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Author Topic: Tongue twitching - why does the doctor say it's not normal?  (Read 5636 times)

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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #70 on: June 09, 2014, 05:39:28 AM »
In case it happens, because I'm pretty sure it will, if you wake up tomorrow and twitch everywhere, do not freak out.

That very often happens when we develop a fear of ***.

Remain calm if it happens. Come to these forums. Make a thread about it. PM me. Anything. Just stay calm. If you flip your sh*t it'll make it worse and there's still no reason for legitimate concern.


Thank you so much.

I do twitch everywhere, but that started like a month ago to. I'm not scared about that, just about the tongue. Is tongue twitches more concerning than other twitches?

I just can't stop thinking about what it would be like if I had it. It feels like I can't be happy about anyhing.
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #71 on: June 09, 2014, 05:52:33 AM »
I understand completely.

No, tongue twitches are not anymore concerning than other twitches. I get them infrequently, too.

I'm definitely coming through this with a new perspective on life. I just hope I get to apply it, y'know? And odds are I will, and that makes me happy. I'm not religious. I can't say, 'everything happens for a reason', but you can ascribe those events your own reasons.

After this is over, consider the people who are afflicted. Not just with ***, but anything that severely squanders quality of life or duration. Take your knowledge of their fear and realise that anything, but the pursuit of happiness is unjustifiable. Petty emotions, for me, are a thing I'll leave behind following these events.

I've also come to understand the exact magnitude and power my mind has over my body. This, if there is indeed nothing wrong with me and the neurologist today assures me of that, will end my anxiety by arming with an invaluable insight over what fear can do to me. It's been a terribly frightful experience, but I find it important that I take something good away from this and I hope you do as well.
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #72 on: June 09, 2014, 06:00:52 AM »
And god, I miss my life.

I used to think of the every day tedium as a chronic torture. Now, I can't wait to get back to it.

It's really strange. I abhorred the thought of a white-picket-fence lifestyle; the thought of having children was utterly revolting. Now, that's all I really want. I have a beautiful girlfriend who I've been absent from and hobbies that I have not gotten to enjoy and goals that I've not yet achieved and those banal, formerly boring, things are all I wish for. And I will be certain that I never forget what this fear has revealed to me.
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Offline JER2911

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #73 on: June 09, 2014, 06:39:24 AM »
http://www.anxietyzone.com/index.php/topic,50829.msg300910.html#msg300910

Read this...scroll down about 7 and 9 post into it...  I'm still alive and kicking...and would be willing to wager...neither of you have ALS ;-)
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Matthew 6:27  Who of you by worrying can add a single hour to his life?

Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #74 on: June 09, 2014, 06:45:34 AM »
And god, I miss my life.

I used to think of the every day tedium as a chronic torture. Now, I can't wait to get back to it.

It's really strange. I abhorred the thought of a white-picket-fence lifestyle; the thought of having children was utterly revolting. Now, that's all I really want. I have a beautiful girlfriend who I've been absent from and hobbies that I have not gotten to enjoy and goals that I've not yet achieved and those banal, formerly boring, things are all I wish for. And I will be certain that I never forget what this fear has revealed to me.

I can truly relate to this! I feel like my life has been on hold ever since this started (about 3 months ago). I'm studying to be a nurse, and had to quit school do to my worries.

SpringerLink - Journal of Neurology, Online First
Is this the study you talked about?

If not, would you be able to send it to me?
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Offline JER2911

  • Jeremiah 29:11 For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.
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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #75 on: June 09, 2014, 06:49:06 AM »
If that link doesn't work, let me know. It pasted kinda strange..
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Matthew 6:27  Who of you by worrying can add a single hour to his life?

Offline Rasalhauge

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #76 on: June 09, 2014, 07:55:01 AM »
So, based on the information in this thread my problems would be more or less equal to ALS. I have constant twitches in the tongue (even at rest, but not as prominent and it doesnt look like "true" fasciculations), and perceived speech problems (although mostly in my head according to my friends and family). Add to that an occasional swallowing difficulty and a feeling of always getting food stuck in the throat (could be globus due to anxiety though). Iīve been looked at by doctors (both regular doctors and specialist, the latter mainly in psych but had over 12 yrs experience).

All have concluded that all my physical symptoms can, and should, be attributed to severe depression and anxiety. But, the more I look at different sites the more I come to the conclusion that they must be wrong. Anxiety canīt possibly mimic ALS to the point of almost being siblings, right?

Iīve asked for an EMG but they concluded that I didnīt show anything that points to a MND or denervation and/or atrophy of tongue muscles. But how can constant/semi-constant twitches of the tongue not be of pathological value? I can move my tongue perfectly though, so I donīt think I have atrophy (yet).

Gaaaah, all this ALS-crap makes me insane. I canīt stand the fact that I think that they are indeed overlooking something obvious
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Offline ShawnW

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #77 on: June 09, 2014, 08:03:58 AM »
Looks like the site blew up while I was asleep...lol.  Nomnom did a good job answering all the questions not sure I can add much.  But, 24 years old worrying about an ultra rare presentation of a rare subset of an ultra rare disorder in a "doc is going to write up your case in a journal" kind of age group?  Most twitching of the tongue is not the kind *** specialists are looking for when people are worried about them.  Often the person has no idea they have them.  The tongue is a muscle like other muscles and they twitch.  BFS has a site with many tongue twitchers...they are ok.

And 7 months is being VERY conservative.  Bulbar is aggressive and can pull up a quote from an *** expert that says at 7 months you wouldn't be able to speak.  While there is always this case and that case (its the reason you shouldn't read case studies) most rapidly deteriorate in 2-3 months and many much sooner.

In no way do I believe your tongue twitches (if that is even what they are) represent anything bad.  So, settle down, you are ok and work on your anxiety.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Want to know how to address your anxiety?
http://www.anxietyzone.com/index.php/topic,93402.msg521266.html#msg521266

Offline ShawnW

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #78 on: June 09, 2014, 08:05:57 AM »
So, based on the information in this thread my problems would be more or less equal to ALS. I have constant twitches in the tongue (even at rest, but not as prominent and it doesnt look like "true" fasciculations), and perceived speech problems (although mostly in my head according to my friends and family). Add to that an occasional swallowing difficulty and a feeling of always getting food stuck in the throat (could be globus due to anxiety though). Iīve been looked at by doctors (both regular doctors and specialist, the latter mainly in psych but had over 12 yrs experience).

All have concluded that all my physical symptoms can, and should, be attributed to severe depression and anxiety. But, the more I look at different sites the more I come to the conclusion that they must be wrong. Anxiety canīt possibly mimic ALS to the point of almost being siblings, right?

Iīve asked for an EMG but they concluded that I didnīt show anything that points to a MND or denervation and/or atrophy of tongue muscles. But how can constant/semi-constant twitches of the tongue not be of pathological value? I can move my tongue perfectly though, so I donīt think I have atrophy (yet).

Gaaaah, all this ALS-crap makes me insane. I canīt stand the fact that I think that they are indeed overlooking something obvious

No, actually none of your symptoms look like ***.  All your issues are perceived, and a quivery tongue isn't fasics of the tongue.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Want to know how to address your anxiety?
http://www.anxietyzone.com/index.php/topic,93402.msg521266.html#msg521266

Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #79 on: June 09, 2014, 09:28:04 AM »
HEY JER. Bit of an honor. I actually had already read your post some time ago. It's one that I try to remind myself of when I have doubts, 'remember that one crazy girl on HA who talked herself into clinical weakness'.

Funny thing, if you read beingsarah's most recent posts, she did eventually come to realise it was all anxiety and thankfully she's doing better.

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