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Author Topic: Pain in back, left shoulder blade. Real pain....need opinions...  (Read 156032 times)

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Offline Missjay1977

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Ok.  So I started developing this pain on my left side shoulder blade, middle of back area.  It has gotten worse as the day goes on.  Of course I freaked out, thought I could be having a heart attack, thought my left arm was starting to hurt, then I thought I could have pnuemonia, then I thought maybe my lung collapsed.  I freaked out of couse, and was about to have my husband take me to urgent care.  I called my best friend and she talked me down, I took a xanax, and started to relax.  I didn't end up going to the urgent care and I am really proud of myself for that.  But here I am with this back pain, which is real, and I have no idea what it could be.  I am trying not to think the worst.  Trying really really hard!!!!!   It hurts when I take a deep breath in and when I move around.  If I sit really still it doesn't hurt.  Does anyone have any clue as to what this could be???  I had been posting on here before of this mystery pain (kayteecatt knows what I'm talking about) and I wonder if this could be another part of costochondritis?  I have been dx'd with fibromyalgia by a rheumatologist but I have not been dx'd with costochondritis.  I think that I have it though, I know the value of me thinking that is nill because I am a hypochondriac but I really think I have it.  What do you all think?
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Offline Missjay1977

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Re: Pain in back, left shoulder blade. Real pain....need opinions...
« Reply #1 on: October 19, 2008, 10:21:06 PM »
I forgot to mention, my mom thinks the pain is referred pain from my gall bladder.  My doc had advised me a few weeks ago that he I need to have a hida scan because he thinks it is going bad, I havnt had it yet but I will, just dont have time right now to do it.
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Offline Kayteecatt

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Re: Pain in back, left shoulder blade. Real pain....need opinions...
« Reply #2 on: October 19, 2008, 11:12:32 PM »
I had one of those HIDA scans done a couple of months ago....they take forever but are entirely painless.  Mine came back completely normal.  They inject some kind of radioactive dye and then take pictures of your gallbladder every 3 minutes or so for 2 hours...talk about being bored out of your mind!!

I just read that web page about the costo again, and I think you and I both have the same thing.  My mom's had fibro for years, and she has commented lately that my complaints sound a lot like hers in the begining, she wants me to go see her specialist to be evaluated.  The web page talks about the link between fibro and costo...how they kind of go hand in hand.  But once again, getting the diagnosis of fibro still leaves so much to the imagination because there's no set test for it either.  You'll always be left wondering if there's something they haven't found.

My mom has a big thick book that lists all of the symptoms and common complaints of people with fibro and I'll have to admit that I have a lot of them.  Which is really funny because I don't have any symptoms of heart disease except for chest pain, but I think I have it.  I have lots of symptoms of fibromyalgia and I won't admit I might have it....I suppose that's because fibro won't kill me.

Crazy anxiety!
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Some day the mother ship will arrive and take my HA back to Mars where it belongs.

Offline Missjay1977

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Re: Pain in back, left shoulder blade. Real pain....need opinions...
« Reply #3 on: October 20, 2008, 08:41:33 AM »
Ugh, my shoulder still hurts and I could barely sleep last night.  Wish I knew what this was.

On a side-note to Kayteecatt, i too, have issues with the fibromyalgia dx.  It seems like everyone has it these days. 
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Offline Kayteecatt

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Re: Pain in back, left shoulder blade. Real pain....need opinions...
« Reply #4 on: October 20, 2008, 09:15:51 AM »
Oh totally, it's like if you have pain and they can't figure out an honest medical reason as to why, they call it fibro.  My mom was diagnosed in the late 80's before anyone knew what it was...she's definately got it, but I see all these other people who aren't in near the pain she is and they have been diagnosed with it too.

Tylenol PMs work wonders for me on the nights that this costo or whatever it is bothers me...I go to bed at 11:00, so I take two of them at 9:00, and I'm out like a light about 15 minutes after my head hits the pillow.  Try a couple of those tonight to see if you can get some sleep.
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Some day the mother ship will arrive and take my HA back to Mars where it belongs.

Offline Pan

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Re: Pain in back, left shoulder blade. Real pain....need opinions...
« Reply #5 on: January 17, 2009, 09:29:40 PM »
Ugh, my shoulder still hurts and I could barely sleep last night.  Wish I knew what this was.

On a side-note to Kayteecatt, i too, have issues with the fibromyalgia dx.  It seems like everyone has it these days

Yep, very true Missjay!

I have to say that I am strongly of the opinion that Fibromyalgia is basically a diagnosis given when a patient is struggling to accept and deal with a chronic pain presentation which cannot be given an organic explanation.  Does Fibromyalgia exist in Eastern cultures?....I'm not sure.

In the UK a recent development in medicine is something known as pain clinics.  These pain clinics are becoming increasingly full of people who are unable to manage with undiagnosed pain and it is thought they can be taught various techniques and coping strategies that will allow them to live with their pain even though this may stay with them for life and may never be explained through traditional medicine.  It is actually no secret that one of the first things that pain clinics like to do is to diagnose patients with a condition as it has be proved time and time again that patients become reassured and less anxious once their pain has been classified and boxed off...for a huge number of undiagnosed pain sufferers they feel that they are doubted and even feel that they are seen as malingerers because no physical cause and resulting diagnosis has been found for their pain.

I think that there can be a close correlation here with Health Anxiety as all too often when we suffer from Health Anxiety we always equate that the absence of pain and discomfort means we are healthy and that if we are experiencing a physical pain or discomfort this must therefore mean we are physically ill.  I think that this is total nonsense and the proliferation of this idea is actually one of the biggest failings of Western medicine.  Don't get me wrong, I do not for one second believe that the physical symptoms of Fibromyalgia do not exist...that would be stupid of me as I have/had had pretty much every one myself and even responded to all the classic pressure points etc, all I'm saying is that I think that the requirement to label these symptoms as a specific syndrome that is suggested as being somehow physical when no physical causation can be found is somewhat puzzling and also says more about our attitude towards the mind/body link and it is this attitude that may well be holding us back from making some real advancement with chronic unexplained pain.
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Offline MariaD

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Re: Pain in back, left shoulder blade. Real pain....need opinions...
« Reply #6 on: February 08, 2009, 08:33:26 AM »
the pain u mention missy seems to be common in fibro sufferers........i get shoulder blade  pain at nite when im asleep feels like someone is sticking a red hot poker in my back and twisting it.

the pain can be severe enough to wake me up then i have to sit up or turn over which is excruciating.i've had the pain for ys now so i dont think its anything thats damaging to my health.

 when i first started to experience it id be in tears because the pain was so severe.now im used to it and i cope a lot better with it and i know if i sit up it will go away.i figure its to do with pressure points being pressed on when im sleeping.

recently ive found a lot of interesting info on the net by doctors who are suggesting that fibro/cfs is pre hypothyriodism.
apparently the symptoms are exactally the same.
problem is when docs do blood tests nothing shows up, so some docs are ordering biopsies and finding lo and belond hypothyriodism in the fibro patients.

seems like a reasonable explanation to me because my mother and a good portion of her family have thyriod problems, my mums was induced to go under because she had hyper thyriodism.so she gets similar symptoms to me.
its certainly worth considering.
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