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Author Topic: 5 months and 1 week-als scare  (Read 157 times)

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Offline Nk904

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5 months and 1 week-als scare
« on: June 12, 2014, 05:06:50 PM »
I'm up to my 5 month mark and one week scare of als. Still convinced the dry cough (sputum in the morning) throughout the day, random aches to the touch upper arm where it hurts to touch, twitching of calves nonstop and now my face near the lip, and overall well being are signs of the big one. I need help...
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Offline Nk904

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Re: 5 months and 1 week-als scare
« Reply #1 on: June 12, 2014, 05:11:25 PM »
Also the self induced cramps in my calfs and big toes...self induced and it hurts. I have to stretch to bring it back to normal. Overall feeling of being spacey, too.
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Offline thenomnomnomicon

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Re: 5 months and 1 week-als scare
« Reply #2 on: June 12, 2014, 05:13:51 PM »
Nolan, you do not have ***. Suspecting this after 5 months and numerous clinicals is crazy.

You're in the wrong age demographic.
Your reflexes are fine.
You have no weakness.

UMN dominant: reflexive change.
LMN dominant: weakness.


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Ph'nglui mglw'nafh Cthulhu R'lyeh

Offline Nk904

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Re: 5 months and 1 week-als scare
« Reply #3 on: June 12, 2014, 05:21:19 PM »
Idk if my reflexes have changed. What if they did?!?! Also, this back ache is still here. So tired of all of this. Wake up every morning with years clogged up and so much snot.. Logan, cured the scabies though! Text me man. Leaving me in the dust..
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Offline Nk904

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Re: 5 months and 1 week-als scare
« Reply #4 on: June 12, 2014, 05:23:41 PM »
Feel like my hands are getting more tired/cramps feeling faster. So annoying..
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Offline thenomnomnomicon

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Re: 5 months and 1 week-als scare
« Reply #5 on: June 12, 2014, 05:33:49 PM »
I'm not leaving you anywhere.

I'm still frightened and have less time behind me.

Also I can't find my phone charger. Actually quite annoyed by that.
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Ph'nglui mglw'nafh Cthulhu R'lyeh

Offline Nk904

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Re: 5 months and 1 week-als scare
« Reply #6 on: June 12, 2014, 05:44:36 PM »
Better charge it!
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Offline Nk904

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Re: 5 months and 1 week-als scare
« Reply #7 on: June 12, 2014, 06:34:28 PM »
Twitchig on lips and near them. People keep asking what I'm saying like I'm not speaking up enough and I think I sound different. Same time I have snot all in my throat.
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Offline NytViolet

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Re: 5 months and 1 week-als scare
« Reply #8 on: June 12, 2014, 07:07:25 PM »
Please visit the ABOUTBFS.com website and get some good info.  There are many of us here who know a lot about *** and you'd KNOW if u had it.  One neuro said "the people who come in expecting it never have it... it's usually people with severe (other symptoms) and we find it.  My own neuro said he'd only seen 3 cases in over 12 years of practice.  It's pretty rare.  There are not enough people in the USA with this disease to fill up a football stadium.  Try to think about it that way. 
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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Offline Nk904

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Re: 5 months and 1 week-als scare
« Reply #9 on: June 12, 2014, 07:10:48 PM »
Thank you for the input!
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Offline Nk904

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Re: 5 months and 1 week-als scare
« Reply #10 on: June 12, 2014, 08:51:32 PM »
Man this blows!
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Offline Nk904

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Re: 5 months and 1 week-als scare
« Reply #11 on: June 13, 2014, 02:20:23 PM »
Shameless bump. Anyone have sinus/ phlegm issues in the morning?
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