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Author Topic: To ALS phobics -- this is a great article -I believe they even mention this site  (Read 708 times)

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Offline NytViolet

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This article was written by a journalist who went through a major HA attack worrying about ALS (something which I also freaked about when my twitches / BFS began 17 years ago).  In the article, the author mentions finding a large website for HA sufferers, many of which thought they had ALS because of fasciculations... I believe she's talking about us!  Check it out!  http://www.youandmemagazine.com/articles/living-in-fear

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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Offline Nk904

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I'm 5 months into nonstop calve twitching and oh man does it SUCK. Fast fire. Some are felt and some not. I have to move my legs 24/7. Sucks :(
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Offline NytViolet

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There are SO MANY benign causes of twitching that it's ridiculous. The problem is (as the author in the above article discovered) is that when you type "fasciculations / twitches" into Google, it can really scare the crap outta people. Unless there is VISIBLE wasting of the leg (and noticeable weakness where you are tripping, unable to walk properly, etc.) it's BFS (benign fasciculation syndrome).  A bad knee, a pinched nerve, a problem in the lower back, pinches disks, one leg slightly shorter than the other (very common), etc.  You may also have a form of restless leg syndrome, in which case, there are medications to help. Be Blessed :)
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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Offline Nk904

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I know. That's why no one would give me an EMG. Pass he clinical well and it's instantly bfs. Bfs is terrible it reminds you of what you COULD have.
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Offline NytViolet

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God bless this author (Jill C. Horton).  Here are a few simple tests that a neurologist would do to evaluate muscles and rule out ALS.  I can collaborate this, because (back in the day) I had a total of FIVE visits to 2 separate neurologists and these were tasks I was asked to do.   http://voices.*****/muscle-twitching-help-foot-drop-strength-test-for-1472503.html?cat=70
 
It's important to remember that if you were to do poorly one one or two of the tests, that there are MANY possible causes; nonetheless, if you're looking to rule out muscular dystrophy (als for example), it's VERY reassuring.   :bigsmile:
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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Offline amyjeannie

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Help a sister out, what exactly IS ALS? It makes me worried that I don't know since my hands and feet have been twitching like crazy!!! What if I have this ALS and I don't even know what it is?!?!!?
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Philippians 4:4-9

Offline Nk904

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You wouldn't have to find it. It would find you. Don't worry about it. How long have you been twitching?
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Offline Nk904

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I've yet to find a 22 year old with bfs/no emg diagnosis and the twitching I have. Scary.
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Offline amyjeannie

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It's normally at night time and it's my second toe from the left on my right food and my left hand occasionally. Also sometimes I get random twitches in my arm and legs muscles and stuff like that. But what is this ALS?!?! I'm freaking out!
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Philippians 4:4-9

Offline ShawnW

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I've yet to find a 22 year old with bfs/no emg diagnosis and the twitching I have. Scary.

Why is that scary?  I know many a young person with twitching, several here as a matter of fact.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Want to know how to address your anxiety?
http://www.anxietyzone.com/index.php/topic,93402.msg521266.html#msg521266