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Author Topic: Ladies - Cyst Question - SCARED!  (Read 441 times)

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Offline seychelles311

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Ladies - Cyst Question - SCARED!
« on: December 02, 2013, 07:23:11 PM »
So I've posted about this previously, but I'm having some serious anxiety and have no women in my life to talk to, so I'm just looking for some advice or reassurance from some of the ladies on here.

I have been experiencing pain in my pelvis, hip, and lower back for almost 2 months. I also had a week's worth of weird, heavy, clear discharge, and one day of discharge with brown blood in it. The pain is way worse when I'm in my period. I had an ultrasound and they said they thought I had a duplicate cervix / uterus, and said my ovaries looked fine (big relief to my because my biggest fear is OvCa). They sent me for a follow up MRI with contrast, and I got my results today.

The results said my uterus, cervix, and left ovary are perfectly fine. But I'm freaking out because it says my right ovary has a cyst measuring 3.2 x 2.8 cm with "internal dependent complexity"!!! I have no idea what this means, and my doctor is on vacation all week for the holiday so I can't discuss this with her until she gets back! I'm terrified and I don't know how I'm going to make it waiting for her to get back! I read some posts on here that said they only worry if the cysts are complex, and mine is, so now I'm so scared that it's ovarian cancer!

The recommendation from the radiologist is to have a follow up ultrasound after 2 more menstrual cycles, which I'm going to do, but I'm concerned they won't do it right since they didn't see the cyst on the ultrasound the first time. I'm so scared that it's cancer, and that I'll go for a follow up and they won't see that the tumor has grown or something!

Does anyone on here have any experience with "complex" ovarian cysts? Is 3.2 x 2.8 cm big for a complex cyst? Will I be ok waiting for another 2 menstrual cycles (2 more months)? I'm afraid if it is cancer and we just watch and wait that it will grow the whole time I'm waiting and spread! :(
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Offline Liasw

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Re: Ladies - Cyst Question - SCARED!
« Reply #1 on: December 02, 2013, 08:33:25 PM »
Hi,
I had a hard time reading your post because it has bought back my anxiety about OvCa (Im currently more focused on a possible melanoma).But I wanted to say Im assuming you had the blood test for CA-125? If so and it was negative, focus on that as a positive. Ive had that tested twice now and both times was fine, and had an internal ultrasound on my ovaries but now am freaking out that they have missed something :(
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Offline JenBNimble

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Re: Ladies - Cyst Question - SCARED!
« Reply #2 on: December 02, 2013, 09:46:22 PM »
I haven't dealt with this personally, but I do know that the vast majority of ovarian cysts (even complex ones) are benign. Cysts that suggest cancer tend to have certain characteristics on imaging, and if your cyst had any of these I'm guessing the recommendation would have been to have it removed. It sounds like the radiologist thinks it's benign. You will be fine waiting another two months.
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Offline MmeMulot

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Re: Ladies - Cyst Question - SCARED!
« Reply #3 on: December 03, 2013, 12:36:58 AM »
I've posted this before, but it seems like a good time to repeat it!

Let me tell you my ovarian-cancer-scare story. (It ends fine, don't worry!) About seven years ago, I started having terrible crampy pain in the lower abdomen and lower back. I was convinced I had ovarian cancer, since I also had the bloating, fatigue, etc. (Of course, I also have ulcerative colitis and IBS, so those symptoms are totally part of those, but of course it had to be the ovarian cancer.) I went to my GYN, and she did an ultrasound and found a spot/cyst/something in my right ovary. My GYN was pretty sure it was just blood from a burst cyst or complicated cyst, but of course I was FREAKED OUT. Totally convinced I had cancer. She wanted to wait a month and do another ultrasound to see if it went away/reabsorbed. I agreed, but since I was so freaked out, she arranged for me to go see an oncology surgeon in the meantime for a second opinion. He didn't think it was anything, either, but it didn't really reassure me.

The "spot" was still there on the second ultrasound. My GYN was still totally sure it was nothing, but I couldn't imagine waiting for another couple months for another ultrasound like she suggested. I KNEW it was ovarian cancer. Because I was so anxious and the stress was keeping me from sleeping well and hurting my health, she agreed to do a biopsy, but let me know that because of where the "spot" was inside, she would likely have to take out the entire ovary, because it wasn't where she could just take a piece to biopsy.

I had the biopsy, and it was exactly what my doctor was sure it was: just leftover scar tissue from a burst ovarian cyst. And as she predicted, she had to take out the entire ovary. As a result, my metabolism pretty much switched off, and I've gained 50 pounds since then, that I can't lose, no matter what I do. Knowing now what I do, I would have listened to my doctor and not gotten the biopsy so soon. But, of course, when we're in the midst of our HA, we're not thinking terribly rationally, are we? I would have done ANYTHING to know for sure I didn't have ovarian cancer. I would've taken the 50-pound tradeoff in a heartbeat. But now? I utterly regret it.

My cyst/spot was complicated, but my doctor was sure it wasn't cancer, and she was right.
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Offline kaycass14

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Re: Ladies - Cyst Question - SCARED!
« Reply #4 on: December 03, 2013, 04:00:50 AM »
I get ovarian cysts lie a teenager gets pimples. They are Aweful and they hurt something wonderful and yes- you get weird discharge as they- umm- burst. I've nene getting them since I was 16 :) keep calm and relax! Most cysts go away, some just stay. They only ask you back to check if it's gotten bigger as when they burst, it's not pleasant. All that aside- I'm sure you are fine. I've made it 6 years no problems! <3
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Offline dancer67

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Re: Ladies - Cyst Question - SCARED!
« Reply #5 on: December 03, 2013, 08:44:19 AM »
Don't let the word "complex" scare you. "Simple" cysts are fluid filled. Complex cysts can be Hemorrhagic. (Filled with blood and pus). My 15 yo daughter was getting these kinds of cysts every month, and then we put her on BC pills. The size of your cyst is not large. They do not do anything about them unless they are 5cm and larger.

If it was a solid "mass", somebody would have contacted you by now with a concern.

You just have to wait a few cycles for it to go away. These cysts can wreak havoc with your mentrual periods because they are sitting right on your ovary.

I also had a complex cyst. Hemorrhagic, and it burst. It was so painful. And my periods were all messed up.

Cysts are very, very common and most people do not even know they have them unless they become painful.

This will most likely go away on its own within a few cycles.
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Offline seychelles311

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Re: Ladies - Cyst Question - SCARED!
« Reply #6 on: December 03, 2013, 03:41:57 PM »
Thank you JenBNimble, it's good to know that even the complex ones are mostly benign. My HA still makes me believe the worst, but it helps to know this.

Liasw, I did not have a CA-125 test, at least not yet. These results just came back yesterday, and I haven't even had a follow up with my doctor in person yet. The only thing the radiologist suggested was to have a follow up ultrasound after 1 or 2 menstrual cycles. Now I'm thinking I should ask for one of these tests though.

Thank you MmeMulot for telling me your story. I will keep it in mind as I work with my doctors on this. I have severe HA, so my first instinct would be to go too far too soon and have surgery immediately to take it out, but I don't want to lose my ovaries if I don't have to.

kaycass14, do you know if the cysts you have been getting are complex or simple? I've heard the simple ones are nothing to worry about, but the complex ones can be serious.

dancer67, thank you for telling me a little more about what "complex" means. This truly was the scariest part of my diagnosis to me. I appreciate you sharing that you and your daughter have both experienced these and do not have OvCa. It's also a relief to know that my cyst is below 5cm so it's not big enough to be a huge concern. 3.2 x 2.8 cm sounded big to me, but I guess it's not as big as I thought compared to other people's cysts.

I think the part that's scaring me the most about all of this is that I had an ultrasound and the radiologist said my ovaries were "healthy and clear" but then my MRI only ONE WEEK later showed this cyst. Does that mean that it just grew out of nowhere in a week's time? I keep picturing it growing in there every day that I don't do something about it. How could something show up that fast?

Has anyone else had a cyst that was missed on an ultrasound and only showed up on a different test? I can't get in to see my OB/GYN until January 23, and I'm having trouble trusting my regular doctor and radiologist on this because they're not specialists in gynecology. :(
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Offline dancer67

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Re: Ladies - Cyst Question - SCARED!
« Reply #7 on: December 04, 2013, 07:50:10 AM »
Yes. They can grow that fast. When your egg drops and the sac doesn't close right away, it then starts filling up with blood/pus. You may have had the ultrasound, and they just saw the cyst that every woman gets every month. Meaning you are going to ovulate. Or you already did. A simple cyst. So they don't say anything about those. That is normal.

My daughters was picked up on a CT Scan.

I had one and didn't even know it until it burst. I am hoping that never happens again.

But yes, within a week it can turn into a complex cyst. Actually, the size of yours was about the same size as my daughters. 3cm seems to be the common size of these. Can they get bigger? Yes. But most of the time they go away within a few cycles.

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Offline seychelles311

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Re: Ladies - Cyst Question - SCARED!
« Reply #8 on: December 04, 2013, 12:06:09 PM »
I had no idea that they could grow that fast! I was actually just told this by someone else this morning as well. I was seriously convinced that since it appeared so fast that it must be something sinister!

I actually was supposed to be ovulating right around when the ultrasound happened, and the MRI was after I should have been finished ovulating.

It's good to know that 3 cm is a common size and not huge. I just finished a cycle, so I'm scheduling an ultrasound for right after my next one, in about a month. Hopefully it will have gone down or disappeared completely by then. I'm going to try my best to stay positive and stay away from Google.
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