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Author Topic: Tongue twitching - why does the doctor say it's not normal?  (Read 1371 times)

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Offline JER2911

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #75 on: June 09, 2014, 06:49:06 AM »
If that link doesn't work, let me know. It pasted kinda strange..
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Matthew 6:27  Who of you by worrying can add a single hour to his life?

Offline Rasalhauge

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #76 on: June 09, 2014, 07:55:01 AM »
So, based on the information in this thread my problems would be more or less equal to ALS. I have constant twitches in the tongue (even at rest, but not as prominent and it doesnt look like "true" fasciculations), and perceived speech problems (although mostly in my head according to my friends and family). Add to that an occasional swallowing difficulty and a feeling of always getting food stuck in the throat (could be globus due to anxiety though). Iīve been looked at by doctors (both regular doctors and specialist, the latter mainly in psych but had over 12 yrs experience).

All have concluded that all my physical symptoms can, and should, be attributed to severe depression and anxiety. But, the more I look at different sites the more I come to the conclusion that they must be wrong. Anxiety canīt possibly mimic ALS to the point of almost being siblings, right?

Iīve asked for an EMG but they concluded that I didnīt show anything that points to a MND or denervation and/or atrophy of tongue muscles. But how can constant/semi-constant twitches of the tongue not be of pathological value? I can move my tongue perfectly though, so I donīt think I have atrophy (yet).

Gaaaah, all this ALS-crap makes me insane. I canīt stand the fact that I think that they are indeed overlooking something obvious
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Actual diagnoses;

- OCD (HA and others)
- GAD
- Major depression
- IBS and Gastritis
- Hemisensory symptoms and somatorform disorder

Self diagnosed with;

Bulbar onset ALS, Limb onset ALS, Young onset Parkinsons disease, MS, Rheumatoid arthritis, muscular dystrophia, and so many more....

Offline ShawnW

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #77 on: June 09, 2014, 08:03:58 AM »
Looks like the site blew up while I was asleep...lol.  Nomnom did a good job answering all the questions not sure I can add much.  But, 24 years old worrying about an ultra rare presentation of a rare subset of an ultra rare disorder in a "doc is going to write up your case in a journal" kind of age group?  Most twitching of the tongue is not the kind *** specialists are looking for when people are worried about them.  Often the person has no idea they have them.  The tongue is a muscle like other muscles and they twitch.  BFS has a site with many tongue twitchers...they are ok.

And 7 months is being VERY conservative.  Bulbar is aggressive and can pull up a quote from an *** expert that says at 7 months you wouldn't be able to speak.  While there is always this case and that case (its the reason you shouldn't read case studies) most rapidly deteriorate in 2-3 months and many much sooner.

In no way do I believe your tongue twitches (if that is even what they are) represent anything bad.  So, settle down, you are ok and work on your anxiety.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Offline ShawnW

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #78 on: June 09, 2014, 08:05:57 AM »
So, based on the information in this thread my problems would be more or less equal to ALS. I have constant twitches in the tongue (even at rest, but not as prominent and it doesnt look like "true" fasciculations), and perceived speech problems (although mostly in my head according to my friends and family). Add to that an occasional swallowing difficulty and a feeling of always getting food stuck in the throat (could be globus due to anxiety though). Iīve been looked at by doctors (both regular doctors and specialist, the latter mainly in psych but had over 12 yrs experience).

All have concluded that all my physical symptoms can, and should, be attributed to severe depression and anxiety. But, the more I look at different sites the more I come to the conclusion that they must be wrong. Anxiety canīt possibly mimic ALS to the point of almost being siblings, right?

Iīve asked for an EMG but they concluded that I didnīt show anything that points to a MND or denervation and/or atrophy of tongue muscles. But how can constant/semi-constant twitches of the tongue not be of pathological value? I can move my tongue perfectly though, so I donīt think I have atrophy (yet).

Gaaaah, all this ALS-crap makes me insane. I canīt stand the fact that I think that they are indeed overlooking something obvious

No, actually none of your symptoms look like ***.  All your issues are perceived, and a quivery tongue isn't fasics of the tongue.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #79 on: June 09, 2014, 09:28:04 AM »
HEY JER. Bit of an honor. I actually had already read your post some time ago. It's one that I try to remind myself of when I have doubts, 'remember that one crazy girl on HA who talked herself into clinical weakness'.

Funny thing, if you read beingsarah's most recent posts, she did eventually come to realise it was all anxiety and thankfully she's doing better.

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Offline ShawnW

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #80 on: June 09, 2014, 09:30:22 AM »
I agree JER's story probably helped me more than any I read.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Offline JER2911

  • Jeremiah 29:11 For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.
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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #81 on: June 09, 2014, 09:39:29 AM »
Well then, glad to know my words of wisdom (from a very very bad place in time)...are of some help to others still :)

And I have no problem being "the crazy girl from AZ who talked herself into clinical weakness"...as long as it helps others realize it's possible!! :)
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Matthew 6:27  Who of you by worrying can add a single hour to his life?

Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #82 on: June 09, 2014, 09:41:39 AM »
Oh, and Rasal. I've followed your posts since your *** fear began. I agree completely with ShawnW here. I never suspected you had ***. Everything about your posts has convinced me that it is anxiety. You have absolutely no objective deficit.

Normally, people who are slurring/have bulbar onset are not the first to notice they're slurring. They often begin to compensate without realising (speaking slower) and are generally unaware that they sound off.

Rasal, YOU are not a good source of information about you.
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #83 on: June 09, 2014, 09:49:02 AM »
Not to mention hoarseness/alteration to voice/possible emotional liability often come succinctly with slurring. Even in TZDenver's suspected case (don't google this; no f***ing really, don't) he alluded to emotional liability and had clinical weakness.
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Online joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #84 on: June 09, 2014, 11:02:54 AM »
Not to mention hoarseness/alteration to voice/possible emotional liability often come succinctly with slurring. Even in TZDenver's suspected case (don't google this; no f***ing really, don't) he alluded to emotional liability and had clinical weakness.

Do you have a link to the study you referred to? Or a name?
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Offline Rasalhauge

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #85 on: June 09, 2014, 12:24:59 PM »
Ok, that part about hoarsness really scared the crap out of me. That is exactly my problem now, I can talk without slurring (at least according to others) but my voice get hoarse and strained in no time. Could hoarsness come from anxiety too? Anyone with the same problems, i.e. notice a hoarsness quite fast (and sore throat accompaning that)?

Is there any cause for hoarsness that isnīt ALS or some other MND? Actually I know there is, but my mind just blocks out everything in order to promote my fear of ALS even further. Iīm literally at the point of wanting to end this. I was hospitalized recently and they gave me infusions of Anafranil (Klomipramin) and some drug against psychosis and after that little trip Iīve felt even worse. I really canīt go on like this anymore=(
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Actual diagnoses;

- OCD (HA and others)
- GAD
- Major depression
- IBS and Gastritis
- Hemisensory symptoms and somatorform disorder

Self diagnosed with;

Bulbar onset ALS, Limb onset ALS, Young onset Parkinsons disease, MS, Rheumatoid arthritis, muscular dystrophia, and so many more....

Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #86 on: June 09, 2014, 01:49:51 PM »
Rasal, have you had a clinical neuro exam?
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Ph'nglui mglw'nafh Cthulhu R'lyeh

Offline Rasalhauge

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #87 on: June 09, 2014, 01:53:55 PM »
Rasal, have you had a clinical neuro exam?

Not in a while, last was 6 months ago. But Iīve had several doctors look at me from top to toe though, none finds anything out of the ordinary. Why?=)
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Actual diagnoses;

- OCD (HA and others)
- GAD
- Major depression
- IBS and Gastritis
- Hemisensory symptoms and somatorform disorder

Self diagnosed with;

Bulbar onset ALS, Limb onset ALS, Young onset Parkinsons disease, MS, Rheumatoid arthritis, muscular dystrophia, and so many more....

Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #88 on: June 09, 2014, 02:11:27 PM »
Because if something were wrong it would have been evidenced during examination. How long have you had this fear?
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Ph'nglui mglw'nafh Cthulhu R'lyeh

Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #89 on: June 09, 2014, 02:16:52 PM »
Joyce, you need to stop googling. I promise you will not find anything more reassuring than what is outlined in this thread. Been there. Spent weeks reading about ___ and misconception surrounding it.
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Ph'nglui mglw'nafh Cthulhu R'lyeh

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