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Author Topic: ALS - can't function with the fear  (Read 716 times)

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Offline Hypo84

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Re: ALS - can't function with the fear
« Reply #10 on: February 09, 2014, 08:28:02 PM »
And what symptoms on your list started over 6 months ago?
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Offline Scaredofsymptoms

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Re: ALS - can't function with the fear
« Reply #11 on: February 09, 2014, 08:28:42 PM »
You really should see a neurologist. It's less about confirming a diagnosis and more about helping you feel better.
There could be many reasons for your symptoms. Have other people confirmed you are slurring your words?
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Offline anagargano

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Re: ALS - can't function with the fear
« Reply #12 on: February 09, 2014, 08:30:47 PM »
Im sorry if that upset you .....I just meant with my own worries about ALS its probably almost like googling which I am very much trying not to do......more about me than you...
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Offline etethorpe

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Re: ALS - can't function with the fear
« Reply #13 on: February 09, 2014, 09:17:23 PM »
And what symptoms on your list started over 6 months ago?
I was probably aware of most of them 6 months or more except for the choking feeling and the toe problems.  I am more aware of them lately probably because they are getting worse.   In fact I posted a few months about my ALS fears maybe 6 months ago but then for some reason I stopped worrying about it.  Now the fear is back worse than ever.  I think it is the toe thing that has me more afraid than anything else and this is what got me started again. 
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Offline Hypo84

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Re: ALS - can't function with the fear
« Reply #14 on: February 10, 2014, 05:46:49 AM »
You still didn't say how old are you.

Anyway, it doesn't sound at all like ALS. You should go to neurologist just to check if it's not something else. In my opinion it is mostly anxiety with something physical like pinched nerve which caused toe issues.
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Offline etethorpe

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Re: ALS - can't function with the fear
« Reply #15 on: February 10, 2014, 09:21:54 AM »
You still didn't say how old are you.

Anyway, it doesn't sound at all like ALS. You should go to neurologist just to check if it's not something else. In my opinion it is mostly anxiety with something physical like pinched nerve which caused toe issues.
Let's just say I'm in the age bracket where ALS hits and leave it at that.  :spineyes:
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Offline etethorpe

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Re: ALS - can't function with the fear
« Reply #16 on: February 10, 2014, 09:29:47 AM »
I found my post from last May where I first wrote of my ALS fears and these are the symptoms I wrote of back then -

 - Over the last several months my handwriting has deteriorated rapidly because I can barely hold a pencil
 - Something is wrong with the way I chew
 - Major difficulty swallowing, it's weird, I kind of have to swallow in "two steps," hard to explain
 - Choking because I can't swallow and choking even when I am not swallowing
 - I cannot project my voice, my job entails a lot of phone work, over and over people tell me they can't hear me, ditto for general conversation
 - Difficulty talking, slurring and otherwise not making much sense, words come out sounding so wrong, extremely self-consious when talking because of this
 - Right arm has definitely become weaker, can no longer lift things with it as I used to be able to
 - Both arms will suddenly seem to "collapse"
 - Tingling in hands (I don't know if this is a symptom or not but it's there)
 - General hand weakness
 -  Fatigue
 - In general, much harder to move around and get things done, everything seems to take so much longer than it used to, everything hurts, aches


So all in all, things haven't changed all that much over the last 9 months.  If I do in fact have ALS do you think I would be much worse by now?  We had a foot of snow last week and I was able to shovel my 60 foot driveway by myself (and I'm just a 110 lb female), including all that hard stuff the snow plow deposits at the end of the driveway  >:( .  It wasn't the must fun I've had but I did it without collapsing.  Do you think someone in the early stages of ALS would be able to do this?
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Offline Hypo84

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Re: ALS - can't function with the fear
« Reply #17 on: February 10, 2014, 10:00:15 AM »
How the heck can you shovel snow and not be able to hold pencil ?!
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Offline etethorpe

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Re: ALS - can't function with the fear
« Reply #18 on: February 10, 2014, 10:08:16 AM »
It has something to do with fine finger dexterity.  My fingers feel very stiff.  One uses different muscles for holding a pencil than they do for shoveling snow.
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Offline Hypo84

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Re: ALS - can't function with the fear
« Reply #19 on: February 10, 2014, 10:13:08 AM »
It is just impossible to have ALS for a year without getting significantly worse.

As I said before, go to doctor to get yourself checked and not because of ALS. It is extremely unlikely that you have that...
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