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Author Topic: Help help help ALS fear!!!!!  (Read 835 times)

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Offline ShawnW

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Re: Help help help ALS fear!!!!!
« Reply #10 on: August 20, 2014, 07:37:01 AM »
One thing I learned the mind is a powerful tool. In my case I've been diagnosed with GAD and health anxiety. I start to pull away from the fear if a current disease and then new symptoms start. Right now I know widespread fast twitching is unlikely ALS. So now I focus on the quick one poppers on my back, shoulders and forearms. I read one post a neurologist told another ALS worrier that the twitches that worry him would be the one twitches per hour areas. And then the weakness how does the weakness present itself with ALS? Is it an immediate onset of being unable to use a limb or a slow decay of muscles over a short period of time. Last month I worried about acute leukemia due to a CBC blood test that came back with low WBC. I've had multiple low WBC test and it was quickly dismissed due to my good health. Other than the anxiety issues and the twitching doctors have told me I'm in better shape than most clients they ever seen.

I feared ALS last year and let it go. It wasn't until recently after a new hotspot and hearing the term ALS with these challenges everywhere I turn I began a new fear of the disease. I live a normal life with a moderate amount of anxiety and stress without medication. It's right now my fears are taking me over the top with my fears. I'm really trying to convince myself I don't need to see my doctor.

The twitches that are concerning?  None.  No type, to timing of them...how often...how infrequent.  Twitches without weakness are not concerning.  This is coming from not one neurologist but the best minds in the field.  People twitch...my partner who is a neurologist stated to me "I don't chase twitches"...meaning he finds them clinically irrelevant.  He relies on a good neuro exam...weakness is concerning...true atrophy is concerning (don't start self examining)...an abnormal reflex exam is concerning.  But, even in these cases it's rarely a neuro nasty...it's often a pinched nerve.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Want to know how to address your anxiety?
http://www.anxietyzone.com/index.php/topic,93402.msg521266.html#msg521266

Offline bearsfb66

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Re: Help help help ALS fear!!!!!
« Reply #11 on: August 20, 2014, 01:45:28 PM »
Thanks again Shawn I really got myself worked up this time. It's been over 6 months since I had this bad of a fear of ALS. My leg twitches returned as bad as ever and one time pops here and there. I guess it's time to start working on the anxiety again.
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Offline nervouspurvus

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Re: Help help help ALS fear!!!!!
« Reply #12 on: August 30, 2014, 01:36:26 PM »
Thank you all. This has been quite helpful to me as well. I also have ALS fears that have been quite elevated recently. About 2 weeks ago I increased me Sertraline from 50 to 100mg. I'm still very anxious so I'm thinking it's still from the increase. Let me ask you Cameron - do you know what the odds are for some one who is in their early fifties? Of course I know it's higher than someone in their thirties. I was just wondering.
Thanks,
NP
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Offline bearsfb66

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Re: Help help help ALS fear!!!!!
« Reply #13 on: October 11, 2014, 06:54:38 PM »
I am posting one of my last posts on one of my first in August. As much help I have found this website I also found it keeps my health anxiety on my mind. I was told by a few doctors to stay off forums because you will find what you seek and sometimes it will scare the crap out of you. I don't have ALS but I do have twitching. I don't have weakness but it's time to let my fear go. I enjoy this website and and the great insight I got from ShawnW and others. Ive had health anxiety/hypercondria for 25 years and I've had nearly every fear everyone here has had. It's hard to beat but you need to find your "happy place." Sorry to use from Happy Gilmore but it's true. Mine is my family and I spend entirely too much time on the Internet and forums. My last advice to everyone is find your relief and spend time with the ones you love because life is to short to spend it on the computer all the time. I'll answer any messages this weekend but after tomorrow that is it. Take care everyone and God bless.
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Offline ShawnW

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Re: Help help help ALS fear!!!!!
« Reply #14 on: October 11, 2014, 11:51:31 PM »
I'm glad to see you moving on.  Sounds like you are making a move in the right direction.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Want to know how to address your anxiety?
http://www.anxietyzone.com/index.php/topic,93402.msg521266.html#msg521266

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