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Author Topic: I haven't been here a while, but my fear is back.  (Read 164 times)

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Offline MariaGrceva

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I haven't been here a while, but my fear is back.
« on: April 09, 2014, 04:40:33 PM »
I wasnt on this site for like two months maybe. I thought I felt good
And suddenly my fear is back.
This time I fear ALS ...again.

I don't expect any of you to be experts on the disease but im trying my best not to google.
I fear ALS because I feel some strange twitching/tingling/crawling sensation in my neck and around my collar bone.
I don't know what to make out of it.
I'm really scared to google because i'll panic more.
This feeling is like when your hand/leg is in a very bad position and it starts to have that pulling/tingling feeling.
I just don't want it to be ALS and I don't want my muscles to die, and eventually me.

My dad suggested that it might be because I told him I have a horrible sleeping position and constant neck pains. I sleep on my stomach with my head turned on one side, and like that for 8 hours without changing it. I also spend alot of time writing or looking at my phone, generally holding my head down as well as I have shoulder pain due to sitting a lot. I don't know if this could cause that strange feeling in the muscle. I'm so scared I think my anxiety thoughts of 'no way out' and 'you are going to die' are coming back...
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Offline ShawnW

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Re: I haven't been here a while, but my fear is back.
« Reply #1 on: April 09, 2014, 06:45:30 PM »
ALS isn't about "I feel", it's about "I can't".  Nothing about that says ALS.

Does sound like some localized nerve irritation.  Your dad might be right on the money.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Want to know how to address your anxiety?
http://www.anxietyzone.com/index.php/topic,93402.msg521266.html#msg521266

Offline Daisy55

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Re: I haven't been here a while, but my fear is back.
« Reply #2 on: April 09, 2014, 06:52:38 PM »
Does sound like nerve irritation.
I have spine issue so familiar with those.
And I understand the fears too..   
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You will know the truth, and the truth will set you free.  
John 8:32

Offline mollyfin

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Re: I haven't been here a while, but my fear is back.
« Reply #3 on: April 09, 2014, 07:47:48 PM »
Must be something in the air...I was away and now back as well.  I'm sorry you're doing poorly again.  HA is a bastard. 

And yes I do think it's your HA at work.  You sound like you have a pinched nerve, probably because of all the reasons you listed.  I'm not a doctor, but as someone who had ALS worries once and googled like crazy - what you're describing doesn't sound like ALS at all.
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Offline MariaGrceva

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Re: I haven't been here a while, but my fear is back.
« Reply #4 on: April 09, 2014, 08:19:31 PM »
I hope not. It will be terrible to have this disease.
i used to google ALS and as I read back then it starts in the limbs or the tongue, but not the neck. I hope.
Perhaps is just a nerve irritation. I have really bad neck habits, like I turn my neck to one side when I read like an owl.

I just hate when my HA will overwhelm me with these scary thoughts of how I'll die, and there is no way out, and to a point where I imagine myself in a hospital bed and dying. In those short moments of HA it all seems so real...and really really frightening. I feel like I need to break out of my own skin and run away from myself.
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Offline themegahypo

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Re: I haven't been here a while, but my fear is back.
« Reply #5 on: April 09, 2014, 08:27:34 PM »
Think of it this way my friend
You thougght you had ALS. And then you went 2 months without thinking you had ALS.
ALS is a progressive disease. There would not have been those 2 months if you actually had it. You feel progressively worse, there is no "temporarily feeling better" with this disease.
Hopefully this calms you down a bit.

And on top of that, none of your symptoms are consistent with it anyway :)
Feel better!
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