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Author Topic: So scared.... MS please help  (Read 267 times)

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Offline Kyhu3

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So scared.... MS please help
« on: February 19, 2014, 08:34:25 AM »
My anxiety is at an all time high. I have had neurological symptoms for over 2 years now.  I have visited a neurologist many times and he has ordered 2 mri's, ct scan, emg and nerve conduction test. All results so far have been negative. However I continue to have weird sensations along the top right side if my head and intermittent weakness into my right hand and right leg. I am so very scared as I has an appointment with another neurologist tomorrow as my current one is leaving the area. 

I am afraid of what is to come. I am afraid he is going to diagnose me with ms and then I will loose my job etc. I am a 29 year old female and don't know where to turn as I am afraid of this appointment tomorrow.
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Offline greend

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Re: So scared.... MS please help
« Reply #1 on: February 19, 2014, 09:10:17 AM »
Try not to get ahead of yourself.  Go see your neurologist and let us know how it goes, but if you've been told by other neurologists that you are fine, then I wouldn't worry.  MRI's show a lot.

I can totally relate to your concern, as I've had neurological symptoms of 3 years, and I had the same symptoms twice before, but they ended up going away.  It is really scary; I know.  I've had a surging feeling in my chest and a prickly feeling in the skin of my legs.  It's horrible.  After having many tests that have come back normal it kind of leaves you wondering what to do next.  They told me I don't have MS, so I do believe them.

Are you doing anything for the anxiety about this?  Reading self help books, exercise and yoga are helpful.

Know you aren't alone and let us know how it goes.
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Offline jessica0113

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Re: So scared.... MS please help
« Reply #2 on: February 19, 2014, 10:30:31 AM »
I have weird symptoms like that too- including a headache top right as well.  Could the headaches be hormonal?  I get those when I ovulate or right before my cycle would start.  I am getting them quite regularly now, from breastfeeding.  I suspect it has something to do with my pituitary gland/hormone secretion.

I've also had an MRI recently and NO MS.  MRI was ordered because I also had vision loss along with crazy tingles on my hands and feed.  With all the testing you've had done, I would not be worried at all. 
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Offline Kyhu3

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Re: So scared.... MS please help
« Reply #3 on: February 19, 2014, 07:34:07 PM »
Thanks all for your responses. I am also having arm and leg symptoms with this which scares the crap out of me. I am headed to the doctors tomorrow (MS specialist) and I am afraid to come up with life changing news.

ANY and ALL other thoughts are appreciated.
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Offline Hypo84

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Re: So scared.... MS please help
« Reply #4 on: February 19, 2014, 07:40:46 PM »
You had 2 MRIs, CT and EMG clean? Why are you so afraid then?
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Offline Kyhu3

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Re: So scared.... MS please help
« Reply #5 on: February 19, 2014, 09:46:30 PM »
Scared. That something was missed. Also I still have the symptoms.  What else could it be
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Offline michelle360

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Re: So scared.... MS please help
« Reply #6 on: February 19, 2014, 10:39:56 PM »
I bet you'll be fine. I don't know what else it could be but I would put my money on anxiety. Have you tried addressing the possibility?
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Offline Sunlover

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Re: So scared.... MS please help
« Reply #7 on: February 20, 2014, 09:42:40 AM »
Scared. That something was missed. Also I still have the symptoms.  What else could it be

An impinged nerve somewhere in your spine? I doubt an MRI could pick that up (I really don't know much about MRI's, etc, so I don't know what they can/can't show) - but OBVIOUSLY it can show MS because that's the tests they give people.
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Offline MissSteele

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Re: So scared.... MS please help
« Reply #8 on: February 20, 2014, 11:54:11 AM »
I have been where you are. I was convinced I had MS and the doctors were missing something. I had all the symptoms, the tingling, the numbness, the tremors/twitches, you name it. Doctors told me I did not have it, but rather I had severe anxiety that was causing my body to go haywire. The physical symptoms of anxiety can often mimic MS. They really can, anyone on this forum will tell you that. And it can last for a LONG time, especially if you keep perpetuating the cycle of anxiety by reading up on diseases and feeding into your health anxiety. That's the problem right there. The doctors who are confirming you DO NOT have MS won't help to ease your fears because they aren't treating your underlying cause- anxiety. They can tell you that you do not have MS till they are blue in the face and it will not help you because your anxiety will always suppress your reasoning. That is what health anxiety does. It is beyond reasoning. Therefore, it is best to treat your anxiety, and your "MS symptoms" will begin to fade. Mine did, and so did it for several other anxiety suffers. Therapy and medication will work wonders, I could not believe what a difference it made! I have random twitching still, but the doc said it was BFS, or benign fasciculation syndrome, brought on by...wait for it...SEVERE ANXIETY! It will not hurt me, tons of people have it. Your muscles just twitch randomly and it is for literally no reason.

Worst case scenario, you will receive an MS diagnosis. But, YOU WON'T receive one because you don't have it. For the sake of this post, let's say you do. MS is a very livable disease. Medical technology has come a long way and many people live normal lives with MS. My grandpa had it and he lived to be well into his 80's. He died form something completely unrelated. I met several people from his MS support group, who were older, and they were ALL FINE. You couldn't even tell they had MS. So, my point is- YOU DON'T HAVE MS. But, if you did, you would still be fine. I know you already know this, but living in a state of constant anxiety and worry is no way to live at all. Medication, therapy, a number of things can help you like it helped me. There are people who actually have MS that are living full, happy lives. Then, there are those who do not have MS who are miserable because they are obsessing over a disease they more than likely do not have.
You can get through this. YOU ARE FINE.  :happy0151:
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