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Author Topic: Tongue twitching - why does the doctor say it's not normal?  (Read 5615 times)

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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #10 on: June 09, 2014, 01:25:48 AM »
Highly variably. 7 months is a fairly safe maximum estimate. Probably more like a month. 
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #11 on: June 09, 2014, 01:31:23 AM »
OK I've had the twitches for about a month. I can't wait 6 months. This really scares me to tears.

What studies point to fascis scoming before weakness?
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #12 on: June 09, 2014, 01:33:07 AM »
Can't recall the name. The '6%' study I believe mentioned it.

Scares me too, man. I'm at 2 months.

How old are you?
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #13 on: June 09, 2014, 01:33:50 AM »
24 years old.
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #14 on: June 09, 2014, 01:37:14 AM »
Does the study, or any other studies, confirm that fascis in ALS are supposed to be constant and not felt?
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #15 on: June 09, 2014, 01:40:01 AM »
You're approximately my age -- I'm a little younger. There is roughly a one in a million chance either of us have this at our current age. In the studies I'm referring to, those that had *notable twitching before weakness not a single person had, had a history of anxiety -- those that DID have a history of anxiety and complained of twitching first were found to all have benign twitching. Now, I actually know of a case when the person DID have a history of health anxiety, but there is ONLY one case that I'm aware of and, trust me, I've read pretty much all the internet has to offer about the persons afflicted and the disease itself. Our odds are stacked pretty f**king well in our favor. 
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #16 on: June 09, 2014, 01:42:13 AM »
A neuro looked at my tongue about 2,5 months ago. She said it looked normal. And then like a month ago I started feeling these occasional twitches.

Would she have been able to see fascis before I could feel them?
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #17 on: June 09, 2014, 01:44:00 AM »
No, there is not. As I've said three times, twitching is a VERY POOR indicator of pathology. Some people WITH *** never feel twitching or notice it. Others do. Sometimes they do before, sometimes after. There are many, many variables. Some even experience paresthesia (although this number is extraordinarily few). YOUR general likelihood of having this is about .000017%. Even less for bulbar. Somewhere around one in 50 or so million.
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #18 on: June 09, 2014, 01:46:29 AM »
I would like to say yes, but I can't be certain. Try tenting your cheeks and touching all your teeth and licking your lips. If you can do all of these the chances are astronomically in your favor. Occasional twitches mean nothing. Especially as I already know they're not the type that usually presents in ***. I know I'm using a lot of 'usuallys', but that's all there really is in ***. It's a poorly understood disease.
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #19 on: June 09, 2014, 01:52:19 AM »
Look, these twitches will drive you mad. I've been there. Hell, I'm STILL there. You HAVE TO, HAVE TO, HAVE TO, assume you're healthy until you HAVE clinical weakness or begin slurring constantly. These twitches will very likely get worse. Much worse. Very quickly. If you do not get over this fear. I'm not trying to be crude, it is just the honest truth. Many people have been in your position, began worrying about ***, then had bodily explosions of twitching that takes even longer to get over.
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