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Author Topic: My journey so far, and why I think I'm lost...  (Read 149 times)

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Offline Daxter

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My journey so far, and why I think I'm lost...
« on: May 30, 2014, 06:24:06 AM »
I mentioned in one of my other posts recently I was going to make an extensive post about everything that's happened to me so far. This is partly so I can call for help, partly so I have a reference for my specialist appointments, as I have an awful memory for details. Please bear with me, I may go off on a tangent here, this is all a very distressing subject for me.

***

Let me start by summing up the situation in one simple sentence. Whatever it is I'm suffering with - and at this point, it's probably an incurable illness - I can't accept I have it. It's awful, it's horrible, it's every day of my life and I wouldn't wish it on the worst person alive. If I were to accept having it, I would probably take my own life without hesitation as my quality of life right now is almost zero. In this regard, I'm forced to live in denial, desperately hoping my symptoms are all just caused by anxiety alone. If they are, they're curable, unlike say, LPR reflux which has no definitive cure. Those 3 little letters are the bane of my life. Even surgery and medications can't completely stop it, and all my efforts to halt it or reduce its severity have thus far failed. All my attempts to eat/drink/excercise/work/play/enjoy life like a normal person again also backfire, because I can't improve my symptoms, but I can most certainly make them much worse.

About 18 months ago now, I had signed up to a gym programme to improve my appearance. I was very conscious about my looks at the time, and felt the only way I'd even begin to find a relationship in this fickle world was to drop the whole "stickman" build. I also needed the strength to help with my chosen career path in animal care, where heavy-lifting is almost always a necessity. About a month or so into the membership, I started experiencing strange symptoms in my chest and arms. At first I put it down to an injury, but eventually I started getting shortness of breath, dizziness, heart palpitations and arm pain. Because heart disease has run in my family before, I couldn't ignore it, and found myself in A&E several times worried about my heart. I can't deny around this time I was experiencing a lot of stress relating to my job and discovering my sexuality as well, but whether these were the cause of all my problems to date, I cannot say, especially since a gym injury is much more likely isn't it? An Echo test ruled out any problems, and I thought I was going to be free of the symptoms forever.

In this last week, those same symptoms have returned not too long after binging on bad foods for my birthday and taking a PPI Nexium. I now believe all those symptoms are actually related to reflux, not the heart. This has been my train of thought all year round. All in all, these are the symptoms I have suffered over the last 17 months, at one point or another, mostly at the same time:

- Burning throat, even with alkaline water
- Post nasal drip/Throat clearing
- Chest/Back pain
- Arm pain
- Shortness of breath, especially after swallowing
- Thick, mucus-y saliva
- Palpitations
- Head pressure from lack of oxygen intake
- Ear pain/Saliva in ears
- Very tight throat except when eating
- Burping up liquids stuck in throat
- Gasping for air
- Some nausea (never actually sick)
- Some heartburn
- Headaches
- Insomnia episodes
- (Probably other symptoms I've forgotten to mention here)

Unfortunately, EVERY SINGLE ONE of these symptoms can be caused by reflux. Sometimes I get temporary relief in 'Googling' my symptoms, and finding someone saying "Yes, anxiety can cause that," but then I find something else (often on the same webpage) saying "Yes, reflux can cause that, not stress." Over the months I've tried everything on both sides of the coin to "cure" my anxiety and/or reflux. They include:

- CBT
- Hypnotherapy
- New hobbies/distractions
- OTC medicines like QuietLife, Rescue Remedy and Nasal Saline Sprays.
- 4 different antidepressants/antianxiety drugs
- 6 different reflux medications of varying strengths
- 3 different reflux diets
- Vitamin D3
- Alkaline water
- Lifestyle changes like raising the bed or watching the clock when I eat

All have failed or had minimal effect. The tests I've gone for include:

- ECG and Echocardiogram (to rule out heart problems)
- Endoscopy (clear)
- Barium swallow (clear, but these are expected to be clear in reflux these days)
- Rapid Spit Test (clear)
- ENT throat scopes (clear)
- Vitamin D3 blood test (optimum levels)
- Larynx pH probe (NOT CLEAR, but not conclusive evidence either)
- Impedance and Manometry (waiting for these to begin)

I can't deny the evidence suggesting I have reflux, and I can't deny my symptoms could be caused by stress too. This makes life very difficult for me. I want it to be stress, I really do. Then I can believe in the ability for me to cure it. However thanks to the pH probe not being negative, and everyone saying I probably do have reflux, and all my attempts to return to a normal, fun lifestyle backfiring, I firmly believe I have LPR, both as bad as it gets, and as incurable as it can be. It's tearing my family apart, it's cost me my dream job (I can't lift, bend or do strenuous exercise as my job demands) and other jobs too. It made me give up my religious beliefs - I refuse to believe in gods who would willing let people suffer like this. It's on my mind as soon as I wake up, but the symptoms don't begin until I do specific things like swallow, run or drink water. It's all too specific to be stress, surely?

This will have to do for now, I will update the post with my replies if there's anything specific missing. Please let me know what you think of my case. Do I have any chance at all of getting better? No more LPR, no more stress, no more restricted lifestyle? I beg and pray I can be 100% cured - I must admit I've got a plan to end my suffering if the final result says reflux... ;(

Thank you for taking the time to read this post, and I apologise for the sheer number of posts I've made all this time. I'm sure you all understand how difficult this is for someone afraid to be ill for the rest of their life.
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Offline leah2013

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Re: My journey so far, and why I think I'm lost...
« Reply #1 on: May 30, 2014, 10:44:47 AM »
i HAVE HAD GASTRITIS AND REFLUX FOR A WHILE... endoscopy showed gastritis. Took Omeprazole and felt better, went off of it... and I still get heartburn  a couple of times a week depending of what I eat. If I have coffee or iced tea, forget it I get heartburn.
Have you looked into your diet?
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Going thru a rough patch! Praying for peace of mind and happiness!!!!

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