Chat Now!   Member Gallery    Member Articles    Games   Member Groups   Member Blogs   Health News    Bored?

Author Topic: Tongue twitch appointment  (Read 199 times)

0 Members and 1 Guest are viewing this topic.

Offline Reallyworried93

  • Full Member
  • ***
  • Posts: 104
  • Rec's: 1
  • Gender: Female
  • Personal text
    • Poke This Member
Tongue twitch appointment
« on: March 05, 2014, 11:52:38 AM »
Okay so I have a really bad fear of bulbar als!
I just had my doctors appointment with an ent guy about the twitches in my tongue.
He tells me that he has seen a few als patients and got me to stick my tongue out and said that the twitches were not anything like als fasciculations. He didn't really look at my tongue at rest.
He sort of laughed off my worries which was slightly reassuring by saying I shouldn't be worrying about this disease till I'm like 60 even then it's rare.
He even went as far as to say I 100% don't have it. It felt like he rushed me out of there slightly and said its anxiety related.
My question is what should I do now? Take it as good news and forget about it or ask for second opponion? He said it doesn't warrant tests and my tongue looks healthy? X
Bookmark and Share

Offline marc

  • Community Greeter
  • Hero Member
  • *****
  • Posts: 7533
  • Country: us
  • Rec's: 64
  • Gender: Male
  • Mood: Confused
    Confused
    • Poke This Member
Re: Tongue twitch appointment
« Reply #1 on: March 05, 2014, 11:57:43 AM »
I would take it as good news and move forward the best you can.
Bookmark and Share
If you're going through hell, keep going.
Never, Never, Never, give up.

Offline Sunlover

  • Hero Member
  • *****
  • Posts: 1271
  • Country: us
  • Rec's: 16
  • Gender: Female
  • Mood: Relaxed
    Relaxed
    • Poke This Member
Re: Tongue twitch appointment
« Reply #2 on: March 05, 2014, 12:09:55 PM »
Doctors KNOW how litigious this society is and he'd NEVER take a chance saying something like that!   If he had one iota of doubt he'd send you for a test.
Bookmark and Share

Offline Reallyworried93

  • Full Member
  • ***
  • Posts: 104
  • Rec's: 1
  • Gender: Female
  • Personal text
    • Poke This Member
Re: Tongue twitch appointment
« Reply #3 on: March 05, 2014, 04:04:41 PM »
He didn't seem to look properly but I suppose he knows what he's looking for.
I just don't want real things to be palmed off as anxiety.
But like you said, taking it as good news.
Time to try and stop worrying about it and stop the self checking!!
He said that me thinking I have slurred speech is because I'm concentrating on normal body functions xx
Bookmark and Share

Offline Scaredofsymptoms

  • Jr. Member
  • **
  • Posts: 78
  • Rec's: 1
  • Gender: Female
  • Personal text
    • Poke This Member
Re: Tongue twitch appointment
« Reply #4 on: March 05, 2014, 04:50:28 PM »
My tongue has felt goofy lately too and I have been diagnosed with TMJ.
Its throwing my whole mouth/throat/neck out of whack.
Have any jaw or ear pain?

Trust me when I say that everyone's tongue twitches!
If you can move your tongue up and down and from side to side - you have more control of it then most people with bulbar als.
You would lose the ability to control your tongue long before any twitching.
Bookmark and Share

Offline Reallyworried93

  • Full Member
  • ***
  • Posts: 104
  • Rec's: 1
  • Gender: Female
  • Personal text
    • Poke This Member
Re: Tongue twitch appointment
« Reply #5 on: March 05, 2014, 05:02:35 PM »
That's what the doctor said to me, he said twitching in als patients is very different to my twitching, he said its healthy for the tongue to twitch a bit.
He also said I'm far to young to worry about it (not like statistics help ease my mind) I was scared when I read online that twitching on the tongue when it's at rest is very rarely benign! But my doc reassured me that's not the case.
A lot of my tongue problems are that it feels I'm focusing on everything my tongue used to do naturally, it's a odd feeling!
Nope no pain apart from when i do these tongue tests all the time
My ears are playing up but I think that's possibly due to a cold I have at the mo? Not to sure
Xx
Bookmark and Share

Tags: ALS bulbar tongue twitch 
 

Related Topics

  Subject / Started by Replies Last post
4 Replies
5681 Views
Last post June 18, 2009, 04:03:43 PM
by looking4peace
0 Replies
1892 Views
Last post January 09, 2011, 04:59:45 PM
by sadiesmummy
2 Replies
2164 Views
Last post January 10, 2011, 06:45:39 AM
by sadiesmummy
7 Replies
237 Views
Last post March 04, 2014, 02:25:07 PM
by Reallyworried93
2 Replies
158 Views
Last post March 09, 2014, 10:59:59 PM
by gatorfan04

anything