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Author Topic: Tongue twitching - why does the doctor say it's not normal?  (Read 5240 times)

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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #40 on: June 09, 2014, 03:07:04 AM »
That ONE case of someone with health anxiety having *suspect* MND (not even ShawnW knows of this case because it just happened and I browse the ***forums way too much) she had slurred speech -- as pointed out by others -- with twitching.
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #41 on: June 09, 2014, 03:15:06 AM »
Put it this way, of the thousands of users on this site and AboutBFS who had twitching, two have actually had suspect ***. One was 37. The other 27. The first had all kinds of issues (slurring, obvious clinical tongue weakness) and a poorly conducted 'clean' EMG. The other had slurring and, oddly, and it makes me think she has MNM, not ***, leg atrophy + clinical weakness presenting as an inability to hop on one foot.

*3, forgot the one. She had UMN signs though (hyperreflexia).

Essentially, had any one of these people had a thorough clinical by a neurologist, it would've been apparent in the very beginning something was amiss. And truly, if you want the ultimate peace-of-mind, talk to a neuro and request an exam.
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #42 on: June 09, 2014, 03:19:00 AM »
But the 6% that began with reported twitching might have  had other symptoms as well, right? Why else would the get the diagnosis? And the twitching must have been pretty persistent, why else would you go to the dr? Unless you're a hypochondriac of course :)
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #43 on: June 09, 2014, 03:23:58 AM »
Well, to be fair, twitching is a pretty disturbing symptom even for normies.

It was a study, I have no idea how they signed up. I do know that none of the 6% in that study had a history with anxiety.

And those 6% were determined to be 'benign' before examination by a MND specialist, but after were concluded to have 'suspect MND' that later developed into obvious MND within 7 months (probably some time before).
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #44 on: June 09, 2014, 03:26:52 AM »
Still, bare in mind the other 94% were fine. I wish I knew the ages of those 6%. I have a strong feeling they were all between 40-70.
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #45 on: June 09, 2014, 03:27:05 AM »
MND as in ALS?
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #46 on: June 09, 2014, 03:28:14 AM »
Yes.
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Offline joycecaroll

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #47 on: June 09, 2014, 03:30:49 AM »
Still, bare in mind the other 94% were fine. I wish I knew the ages of those 6%. I have a strong feeling they were all between 40-70.

Oh! I thought you meant that every year 6% of bulbar onset ALS patients started with twitches in the tongue? But no?
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #48 on: June 09, 2014, 03:31:34 AM »
Those are not the odds you should be focused on though.

Factor age, rare presentation, the fact that you're a female (more common in males; 60%), and that it is a rare disease to begin with 1/50,000 with .03% occurring before age 40.
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Offline thenomnomnomicon

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Re: Tongue twitching - why does the doctor say it's not normal?
« Reply #49 on: June 09, 2014, 03:32:37 AM »
Lol, no. Bulbar makes up 25% of all cases. It's rare even in ***. Only respiratory and torso are 'more' rare. Limb makes up like 60% of cases.
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