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Author Topic: Tongue twitching - why does the doctor say it's not normal?  (Read 1246 times)

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Offline joycecaroll

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I have tongue twitches a few times a weak. The freak me out since i fear ALS. Everybody says that it's normal for the tongue to twitch since it's a muscle, witch seems perfectly  logical for me. Now, I've read statements from two different doctors online saying that benign fascis in the tongue doesn't happen. What's up with this? Can any one clear this up for me?

Would very much appreciate it <3
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #1 on: June 09, 2014, 12:53:27 AM »
It happens. Whoever wrote the articles you read is very badly misinformed.

Certain TYPES of twitches do not normally occur in the tongue -- these look like worms and are persistent.

General 'twitching' is a normal feature of the tongue when sticking it out. Other twitching may happen, but anything other than that 'worm' type is, more than likely, normal.

That said, that 'worm' type twitching or fasciculations (fasciculations can look different than the 'worm' type, but the 'worm' type is considered the 'malignant' form) can be benign or related to peripheral neuropathy and not necessarily ***. Twitching is regarded as a bad indicator of pathology. Even the people on the ***forums will tell you that as they see an enormous amount of young people visiting with bad anxieties asking about twitching.
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #2 on: June 09, 2014, 12:57:39 AM »
Thank you for answering! Are you SURE about this? My twitches happen when my tongue is in my mouth. Still normal?
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #3 on: June 09, 2014, 01:00:18 AM »
Also, fasciulations of the tongue are not normally felt, but observed.

Stop worrying about bulbar-onset. It's rare even among people diagnosed with the disease. Something like 600 cases annually in the US. And only .03% of those cases occurring in someone beneath the age of 40 and above the age of 70.
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #4 on: June 09, 2014, 01:01:34 AM »
Yes, still normal.

It's a very specific type of twitch when you're looking at bulbar-onset. And you WOULD have problems with speech before seeing these twitches (slurring).

Actually that's a bit of a lie. Contrary to everything I've ever read on this website, research shows twitches occur first. But very shortly before. You'd notice the slurring before the twitching, regardless. Unless of course you're looking in your mouth every day. Even then, I'm not entirely positive you'd see the twitching in early stages. They do appear on an EMG first, though. Again, this is a very short period of fascics before weakness. You don't have bulbar either way. I promise you, you do not have bulbar.
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #5 on: June 09, 2014, 01:10:28 AM »
Thank you so much!!!

But I have to ask you about what you said about twitching coming first - how long before weakness does the twitching occur? I just started having theese twitches like a month ago.

And also, are you sure that one NEVER feel the fascis?
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #6 on: June 09, 2014, 01:13:29 AM »
And: are twitching in ALS always persistent or can they come and go at first?
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #7 on: June 09, 2014, 01:13:29 AM »
While I'm here. I'm going through *** fear too. I have/had body-wide twitching now centered in my legs. Freaks me the hell out. Bulbar is ret**ded rare. Not even something you should consider fearing.

Stress is the most common cause of twitching. Anxiety and hyperexcitability (this is a process in benign and malignant twitching -- which is why it continues to freak me out) are far, FAR, more likely to be the source of twitching.
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #8 on: June 09, 2014, 01:14:57 AM »
As I said, twitching is a poor indicator of pathology, In the majority of cases, they are not felt (especially in the tongue). And in the majority of cases, this twitching is constant. There are exceptions to both of these.
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #9 on: June 09, 2014, 01:18:55 AM »
How long does it usually take for weakness to set in after twitches have started?
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #10 on: June 09, 2014, 01:25:48 AM »
Highly variably. 7 months is a fairly safe maximum estimate. Probably more like a month. 
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #11 on: June 09, 2014, 01:31:23 AM »
OK I've had the twitches for about a month. I can't wait 6 months. This really scares me to tears.

What studies point to fascis scoming before weakness?
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #12 on: June 09, 2014, 01:33:07 AM »
Can't recall the name. The '6%' study I believe mentioned it.

Scares me too, man. I'm at 2 months.

How old are you?
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #13 on: June 09, 2014, 01:33:50 AM »
24 years old.
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #14 on: June 09, 2014, 01:37:14 AM »
Does the study, or any other studies, confirm that fascis in ALS are supposed to be constant and not felt?
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