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Author Topic: IS THIS ALS PLEASE HELP  (Read 594 times)

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Offline nick1981

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IS THIS ALS PLEASE HELP
« on: August 22, 2014, 03:10:11 PM »
So im Nick im 32 years old. For the past 2 months I have had extreme weakness in both legs. Its almost feels weird to walk or run now. When I try to exercise they cramp and hurt really bad. The muscle twitching all over my body is horrific. Im scared to death and just dont know how this could be anxiety. My legs are so weak and when going down steps or down a hill they shake really bad I have had a CBC blood test cmp blood test thyroid checked and ekg all normal. Even if im not anxious weakness is still there
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Offline mprowland

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Re: IS THIS ALS PLEASE HELP
« Reply #1 on: August 22, 2014, 03:25:45 PM »
I know very little, so take I what I say with a grain of salt:  I believe twitching all over is actually a good sign, this came straight from the mouth of my neurologist.  If ONE leg were weak and that ONE leg was the only one twitching, I'd be a little concerned.  From what I understand, ONE leg would be weak and the other would be normal if it were A%$.  A%$ progressively moves throughout the body.  I've had body wide twitching for over a year and half now.  I've often had PERCEIVED weakness in one of my legs.  While my leg FELT weak, I had an EMG and it came back clean.  There is an entire website of (5000+ members) devoted to people who twitch and believe it's A%$. 
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Offline nick1981

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Re: IS THIS ALS PLEASE HELP
« Reply #2 on: August 22, 2014, 03:29:29 PM »
Thank you
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Offline thenomnomnomicon

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Re: IS THIS ALS PLEASE HELP
« Reply #3 on: August 22, 2014, 04:07:31 PM »
In what way are they 'weak'? Perception of weakness isn't weakness. Weakness is not being capable of running. See a neurologist. Have an exam. It could be anxiety. You certainly sound anxious. Twitching is negligible.
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Offline nick1981

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Re: IS THIS ALS PLEASE HELP
« Reply #4 on: August 22, 2014, 04:18:17 PM »
I saw a nuero he just did a ten minute exam but no other tests he said I was fine
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Offline thenomnomnomicon

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Re: IS THIS ALS PLEASE HELP
« Reply #5 on: August 22, 2014, 04:27:22 PM »
Then you are very, very likely to be fine.
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Offline thenomnomnomicon

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Re: IS THIS ALS PLEASE HELP
« Reply #6 on: August 22, 2014, 04:32:14 PM »
No UMN pathology. No atrophy. Cramps contingent on exercise. Twitching is pretty much meaningless. No pathological weakness. Reflex exams are essentially the most definitive non-invasive test that exists. If he didn't find weakness or abnormal reflexes then you don't have anything to worry about. Plenty of people twitch. Myself included.
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Offline nick1981

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Re: IS THIS ALS PLEASE HELP
« Reply #7 on: August 22, 2014, 04:35:30 PM »
I hear you its just the weak feelings in both legs it feels weird to walk now and they shake like crazy just hard to think anxiety can cause this for 2 months straight
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Offline Daisy55

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Re: IS THIS ALS PLEASE HELP
« Reply #8 on: August 22, 2014, 04:45:27 PM »
What was the 10 min test?  Can I do it at home?
The ALS has me concerned too.
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You will know the truth, and the truth will set you free.  
John 8:32

Offline thenomnomnomicon

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Re: IS THIS ALS PLEASE HELP
« Reply #9 on: August 22, 2014, 05:00:21 PM »
Anxiety can do whatever it pleases. Especially with someone as worked up as you are. And no, Daisy. Not only can you not, it is a pernicious way to think. Do not self-examine. For any one concerned about this disease, consult your GP or see a neurologist. Do not self-examine, self-test, self-whatever.
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