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Author Topic: Carcinoid tumor  (Read 785 times)

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Online Brick5711

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Carcinoid tumor
« on: March 18, 2014, 10:06:10 AM »
My doctor thought I had a lipoma at my colonoscopy. Turns out it is a carcinoid tumor. I am freaking out. Hs anyone had one of these.
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Offline potternut

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Re: Carcinoid tumor
« Reply #1 on: March 18, 2014, 01:17:16 PM »
Hi Brick,

I have no experience with carcinoid tumors but wanted to jump in with some support for you at this scary time.  Put your trust in your doctor and stay positive...you have many supports and people who care.

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Online Brick5711

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Re: Carcinoid tumor
« Reply #2 on: March 18, 2014, 01:36:16 PM »
Thanks potternut. My doc actually said if it was him or his family he would not be concerned. I have to have an endoscopit ultrasound and hopefully they can remove it all then. If not, then I will have to have surgery. It does seem to be a slow growing cancer that is fully cureable if it has not metastasized, which most don't.
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Offline confunded

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Re: Carcinoid tumor
« Reply #3 on: March 19, 2014, 03:36:15 PM »
I am very sad to hear this. However, generally colon cancer is really slow moving and does not spread quickly. In fact my grandmother had it for years before she was diagnosed and she was fairly advanced with it when it was discovered. She lived for 2 years after that without surgery (she was too old).

I hope that they are able to get rid of it the first try so you can continue enjoying life. My heart goes out to you and I am here for you if you need someone to chat with!
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Online Brick5711

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Re: Carcinoid tumor
« Reply #4 on: March 19, 2014, 04:42:41 PM »
Thank you confunded. All the encouragement is much appreciated. The rectum is the best place to have one if you have one. Usually they dont spread or cause hormones. But i am young and also had a precancerous polyp removed. So i am a little concerned at how i have an old person colon at 23. I hope they can remove it first try to. I am scared for my little boy to be without his mama.
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Offline confunded

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Re: Carcinoid tumor
« Reply #5 on: March 19, 2014, 07:06:34 PM »
As a mom, I can totally relate to that fear. The sadness of that thought touches my heart deeply. I often think of creating a box of photos and letters for my daughter in case something ever happens to me- or videos even- so she has something to look at one day when I am gone. I've studied grief and bereavement and it helps people come to terms with  our mortality and leave a legacy behind. As a assignment I had to make a life box with meaningful things inside, and I recommend this to people a lot because it's a nice way to say "I love you". Might be a nice project for you to work on with your little one together- so you can look at photos of you both as young people when you are old and grey :)

I hope this didn't scare you, but it sounds like your doctor is fairly confident. And a polyp found makes me think it's been contained :) do you have a good support system?
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Online Brick5711

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Re: Carcinoid tumor
« Reply #6 on: March 19, 2014, 08:38:24 PM »
This does sound like an awesome idea. Fortunately, I get to stay at home with him so we have many opportunities together. I do have a great support system. I have many family, friends, and my church praying, sending warm wishes, calling, quite often. My doctor is so wonderful too. I try to tell myself that this is a cancer that is not a cancer. Its so slow growing and wasn't causing any symptoms. It was just found incidentally.
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Offline CrazyQuacker75

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Re: Carcinoid tumor
« Reply #7 on: March 19, 2014, 08:59:18 PM »
Good luck Brick, It seems like they found it early due to a mix of your persistence and caring doctors, Hope you have a speedy recovery  :action-smiley-065:
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Online Brick5711

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Re: Carcinoid tumor
« Reply #8 on: March 20, 2014, 04:10:02 AM »
Crazy, I surely hope it is early. My doctor seems to think it is. But i always surprise him. In a bad way. Ha.
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Online Brick5711

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Re: Carcinoid tumor
« Reply #9 on: March 20, 2014, 07:34:51 PM »
My surgery is scheduled for May 1. That seems so far away!
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Offline marc

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Re: Carcinoid tumor
« Reply #10 on: March 20, 2014, 09:57:13 PM »
I have known 2 people with carcinoid tumors and they are extremely rare. One person had one on his lung and the
other had one on her small intestine. You are right as they are extremely slow growing and are curable is found early.
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Offline marc

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Re: Carcinoid tumor
« Reply #11 on: March 20, 2014, 09:57:58 PM »
I forgot to wish you the best of luck and a speedy recovery.
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If you're going through hell, keep going.
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Online Brick5711

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Re: Carcinoid tumor
« Reply #12 on: March 21, 2014, 07:31:44 AM »
Thanks Marc. My doc said there was no rush on the procedure. Ugh I am just so nervous.
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Offline marc

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Re: Carcinoid tumor
« Reply #13 on: March 21, 2014, 08:34:25 AM »
Anyone would be nervous, so I would not feel any anxiety over those feelings.
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If you're going through hell, keep going.
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Offline Hypo84

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Re: Carcinoid tumor
« Reply #14 on: March 26, 2014, 01:01:39 PM »
I've just seen the topic.

So sorry about your condition Brick, wish you the best of luck, and hope everything will be fine after the surgery!
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