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Author Topic: Just came from neurosurgeon  (Read 192 times)

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Offline Roman

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Just came from neurosurgeon
« on: June 23, 2014, 08:49:53 AM »
Hello all I had a neurosurgeon appt Thursday. He went over my MRI slice by slice of my cervical spine. He showed me that I have severe pinched nerves between c5 c6 c7 on left side. He gave me a clinical exam as well. My fear is als and have been suffering from this fear for 6 months. He said I don't have it. I asked him how could he be sure and he sated normal reflexes 6/5 on the strength scale on all muscles he examined and a real bad MRI. I have multilevel cervical spondylitic myelopathy and 3 herniated discs. He said bad but not als or pls and there can be no differential diagnosis it is what it is.  He really sounded like he was talking about. He ordered an MRI of my lumbar spine that is on 7/10. I guess after my gp, 5 neuros, 2 als specialists and a prominent neurosurgeon telling me I don't have als I should start believing I don't have it I felt mentally good for awhile but the fear is creeping back because of the atrophy and pain in my hand and forearm. He mentioned something about the brachial plexus and he told me where I was experiencing pain before I could even tell him. Does anybody know anything about what the brachial plexus is Shawn W or noncommon would appreciate your input aswell as anybody else. Thank you.
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Offline Lindsay2427

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Re: Just came from neurosurgeon
« Reply #1 on: June 23, 2014, 09:01:31 AM »
Hi roman. Here for support like always ;) I really think you should trust these doctors however I know how debilitating HA is and no matter what we suffer. Do you see a therapist, Roman?   
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Offline thenomnomnomicon

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Re: Just came from neurosurgeon
« Reply #2 on: June 23, 2014, 09:08:41 AM »
I can't comment on your question about brachial plexus. I can say that the MRI findings are very definitive and indicate nothing terminal like ***.

Pain, unless spastic cramping, is not associated with ***. You've found a completely 'benign' -- at least in the sense that it isn't lethal -- answer to your atrophy. If this were *** or PLS you'd certainly have abnormal reflexes if you're experiencing atrophy. Not to mention you'd have extreme weakness.

With the number of doctors you've seen about this MND would not have been missed.

Your symptoms are very real, but you have misidentified the cause and must let go of this fear.
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Ph'nglui mglw'nafh Cthulhu R'lyeh

Offline Roman

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Re: Just came from neurosurgeon
« Reply #3 on: June 23, 2014, 09:14:39 AM »
Thanks for the responses I guess I should put it to bed I mean there's no way they could all be wrong I haven't even had a dr want a repeat visit. I have an ugly spine that will eventually require surgery but nothing I can't handle. Good thing I have great insurance lol. But after worrying about something for so long old habits are hard to break.
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Offline thenomnomnomicon

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Re: Just came from neurosurgeon
« Reply #4 on: June 23, 2014, 09:20:02 AM »
Thanks for the responses I guess I should put it to bed I mean there's no way they could all be wrong I haven't even had a dr want a repeat visit. I have an ugly spine that will eventually require surgery but nothing I can't handle. Good thing I have great insurance lol. But after worrying about something for so long old habits are hard to break.

I understand. I'm still trying to break free totally too. I've nearly removed my anxiety, but still have physical symptoms I'm waiting to dissipate (here's hoping they will and I'm not actually dying, right?).

Once you can let go of the fear for a second, that second will continue to grow day by day and less and less you'll obsess about ***.
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Offline Roman

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Re: Just came from neurosurgeon
« Reply #5 on: June 23, 2014, 09:23:03 AM »
Hope all works out well for you nom your a good guy and always willing to help much appreciated by all with this fear on anxiety zone.
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Offline sixpack

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Re: Just came from neurosurgeon
« Reply #6 on: June 23, 2014, 12:03:08 PM »
it is not unusual that you find yourself questioning professional medical opinion following extensive testing.  it is also not unusual to start seeking additional reassurance shortly thereafter.  In fact that is pretty much expected. You see that is the NATURE of anxiety disorders.  Which is why reassurance--whether it be from family/friends or googling or medical testing and doctor visits-- JUST DOESN'T WORK.  It doesn't fix what ails us.  If your car is broken, you don't try to rectify it by going to the bakery. 

Every ha person desperately hopes reassurance and doc visits and med testing will be the THING that gets them on their healing path.  This whole forum has hundreds/thousands of posts saying things like,  "if I get this test or that test, I will be able to move on."  Or "I need X test then I will know it is anxiety"  or "I promised myself that if X test is normal, I will believe it and THEN I will be assured".  There are many variations on that theme around here.  I read such things everyday.  AND it is all poppycock. As another member here, floridaguy,  was apt to say,  "Lasting solace will never be found in an MRI tube, CTscan, with an EKG or EMG, or with another round of blood tests"   Unless one abandons the reactive behaviors associated with anxiety and then replaced by proactive ones, the vicious anxiety will not be broken.  I am not saying it is easy, not by a long shot, but it is worth it.

You have some pinched nerves in you neck.  So do I.  So does, probably, half the planet.   One of my disks is moderately herniated. Another is severely herniated.  As gross as this may sound, I can feel that disk and can psuh on it!   One of the vertebrae is twisted a bit so that it is pushing on the spinal cord.  At some point I may need surgery to correct it.  But I will hold off on such a drastic measure until I begin wetting my pants.   :winking0008:  :goofy:


SOOOO going forward what are willing to do to get better?
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Online madmexican808

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Re: Just came from neurosurgeon
« Reply #7 on: June 23, 2014, 12:34:09 PM »
Thanks for the responses I guess I should put it to bed I mean there's no way they could all be wrong I haven't even had a dr want a repeat visit. I have an ugly spine that will eventually require surgery but nothing I can't handle. Good thing I have great insurance lol. But after worrying about something for so long old habits are hard to break.

had an A** fear as well for a bit, weakness is always associated with A**.
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Offline Roman

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Re: Just came from neurosurgeon
« Reply #8 on: June 23, 2014, 12:38:21 PM »
Six pack you are absolutely right I'm not saying it'll happen over night hut I heed to start trusting the drs first and foremost. I will talk to my therapist and run a few things by him but I've been terrified for along time and going to drs gives me the answers that I want but I just can't shake it although it was nice to feel like I wasn't dying for a few days lol.
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Offline ShawnW

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Re: Just came from neurosurgeon
« Reply #9 on: June 23, 2014, 12:46:25 PM »
Hello all I had a neurosurgeon appt Thursday. He went over my MRI slice by slice of my cervical spine. He showed me that I have severe pinched nerves between c5 c6 c7 on left side. He gave me a clinical exam as well. My fear is als and have been suffering from this fear for 6 months. He said I don't have it. I asked him how could he be sure and he sated normal reflexes 6/5 on the strength scale on all muscles he examined and a real bad MRI. I have multilevel cervical spondylitic myelopathy and 3 herniated discs. He said bad but not als or pls and there can be no differential diagnosis it is what it is.  He really sounded like he was talking about. He ordered an MRI of my lumbar spine that is on 7/10. I guess after my gp, 5 neuros, 2 als specialists and a prominent neurosurgeon telling me I don't have als I should start believing I don't have it I felt mentally good for awhile but the fear is creeping back because of the atrophy and pain in my hand and forearm. He mentioned something about the brachial plexus and he told me where I was experiencing pain before I could even tell him. Does anybody know anything about what the brachial plexus is Shawn W or noncommon would appreciate your input aswell as anybody else. Thank you.

Fits what we discussed.  You have a diagnosis which accounts for all your symptoms.  It's not benign, might need surgery but not the neuro nasties.  So, you have much to be thankful for today.  The brachial plexus is merely the group of nerves that control the arm.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Offline Roman

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Re: Just came from neurosurgeon
« Reply #10 on: June 23, 2014, 12:55:11 PM »
Thank you Shawn I do have a lot to be thankful for and want to put this behind me and you did call this earlier so my hats off to you. Thank you and everybody else who take the time to read my post much appreciated.
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