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Author Topic: Tongue twitching - why does the doctor say it's not normal?  (Read 5630 times)

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Offline joycecaroll

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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #101 on: June 09, 2014, 04:51:14 PM »
. . .

You can find a link to it through AboutBFS. I won't tell you which post because there's already enough *** fear cycling around and I won't provide an easy link for those people.

At least this way they'll have to sift through a mountain of 'benign fasciculation syndrome' and read a thread discussing it before actually finding it.

Edit: Is what I was about to post.
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #102 on: June 09, 2014, 05:02:52 PM »
God that paper still freaks me out.
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #103 on: June 09, 2014, 05:10:41 PM »
God that paper still freaks me out.

I don't get it. Was that the paper you were referring to?
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #104 on: June 09, 2014, 05:14:55 PM »
Yes.
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #105 on: June 09, 2014, 05:45:10 PM »
Actually that and another. The other isn't difficult to find. Please, anyone else, do not begin googling.

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Offline NytViolet

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #106 on: June 09, 2014, 05:56:42 PM »
Actually (although a bit technical for me) this paper reassured me (since I've had fascics for so many years). And again, if these four individuals were so remarkable that their histories are now published in the medical literature, it means that ridiculously slow progressions such as these are EXCEPTIONALLY RARE indeed!  Bottom line:  A good percentage of the population has fasciculations / twitches / cramping, etc., yet very few turn into *** (probably the same as the general population, otherwise, the diagnostic criteria would have changed). Just my take on it. 
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #107 on: June 09, 2014, 06:59:52 PM »
Alright. Hell with it.

The Walton study is flawed and MND specialists tend to wholly disagree with its findings. It was not a follow-up proceeding, but one specifically aimed at finding 'exceptional' cases and the total number of people assessed was never established.

It's 'unique' findings pretty much speak to the contrary of every study and physician account since.

There is another study, the 6% study, that is notoriously circulated on AboutBFS and here. This one is less inaccurate as it is misunderstood. I will not bother to explain its findings so long as no one has specific concerns about it because, honestly, I just don't want to. You can find dissections and interpretations on AboutBFS. Or ask Shawn; I'm pretty sure he was the one who actually addressed it best on AboutBFS.
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Offline adam4little

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #108 on: July 19, 2014, 06:00:14 PM »
I just want to say, as someone who discovered near constant, localized  tongue fascics when tongue is extended and believes he has seen the occasional worm like movement this has really freaked me out. Im not sure what else to say.
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Offline ShawnW

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #109 on: July 19, 2014, 06:19:49 PM »
Tongues often twitch when extended just like thighs pop and quiver when in a half squat.  That doesn't mean anything.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

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