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Author Topic: Fear Of Having Sporadic Fatal Insomnia  (Read 519 times)

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Offline JamesAH

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Fear Of Having Sporadic Fatal Insomnia
« on: August 08, 2014, 08:29:21 PM »
For the last 3 weeks I've been having sever insomnia in addition to anxiety that I have SFI. I realise that it's extremely rare but my mind is racing at a million miles an hour on this thinking that I'm in the early stages of the disease.

It's scaring me silly and I don't know what to do.
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Offline Lunatone

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Re: Fear Of Having Sporadic Fatal Insomnia
« Reply #1 on: August 08, 2014, 09:25:43 PM »
Its not extremely rare. Its genetic, in only about 40 families in the world, affecting only about 100 people. If you are not from one of those families, and i'm pretty sure you'd know if you were, then you do not have it. That's really all there is to it. its impossible.
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Offline JamesAH

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Re: Fear Of Having Sporadic Fatal Insomnia
« Reply #2 on: August 08, 2014, 09:30:05 PM »
Its not extremely rare. Its genetic, in only about 40 families in the world, affecting only about 100 people. If you are not from one of those families, and i'm pretty sure you'd know if you were, then you do not have it. That's really all there is to it. its impossible.

I'm not referring to Fatal Familial Insomnia I'm referring to the non inherited version called Sporadic Fatal Insomnia.
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Offline on_the_edge

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Re: Fear Of Having Sporadic Fatal Insomnia
« Reply #3 on: August 08, 2014, 11:19:08 PM »
According to Wikipedia: Only nine cases of sFI have ever been diagnosed as of July 2005.

Nine cases. EVER. Out of 7 billion people. You might as well worry about being impaled by a unicorn.

Meanwhile, 1 in 3 people have regular insomnia.
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Offline JamesAH

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Re: Fear Of Having Sporadic Fatal Insomnia
« Reply #4 on: August 17, 2014, 02:49:18 PM »
I broke down today. The last 4 days I've got only 1-2 hours of sleep. In 3 weeks since my insomnia started a total of 6 days have been 0 sleep and I'm now in a total fright that I have SFI.

OTC sleep meds aren't doing it. What the doctor prescribed didn't work(ambien,klonopin,remeron and temazepam)and I'm scared to death :traurig001:
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Offline Chloe1990

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Re: Fear Of Having Sporadic Fatal Insomnia
« Reply #5 on: August 17, 2014, 03:13:27 PM »
What happens when you lay down to try  and sleep? Have you tried having a warm bath with relaxing oils before bed?
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Offline JamesAH

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Re: Fear Of Having Sporadic Fatal Insomnia
« Reply #6 on: August 17, 2014, 04:40:50 PM »
Have you tried having a warm bath with relaxing oils before bed?

Yes that doesn't work either.
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Offline Dragi316

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Re: Fear Of Having Sporadic Fatal Insomnia
« Reply #7 on: August 17, 2014, 07:35:51 PM »
I feel where your coming from nearly three years ago I had severe insomnia like you for 5 months . And feared that deadly 1 in a billion disease . But once you get it in your mind the chances of you getting this is nearly 0 you can start to sleep better. Honestly you have a better chance of winning the mega millions 3 times then getting this . I know it's hard lately I've been getting some insomnia again and the mind starts to mess with me again
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Offline JamesAH

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Re: Fear Of Having Sporadic Fatal Insomnia
« Reply #8 on: October 19, 2014, 08:58:19 PM »
Update. Been having some sleep for the last few weeks.
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