent her for a MRI and she has one. So what scares me is that if she didn't think she even had a brain tumour and then she does then how can I think I don't have one and experience symptoms of a brain tumour. My major concern is the vision disturbances. Even though I'm not worrying about anything I still experience them put of no where. I can admit that the anxiety started then the vision issues but usually illnesses go hand and hand with anxiety.
I have been seeing a naturopath about my issues for a few months now and she believes it's adrenal fatigue and not a brain tumour. Been trying herbal supplements to go a natural path but doesn't always work. Works for a bit then fails and then I need reassurance again
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Offline sixpack

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Re: Constant worry I have a Brain tumour
« Reply #4 on: September 03, 2014, 02:05:54 PM »
well I may be the biggest jerk (or some may think so  :winking0008:) for saying this but I JUST don't think herbs and vitamins FIX  anxiety or that the symptoms of anxiety is caused by vitamin deficiencies..  Lots of people will go to the "adrenal fatigue" stuff and then find out that that isn't what is going on either.  SURE there may be a small % of people who have all kinds of crazy symptoms because their b12 or d3 are low or they have "adrenal fatigue"  but really the problem  with the VAST majority  members here is ANXIETY.  Anxiety not brought on by deficiencies in vitamins or "adrenal fatigue" but by genetics, upbringing, traumatic childhoods, current environments, personality, high stress lives.    I do understand the desire to cure all of this craziness we feel by swallowing a pill.  The world is really into instant gratification.  We want it NOW.    however, that just isn't going to fix this stuff.


Pituitary tumors are usually benign.  Many women find they have one when they can't sustain a pregnancy.  the reason why she found it wasn't that she had no symptoms, she did.  those tumors generally affect people in just the way you describe.  They don't do some of things you believe all tumors do.   I don't really understand your logic when you say:  she didn't even think she had one......??

btw--  YOU ARE NOT experiencing symptoms of a brain tumor.  That is your interpretation.  Problem with your interpretation is that it is being filtered through an anxious mindset.  Anxious minds are not thinking clearly.

I have several links on my profile.  three talk about anxiety and how I think it affects people.  the 4th is a list of common anxiety symptoms.  If you opt to read them, read the responses too.

also note my signature posted in blue at the bottom of this post.
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline sixpack

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Re: Constant worry I have a Brain tumour
« Reply #5 on: September 03, 2014, 02:10:22 PM »
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline Coreen15

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Re: Constant worry I have a Brain tumour
« Reply #6 on: September 03, 2014, 04:15:07 PM »
Thanks six pack reading your posts does make a lot of sense. I guess I just keep looking for an explanation for anything and why it's happening. It's so hard to let it go. I just don't see how anxiety can cause so many odd vision issues and not too many people with anxiety describe vission issues as their physical symptom.
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Offline sixpack

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Re: Constant worry I have a Brain tumour
« Reply #7 on: September 03, 2014, 05:12:51 PM »
Quote
  I just don't see how anxiety can cause so many odd vision issues and not too many people with anxiety describe vission issues as their physical symptom.   

you have't read too many posts here have you?   :winking0008:   people complain of vision symptoms ALL the time.  What eye symptoms do you have that are REALLY troublesome (meaning symptoms caused by a tumor) or not easily explained by a hyped up nervous system?  floaters happen to everybody.. they are just bits of debris floating around in the eye.  I began noticing them in my 20's.  the other things are, sorry, still not coming from a neuro disease.  they are coming from an amped up nervous system.  vision is easily affected by fight/flight.   Coreen as I explained earlier I've seen tumors up close and personal.  Your "symptoms" don't even approach a tumor symptom.    yeah my dad had ACTUAL vision issue with his tumor.  it was vision LOSS--as in can't see on the peripheral---24/7---not fuzzy but NO vision.  When he went to the eye doc, the doc could see a shadow at the back of his right eye and said,  " I think you have a brain tumor, see a neurologist.  All of this stuff you are talking about---off/on issues--is not a brain tumor.  brain tumors don't do eye symptoms on the edge in dim light or static at night and shimmery dots on bright surfaces.   

I am not trying to belittle your fears.  What I am doing though is telling you that it ISN'T tumor.  It IS from anxiety.  You can hold onto this fear if you so choose and worry.  However it would be a complete waste of a worry.  You can also get a ct scan or MRI, but that won't fix your anxiety disorder.  Oh you may no longer fear a tumor, but soon enough your fear will move onto something not covered by the scan.


btw--- did you know that I have an ACTUAL eye disease caused, ultimately, by STRESS!   :sprachlos020:

YEP

I have OCT every time I see the retina specialist.  My last one in July was abnormal, again.  I had to have a fluorescein angiography,  again too. 

 your eye symptoms are not what I had when my eye was greatly affected.   and based on your OCT your eyes are normal.
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline Coreen15

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Re: Constant worry I have a Brain tumour
« Reply #8 on: September 03, 2014, 05:40:26 PM »
Thanks sixpack. It's great to hear that you don't think my symptoms are a brain tumour. I have other weird issues with my vision though like black spots that appear against a wall as if something was pushing on the bac of my eye and then it dissapears. I won't have it for a while and thn it will appear on and off for 3 weeks and then go away. I also see double like vision which is also a brain tumour symtom. I didn't notice until I became pregnant with my 2nd child and when looking up what ghosting image looks like. When I saw my dr about it he said I need glasses in which I did get and even with my glasses on I sometimes see double like far away if I squint my eyes. It's in both eyes and not just one. I can close either eye and still see it as well as if when I have both eyes open. Again it's only on wording far away. Yah I was thinking about a ct scan and worried that even though I get one it might not resolve my issue.
Reading your posts had put my mind at ease. I just recently saw a black flash and it freaked me out again.
I truly appreciate your posts and they make 100%
I just keep thinking if the opthamologist can't see anything wrong with my eyes itself then it must be my brain. Ugggg a vicious cycle
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Offline sixpack

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Re: Constant worry I have a Brain tumour
« Reply #9 on: September 03, 2014, 05:52:59 PM »
okay another FLAW in your brain tumor theory.......  these have been going on for 2 years?   When the hell is it going to become a real problem?       My dad started having serious problems---not just eyes.  three months, a bout, before he was dx'd.  He died one year later.   that was with a fast growing tumor.  my sister had a slower growing one:  however she had symptoms that kept getting worse over the 3-5 yrs.   onset was personality changes and peeing in her pants.  then she started with motor symptoms and seizures.   please note that once a symptom started they got worse.   remember hers was slow growing.  but still over two years there were worse symptoms.   back to my dad.  his eye itself was normal.  but doc could SEE the shadow behind the eye (coming from the brain) that was causing his vision loss.  your doc saw no such thing.

Nope still unimpressed with your "magical tumor"  theory :winking0008:


so back to you    IMPRESS ME!    :sprachlos020:   :winking0008:
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline sixpack

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Re: Constant worry I have a Brain tumour
« Reply #10 on: September 03, 2014, 06:12:45 PM »
I am not being flippant with you.  I am trying to inject some levity here   :yes: :yes:




I call your brain tumor "magical" because  this has been going on for two years.  the flashy/shimmering//double vision (all common with fight/flight)) are not worsening, they are not all of the time.   Additionally even a slow growing tumor that is LARGE enough to cause symptoms will produce worsening symptoms over a two year period.   Your posts are all about intermittent visual symptoms.   Symptoms that, mostly, just scare you but not really hamper your life.  I mean you can still drive, read, cook, work, take care of your child......


I see you are worried about intermittent tingling mostly when sleeping.   that is also a product of stress.anxiety and an amped up nervous system.   many people complain of this as well

that is why I call this a "magical tumor"   
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline Coreen15

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Re: Constant worry I have a Brain tumour
« Reply #11 on: September 03, 2014, 08:09:10 PM »
Lol magical rain tumour. No I appreciate the harsh words cause I really need that to kick my minds butt.
Well the vision issues started last year but my first symptom was dizziness and woozy feeling and off balance kind of feely like the ground beneath me is moving. That was in December after I found a lump on my breast that turned out to be a benign lymph node. After that is when everything escalated. In April 2013 is when the floaters started and then more vision issues after that. In September 2013 is when the more unexplainable vision issues started like the black spot appearing for a second (not floater) cause I get that odd black spot that floats around in my vision and also lashes of light, images that trail, after images and list goes on. So that's why I think it's a slow growing tumour but you have out my mind at ease by your harshness per say lol.
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Offline sixpack

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Re: Constant worry I have a Brain tumour
« Reply #12 on: September 03, 2014, 09:16:20 PM »
I am glad some of my posts have given you some pause in your runaway brain tumor love affair   :winking0008:

I hope it sticks.


Just to tell you,  your magical tumor is a very namby pamby one sticking to vision symptoms like that .    :winking0008:
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

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