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Author Topic: A Thread for Newcomers Worried about Multiple Sclerosis (MS)  (Read 141215 times)

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Offline Bakke4

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #160 on: March 07, 2014, 03:39:00 PM »
I am a new one to this site but reading over most of the posts make me relax a bit but not much. I am a 34 year old male with anxiety issues about my health.  It started with ms and then went to als and now back to ms. I am not  worried about als that much anymore but ms is at the top of my list.

I have most of the symptoms that everybody else has here and they started oct 2012. I have a great neuro here and I trust him plus he is very upfront with me about everything. Which is good and bad in many ways.

Symptoms

Started with a numbness feeling in my fingers that would come and go to start with. Numbness lasted first time  a couple of hours.  But the numbness would come and go and it still is doing it to this day. Mainly pinky and ring fingers on both hands. Most of the time though it is on the left hand 70%. With the left hand now being numb a large part of the day.  I read lots of people are able to shake it off this numbness but I have never been able to do this.  Also numbness on top of my head right side

After 2-3 months at the start the numbness and tightness went down to my left foot. Not to the toes but the top left front of the foot just before the toes.  There was nothing that I could do to relax anything down there. After a couple days straight there was a tingle and tightness that went up my left outside of my leg to my calf. The tingle went away after week or two but the tightness is still there. It has also moved to the other calf and has stayed there too. At the beginning it would come and go, where I would have two weeks with it and a couple days off but now they are alway tight.

Muscle twitches.  They never stop started at my right eye and now everywhere. Mainly in legs all over but go into arms, back, stomach and everywhere else.

My hands hurt at joints very badly for most of the time but it does take some time off.

My right eye seems to be way out of focus and never really seems to get lots better over the day/week/month.

I have had a bit of a Blatter issue in the last few years were I finish urinating and zip up and I am not totally empty. Thus I have some dripping issues. I have not heard many people with this issue here and I am not sure if they are embarrassed about it or what but I just need some help.

Also shaking inside and out through this whole thing

Dizziness has come and gone with this

Headaches that never go away

Diarrhea has been present from the start and varies in severity. I haven't had a normal crap since this started and yes we tested that too.

Since the start of this year 2014 I have had pain in my kidney areas on both sides for the last month. Also back pain starts at the base of my back and works it's way up to mid back.  Last two days tingles in left foot and burning in hands

My family is amazing and they know that something is up with this and they all think it is also stress and anxiety. I just don't know what to do anymore. I have

Medical tests

First sign of issues went in for physical with family doc
   High cholesterol was what came out of it. I asked about an mri just to ease my mind about ms. Got one and there was nothing there clean. I don't know the mri power and cannot remember if the dye was used.

I went to first neuro and he was a donkey. So it didn't help me much when he said nothing was on mri and I can't find anything. He just totally brushed  me off and never listened to any questions I had.   He said anxiety.

Second neuro was the guy that I trust and is very good. I went in and was a mess when I talked to him I the listened to every little thing. We did every blood test under the sun and nothing came up. I see him every six months just to update him and talk about everything that's going on. In jan 2013 I had an emg and nothing was found with it.  Last spring 2013 April I had another mri at his clinic and everything came back normal. I did ask him if I could get a referral to mayo clinic in Minnesota. He said he would but i don't think they will respond. They did and i was seen in feb 2013. The doc was great both the neuro and reg doc. Both of them did physical exams and nothing was there. They took some blood and nothing was there and also did another emg and nothing.

The last trip to the neuro  said that there is no sign of ms but I understand and I can see some of your symptoms but there is nothing that I can say that is definite this or definite that. He then told me a story of a guy that had some of these same things that after three years went on to be diagnosed with ms. He also stated that he had four other people my age that were  having these same issues under his care. He is very good at what he does but I can not get ms out of my head and need some help.

I am not sure if I am posting in the right area so I am sorry
Thanks

 
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Offline 2Bogey

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #161 on: March 12, 2014, 08:48:16 PM »
Bakke4:  you said that the neurologist told you that he cannot be definite either way.  That is the limbo that I have been in for the past 13 years.  It has affected my life greatly.  A lot of fear and worry.  Of course it would be awesome to never be diagnosed with MS, but at the same time, that would mean that we wasted a lot of our life worrying and not enjoying life.  That is very sad.  I feel that we have to get to a point of acceptance that if we had MS, it wouldn't be the end of the world.   We can't fear it!!!!!  The fear is equally debilitating! 
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Offline eizeral

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #162 on: March 19, 2014, 01:02:20 PM »
Does anyone know if you can get new symptoms 2-3 weeks into a possible MS flare up? Nearly 1 month ago, I was exercising at the gym, contracting my abdomen and neck when all of a sudden, I was overcome by a head to toe pins and needles sensation, which remitted in less than 10 minutes. However, later on in the day, I started feeling this prickling sensation in my arms, back, and much less often in my legs. After investigating the pinched nerve, seeing my doctor, etc, she wanted to pursue an MRI because she suspected I injured my neck. I was also in a bad accident the month before the gym incident (hit by a car going 90mph on NJ Turnpike), and that week was my first week back to the gym. Anyway, I ended up getting denied by my insurance for the MRI because I do not meet the clinical criteria, and I went in and saw the doctor for a second time.

This time, I went through a very extensive history of my paresthesias, and this tight, painful sensation in my thighs (Left>>Right), and a cold, tingling sensation in my left lower leg and both feet. This happened 20 days after the paresthesias started. I have also experienced a number of various aches and pains (mild jaw pain, mild chest pain, abd pain, bilateral arm pain and soreness, etc) since the start of all of this. I have been sick with worry imagining that I might have MS. The doctor told me twice now that she does not think it's MS, and the paresthesias in my arms and back have improved a lot since then. Also, the symptoms are always pretty much nonexistent when I am with friends and happy/not thinking about all this crap. I was beginning to think I maybe didn't have MS. However, I read that the muscle tightness is a symptom of MS...so my question is this:

Even though I still experience the prickling sensation in my arms and back from time to time, supposing that was a flare up...would it be possible to get a new symptom 3 weeks into it? I can't remember what my doctor said but she said MS doesn't move around like that but I don't know if that's the right answer to the right question...Do you think my anxiety could be causing all of this? I have had the muscle tightness and tenderness in my leg for about 5 days now, and the only thing that seems to relieve it even a little is applying heat to the area. I have also had 3 completely normal neuro exams. Anyway, any help would be much appreciated!!
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Offline Blueberry

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #163 on: March 28, 2014, 08:25:23 PM »
I'm surprised this is a common enough worry to have a thread. I guess hypochondriacs imagine intense illnesses first.

I worried abou either fibromyalgia or MS a few weeks ago but my anxiety has gone mostly away. I remember freaking out when I saw one of the first Google auto-results was "multiple sclerosis life expectancy" but after a few searches I learned it's not a terminal, or even deadly, problem and that helped my anxiety.

I had a few symptoms but the problem with symptoms is they can be from anything. Dozens, hundreds, of illnesses consist of normal ailments like body pains, headaches, poor mood, etc.

I've always been a clumsy, forgetful person. You can tell me something and I'll forget it 3 minutes from now. For the past month I've been getting weird skin sensations, like cold water under my skin or my foot having the pins and needle feel without falling asleep. Sometimes I get muscle spasms, usually in my legs, and I get 1 second stabbing pains in my abdomen or cervical area. For about 4 or 5 weeks I felt horribly fatigue constantly, or I'd have bouts of fatigue that came suddenly and disappeared within 2 hours. I sometimes feel weird - I guess faint or lightheaded but not really - for no reason.

I chock this all up to stress and anxiety though. It causes the worst symptoms.

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Offline Princess23

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #164 on: May 29, 2014, 04:51:50 PM »
OMG Pan if you were infront of me now I think I would hug you lol... I get all of those symptoms every day but varying, I find the buzzing on the inside and fuzzy head the most worrying, infact I find them all worrying .. I have never read it put that way , that someone out there is getting all those symptoms too!!! I also get more sensations...your post has made me understand that I'm ok and I will think of your post when having my sensations to allow them to happen and accept them, as I've read worrying about them increases the stress and prolong the sensation and symptoms... A brilliant post.. Thankyou again!!!!! Lynn :action-smiley-065:
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Offline roro82

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #165 on: June 02, 2014, 03:10:24 PM »
Here's a great article about MS and anxiety I recently read.

MS is a common worry amongst hypochondriacs because the symptoms of MS are easily confused with anxiety. At least that's the way it appears on the surface. A deeper dive would reveal the reason these symptoms appear to be similar to MS. Let's examine how the typical hypochondriac convinces herself that she has MS. One day out of the clear blue the patient notices that her hands and or feet are tingling. It feels a bit like pins and needles, but isn't very uncomfortable. This feeling is stored in some part of the brain and is ignored for now. Another day the patient notice what appears to be a blurring of her vision. Feeling stored, and might be ignored if transient. On a third day the patient notices what she assumes to be a weakness in her legs. Feeling stored, and perhaps ignored. When these separate symptoms are repeated on a future date the hypochondriac determines that a pattern has developed. A search to discover the source of the pattern is begun. The typical hypochondriac consults the internet for answers to "the pattern". She googles "blurred vision and tingling hands" . MS will appear in the search results as the number one or number two item. Panic results. The hypochondriac then takes a superficial foray into the symptomatic world of MS. As she reads about MS she discovers that there are visual symptoms of MS. More panic occurs when she recalls that she has had a couple of episodes of "blurred vision". As she reads a bit more she discovers that numbness or tingling is a common complaint of people with MS. Oh my God, she thinks, I've had tingling hands and feet. I've had that twice this week. Oh MY GOD. Within a matter of an hour or less this poor girl has completely bought into the mistaken belief that she has the symptoms of MS. They all match. She thinks she has multiple symptoms. It's over... she has MS. Now for the reality check. The first symptom she experienced was "tingling hands". The most common reason for tingling hands is anxiety, followed by poor circulation, followed by nerve compression, followed by nerve damage. MS is nerve damage. It's the last in a series of possible causes. What really happened was that she was unconsciously breathing a bit faster than normal. The extra oxygen and the decreased carbon dioxide levels in her blood caused a chemical change in the way her peripheral nervous system responds to ambient conditions. In other words she was slightly hyperventilating. It doesn't take but a slight change in the bloods CO2 levels to create tingling. Most people wouldn't notice the increased respiration rate. The body notices very quickly. Her very first symptom was caused by hyperventilation, not MS. Her second symptom was "blurred vision". MS causes sudden loss of vision not simple blurred vision. The typical report of "blurred vision" isn't related to vision at all. There isn't any defect in the eye, nor in the nervous pathways from the eye to the brain. The perception of blurred vision is a combination of the increased pulse rate associated with anxiety coupled with the brains inability to sort out the visual signals from the noise of anxiety. In other words the anxiety is using up a ton of brain power and this usage is clogging up the other systems. Blurred vision is a very common anxiety symptom. Other causes aren't transient. One can have blurred vision from a focal problem, or an astigmatism, but the problem is present 100% of the time, and doesn't improve or relent. Because the patient doesn't have a professional understanding of symptoms, a transient episode of "blurred vision" matches the description of a visual symptom of MS. One plus one now equals six. Wrong answer, one plus one is always two. The leg weakness is also the result of anxiety. A common symptom which isn't measurable or objective, but rather subjective. The patient "feels like her legs are weak". If she were to have an objective third party measure the strength of her legs against a known baseline, she would not have a measurable loss of strength. When MS strikes the nervous pathways which control muscles, the weakness isn't perceived, it's measurable. The arm that could previously lift 50 pounds, can now lift only 10 pounds, or 20 pounds. This is the loss of MS. It's not a feeling it's a measurement. Hypochondriacs sometimes read deep enough to understand this disconnect, and then they begin a period of self testing. They try standing on one leg to check balance. They squat on one leg to check strength. They do all sorts of crazy self tests. The problem is that these tests are judged by a biased party, the hypochondriac. The hypochondriac is not objectively measuring anything. Ok, sorry for the long reply to a simple question. I'm not a doctor and I haven't examined you, but I'll bet your doctors are right. You don't have MS, and you don't have symptoms of MS. The fact that you report that these symptoms are constantly changing is so typical of anxiety and so atypical for MS, that I could have based my entire argument on that one sentence. Here's the idea you need..... go see a therapist who specializes in Cognitive Behavior Therapy.
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Offline cloud

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #166 on: June 18, 2014, 12:54:32 PM »
I feel more at ease reading everyone's story and knowing I am not alone with this fear.

I have had numbness/tingling on my entire left side for over a week now. It started with my face and it slowly creeped down to my legs by the end of the week. At first I pretty calm about it and thought it will go away after a day or two, but then my anxiety kicked in and I began to google (worst decision ever) and the first thing that showed up was MS. I ended up going to the ER and they did an MRI (w/out contrast) and blood work. Both were clear. The doctor told me to follow up with a neurologist. I did. I then had a Cervical Spine MRI done and I am waiting on the results. I am a basket case. I am really scared that I have MS or something even worse. I am a very anxious person, but before the numbing/tingling started, I actually had one of the most relaxing weekends I have had in a long time. That's why I don't think this is anxiety related. That and the fact that I only feel this on my left side.

Anyone else having symptoms on just one side for a long period of time?
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Offline I.Will.Win

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #167 on: June 18, 2014, 04:37:59 PM »
The left side of my face goes numb and tingles all the time. It was one of my first symptoms. I hardly notice it anymore.
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Offline cloud

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #168 on: June 18, 2014, 05:56:38 PM »
Will, thanks for responding!

 Does your left arm or leg go numb/tingle too? Does it last for days/weeks?

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Offline I.Will.Win

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Re: A Thread for Newcomers Worried about Multiple Sclerosis (MS)
« Reply #169 on: June 18, 2014, 08:29:54 PM »
I've had issues with my left calf. Sometimes it tingles and others like it was crawling. My face is actually numb as I type this! It started about 2 years ago. Sometimes it's gone completely. Your brain eventually habituates where you don't even realize it. That's my personal experience.
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