I have a very bad fear of als. I am a female, 29, have three young boys and my youngest was born with an undiagnosed medical condition and has had 4 surgeries so far so am extremely stressed and worried at all times.
My als fear started 2 years ago when I saw a nutritionist who gave me some false information regarding a blood test I had. She basically made me think that I had the SOD genetic mutation that causes familial als.
I have been assured countless times since then that my blood test does not indicate that at all but I cannot seem to shake the fear away.
I have had BFS since all of this.
Around a month ago I started having a buzzing sensation in my right foot. As well has lots of pins and needles and awful stabbing pains in my fingers toes and occasionally throughout my body. I saw a neuro, had a full brain and spine MRI which came back clear and also a nerve conduction test only in my arms though and that was clear as well.
After the results the pain subsided a bit but the buzzing is still there. More constant than it was in the beginning. I also have pain that I think is plantar fascitis (and I don't know why and don't want to look but am convinced I have seen that linked with als) I get pain in my heels but recently having a pain in my left ball area of my foot where the buzzing is! I am also convinced that the ball of my foot has atrophied slightly as it is smaller than the left foot. I do apparently have very flat feet.
I am so scared that this buzzing and pain is the beginning of als. I cannot rationalise myself out of this one! I am so scared, can't focus on anything and am so scared of leaving my boys behind especially as my baby is not well and I need to be here for him ;(
The fact that he buzzing hasn't disappeared and if anything become worse is scaring me, along with the pain.
I find myself standing on my toes all day now to check I am not becoming weak as well as constantly pressing my feet to feel the difference. I am also staring at them like a maniac to see if there is any minor twitching that I cannot feel.
Please help reassure me. I am in such a state. Don't know what to do anymore, feel like checking myself in to a phych unit as I feel like I am just losing it.
Sorry if any typos, am on my phone.
Thanks to anyone who reads and responds.