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Author Topic: Reasons Why You Don't Have MS or ALS.  (Read 528 times)

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Offline AP151

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Reasons Why You Don't Have MS or ALS.
« on: April 07, 2014, 06:13:38 PM »
I'd like to start a thread that compiles all the facts about these diseases that could potentially rule out the diseases we fear and also clear up as many of the common misconceptions as possible. Neurological disease is a VERY common fear on here and I think a thread like this could do some good.

Please share some info that you have such as things your Dr. told you or things you've read in your visits to google. Hopefully we'll clear some things up!
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Offline themegahypo

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Re: Reasons Why You Don't Have MS or ALS.
« Reply #1 on: April 07, 2014, 06:28:17 PM »
In terms of ALS, I've always been taught if you have "good days" and "bad days", it isn't ALS. ALS is progressive and only gets worse, not better. That's the fact that I'm clinging on in order to get through it (for example, today is a very good day for me, no twitching or pain= something that doesn't happen if you do have it).
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Offline Sunlover

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Re: Reasons Why You Don't Have MS or ALS.
« Reply #2 on: April 08, 2014, 06:15:34 AM »
twitching begins AFTER the muscle is already wasting away, not before (for ALS)
I think a lot fear MS and ALS because anxiety TOO is a neurological issue and will present with many of the same symptoms.
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Offline ShawnW

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Re: Reasons Why You Don't Have MS or ALS.
« Reply #3 on: April 08, 2014, 06:43:56 AM »
Most of the neurological symptoms that HA'rs get are very real...but they are not caused by horrific disease.  They are caused by a hyperexciteable nervous system.  Let me break this down for those worrying a bit about these diseases.

1) First and most important our minds work differently than the average public.  When we read about symptoms, our bodies mimic these symptoms.  When then take a stressed out nervous and skeletal system and dump adrenaline in it after reading about scary diseases.

2) Unchecked adrenaline does all sorts of crazy things to our bodies.  It speeds up heart rate, causes increase in reflux (sore throat, trouble swallowing), causes contraction of muscles nearly anywhere including the throat (globus symptoms, chest pain, cramps), hyperventilation (causing tingling, dizziness and numbness due to respiratory alkalosis), weakness, problems with speech, problems with memory, recall and mental processing functions.

3) Adrenaline unchecked, and unused begins a process of a new baseline in neurological hyper reactivity much like post traumatic stress disorder.  It makes one more susceptible to twitching and overuse syndromes.

4) So, now we google and self test.  Not only are we hyperaware of symptoms that our mind is in fact creating, but now we create real symptoms.  When you self test a stressed out system such as your muscles you create overuse syndromes...pain and muscle weakness.

5) Now you are not sleeping.  And the sleep you are not getting is not sleep that is conducive to repair...making both mental and physical symptoms worse.

6) By now you are not eating, sleeping and spending nearly every hour in worry.  Your body is in a state of catabolism...breaking down and can't repair itself with food or sleep.  You totally decompensate.

8) At this point you are convinced that you have a horrific disease and your demise is just around the corner...further fueling the cycle.  You plan out your funeral, go through speeches to your loved ones, think about who will speak at your funeral, how will you tell your kids and loved ones.

9) You finally go get checked out.  The specialist tells you everything is normal and you are just anxious.  Just anxious?!?!  You must be a quack.  So, you go to another specialist who runs 100,000 dollars worth of tests on you and says the same thing.  You finally calm down and over the course of the next couple months everything gets better. 

10) Then with a new trigger you pour all your mental and physical resources into a new disease process...wash, rinse, repeat.

If we ever want to get better we must approach this thing from a multi-facited approach.  First, most importantly and often the most ignored is the spiritual element.  I truly believe people are born we a need to connect with others and a Higher Power.  I'm not here to promote any specific religion or belief system but I am here to say you need to find that connection...get out of your own head with faith and with doing some good for others.  Part of the reason I post here is to help me with this aspect of my own recovery.  We must find that connection with other people and with a Higher Power of our own understanding.  Next, the physical...sleep, light exercise and eating right is HUGE.  And finally getting some professional help with both relaxation (yoga, meditation) and with tools for recovery such as cognitive behavioral therapy.

Do these things and you will get better.  Don't and we continue to suffer until one day stress finally does get the best of us.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

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