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Author Topic: Tongue twitching - why does the doctor say it's not normal?  (Read 1291 times)

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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #105 on: June 09, 2014, 05:45:10 PM »
Actually that and another. The other isn't difficult to find. Please, anyone else, do not begin googling.

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Offline NytViolet

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #106 on: June 09, 2014, 05:56:42 PM »
Actually (although a bit technical for me) this paper reassured me (since I've had fascics for so many years). And again, if these four individuals were so remarkable that their histories are now published in the medical literature, it means that ridiculously slow progressions such as these are EXCEPTIONALLY RARE indeed!  Bottom line:  A good percentage of the population has fasciculations / twitches / cramping, etc., yet very few turn into *** (probably the same as the general population, otherwise, the diagnostic criteria would have changed). Just my take on it. 
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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #107 on: June 09, 2014, 06:59:52 PM »
Alright. Hell with it.

The Walton study is flawed and MND specialists tend to wholly disagree with its findings. It was not a follow-up proceeding, but one specifically aimed at finding 'exceptional' cases and the total number of people assessed was never established.

It's 'unique' findings pretty much speak to the contrary of every study and physician account since.

There is another study, the 6% study, that is notoriously circulated on AboutBFS and here. This one is less inaccurate as it is misunderstood. I will not bother to explain its findings so long as no one has specific concerns about it because, honestly, I just don't want to. You can find dissections and interpretations on AboutBFS. Or ask Shawn; I'm pretty sure he was the one who actually addressed it best on AboutBFS.
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Offline adam4little

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #108 on: July 19, 2014, 06:00:14 PM »
I just want to say, as someone who discovered near constant, localized  tongue fascics when tongue is extended and believes he has seen the occasional worm like movement this has really freaked me out. Im not sure what else to say.
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Online ShawnW

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #109 on: July 19, 2014, 06:19:49 PM »
Tongues often twitch when extended just like thighs pop and quiver when in a half squat.  That doesn't mean anything.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Offline adam4little

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #110 on: July 19, 2014, 06:49:25 PM »
But in one localized spot rapidly?
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Online ShawnW

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #111 on: July 19, 2014, 10:39:00 PM »
But in one localized spot rapidly?

Yes.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #112 on: July 20, 2014, 02:37:39 AM »
But in one localized spot rapidly?

Usually tongue the 'bad' kind of tongue twitching has a distinct appearance. The kind you're describing is not it.

Even the 'bad' kind can be benign, though, and yet again: twitching is a terrible predictor.
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Online ShawnW

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #113 on: July 20, 2014, 07:22:07 AM »
The tongue must be a rest before you can look for tongue twitches...meaning inside the mouth, resting, completely still.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Offline Rasalhauge

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #114 on: July 20, 2014, 07:45:26 AM »
But, twitching constantly when the tongue is at rest is usually not a good sign, right? My tongue twitches constantly, it looks like it is being pulled at different directions and sometimes as if it "deflates" (sinks in the middle of tongue). Is this a cause for concern?
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Actual diagnoses;

- OCD (HA and others)
- GAD
- Major depression
- IBS and Gastritis
- Hemisensory symptoms and somatorform disorder

Self diagnosed with;

Bulbar onset ALS, Limb onset ALS, Young onset Parkinsons disease, MS, Rheumatoid arthritis, muscular dystrophia, and so many more....

Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #115 on: July 20, 2014, 08:10:53 AM »
But, twitching constantly when the tongue is at rest is usually not a good sign, right? My tongue twitches constantly, it looks like it is being pulled at different directions and sometimes as if it "deflates" (sinks in the middle of tongue). Is this a cause for concern?

This is normal. My tongue does this.

These are not the 'twitches' that happen in ***. Literally, the tongue-twitching that happens in *** is so bizarre looking you would know that there was something amiss. It looks super-gross.
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Offline Rasalhauge

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #116 on: July 20, 2014, 08:39:31 AM »
But, twitching constantly when the tongue is at rest is usually not a good sign, right? My tongue twitches constantly, it looks like it is being pulled at different directions and sometimes as if it "deflates" (sinks in the middle of tongue). Is this a cause for concern?

This is normal. My tongue does this.

These are not the 'twitches' that happen in ***. Literally, the tongue-twitching that happens in *** is so bizarre looking you would know that there was something amiss. It looks super-gross.

Ive seen a video that shows ALS-twitching in tongue, and in my mind mine looks the same =/ And I read somewhere that inability to keep the tip of tongue still when it is maximally protruded is a tell-tale sign of neurological disease. Is that true? Because mine tremble like crazy as soon as I protrude it, it also deviates slightly to the left. Can this really be normal?
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Actual diagnoses;

- OCD (HA and others)
- GAD
- Major depression
- IBS and Gastritis
- Hemisensory symptoms and somatorform disorder

Self diagnosed with;

Bulbar onset ALS, Limb onset ALS, Young onset Parkinsons disease, MS, Rheumatoid arthritis, muscular dystrophia, and so many more....

Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #117 on: July 20, 2014, 08:52:18 AM »
Do you know how many times I've bitten my tongue in the last week. Supposedly that is a sign, too. I'm ignoring it. I figure it's probably just a chance thing that I've been gnawing on my tongue the last week. The speech impediment was temporary. No reason to believe that I've just been bad about biting my tongue recently. It still works. I still have full-range. I don't slur. Whatever. I bite my tongue. Happens. This is the mindset you need to get into. Trust me. The longer this fear persists, the worse your symptoms become and the more difficult it is to escape. And remember, bulbar's rare. Really rare.
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Offline Rasalhauge

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #118 on: July 20, 2014, 09:07:48 AM »
Do you know how many times I've bitten my tongue in the last week. Supposedly that is a sign, too. I'm ignoring it. I figure it's probably just a chance thing that I've been gnawing on my tongue the last week. The speech impediment was temporary. No reason to believe that I've just been bad about biting my tongue recently. It still works. I still have full-range. I don't slur. Whatever. I bite my tongue. Happens. This is the mindset you need to get into. Trust me. The longer this fear persists, the worse your symptoms become and the more difficult it is to escape. And remember, bulbar's rare. Really rare.

Im trying really hard to overcome this crazy fear, but it isnt showing any signs of letting up any time soon=/

Ive managed to convince myself that I actually have weakness of the tongue, and freaked out soooo bad when I tried pushing my tongue against the cheek and then add pressure on it with my finger. The tongue gives away really easilly. If my tongue wasnt weak then I would be able to resist quite alot of pressure from my finger, right? It also seems to be weaker on my left side than on my right, what other than ALS could that be? Surely anxiety wouldnt cause actual weakness, right?=/ Sorry to be such a pain in the ***, but Im having a major mental breakdown here. Im so f-ing scared right now...

On top of all, my tongue feels sore and aching after just having done one test with it=/
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Actual diagnoses;

- OCD (HA and others)
- GAD
- Major depression
- IBS and Gastritis
- Hemisensory symptoms and somatorform disorder

Self diagnosed with;

Bulbar onset ALS, Limb onset ALS, Young onset Parkinsons disease, MS, Rheumatoid arthritis, muscular dystrophia, and so many more....

Online sixpack

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #119 on: July 20, 2014, 09:54:52 AM »
rasalhauge----   exactly HOW are trying to get over this crazy fear.
 
Respectfully---- (and you must know this on some level) every time you look at your tongue or muscle or monitor your body for "abnormalities" or look some piece of als stuff online, or self check, or seek reassurance YOU NEGATE any proactive things you may be doing.

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MOST anxiety happens at the subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state. 

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