Do you mind me asking what you've done to get better? Is it completely gone or does it just flare at times?
After a number of false starts and wrong directions regarding diagnosis of what I had, I finally had to reach the conclusion that I had Fibro and Myofascial pain.
I had to basically do a number of things:
1. Accept that the cause of my pain was not due to anything organically wrong with me.
2. Understand that I had an anxiety illness or "nervous" illness.
3. Work to understand the anxiety and overcome the fear of my symptoms.
Sounds simple, no? It was and it wasn't. In truth, it was the hardest thing I ever had to do in my life.
Steps 1 and 2 are easy to intellectually understand and to accept, but number 3 in all its aspects was the
hard one. By the time I had to ultimately reach the conclusion that my bodily pain was due to anxiety, I had developed a severe Kinsephobia, or a fear of movement, because every movement hurt. And every movement I would run over in my head before doing it, and therefore the anticipated fear ramped up the pain. It hurt me to stand, to sit, to walk, to do anything. I got relief while sleeping, only to wake up and start the entire cycle of pain all over again. I was mentally disabled, along with physically disabled. My life had retreated to basically nothing. I still worked, as I was self-employed, but it was torture mentally and physically to do so.
Two things helped me. I ran into a friend I hadn't seen in thirty years, and she was suffering too. We had our own support meetings. I had gone years without mentioning the pain to anybody prior to this. I just live with it, and for me there were few distractions, because I worked alone and I lived alone. Having her to discuss this with helped both of us figure out methods of coping and ways to get to feel better. We both recognized psychological flaws in ourselves. It was humbling.
Another thing that helped me was immersing myself in the work of Abraham Low MD. He was a psychiatrist who practiced in the mid-20Century. He wrote a number of books, which I bought and read and re-read and re-read. Low's belief was that no matter how "helpless" the case there were none that were "hopeless", and he introduced what was probably the first Cognitive Behavioral Therapy and peer support through Recovery International. Low didn't believe ala Freud that you problems were due to deep seated childhood trauma and that only years of psycho-analysis could cure you; now did he believe that there was a chemical change in the brain. He believed that you had to change your temperament, your temper and your thoughts, and that it was not an overnight cure. But once you retrained your brain and were brave enough to face your most powerful symptoms, which were "distressing but not dangerous" you would begin to heal. Recovery International exists today, and you can attend in person or online. A word of warning, though. The things discussed in Recovery sessions are often trivial, and I found myself saying over and over, that this "small stuff" has nothing to do with me; that I had Big Anxiety. Well, through more reading and letting Dr. Low's ideas sink in, I found out very well that the trivial things of everyday and my reaction to them do indeed effect me and have always effected me, and were a big part of the reason I was suffering from Big Anxiety.
I did things in part-acts, conquered my fear of strange sensations and pain in part-acts, acknowledged that success, and went on, and went on, and went on, until one day my body's nervousness had returned to homeostasis. The best thing is, I learned how to think different about annoyances and things that could send me into anxiety again.
It was not a short road, but it was a road I had to take, and now it's a road I was glad I had to take.