Thank you all for your posts.
Its been 6 months of agony, beginning with pressure headaches like my head was a balloon heralded by earaches and jaw aches, rushes of adrenaline from my chest to head while I was sleeping, and now 8 week straight of back of head headaches burning neck and traps that runs down my back. Ive been hospitalized twice, had 3 brain MRI's, neck MRI (which does show lots of neck issues), lumbar puncture, etc. I even paid for a full body cat scan for myself, thats how terrible I feel. Along the way, every time a diagnosis does not return, I search for a new disease. And they have all been big and terrible and fatal. I am neglecting my family and kids. My four year old came to me and said "Mommy, we can buy you mommy calm down cream that I saw on tv" HOw sad is that. But i am in real pain and no one can figure out why! I don't sleep, I don't eat, I only research
SO the neuro says to me today after the exam that he saw no signs of ALS. Of course I should have been thrilled but was unhappy that he did not want to give me an EMG to confirm. He was a little pompous and fed up with me (I have been seeing him since this all began and I think now he thinks cuckoo bird). So now I feel like he didn't really take my complaints seriously! Then I said, "well maybe its too early to diagnose" and he said - "I dont think so.." LIke he wanted to kick me out. Here is where I struggle- do I believe him? Any rational person would have been doing cartwheels to get that professional opinion like that! He's not the most personable, but he is very very thorough and well respected so .... do I get over this?
Hey, interesting comment about the SSRI. My twitches started a week after starting a benzo. Wondering if connected. I thought they were supposed to suppress that stuff, but maybe not....