the thing that makes me so mad about BFS is everyone says "it's anxiety" and stress is causing it. NO IT DOES NOT! It is an autoimmune neurological disorder. SO YOU HAVE NO CONTROL OVER IT! Now, there is a difference from BFS and just someone that say has the occasional eyelid twitch... now that, that can be caused by stress after a traumatic event or just plain old fatigued muscles from being on the computer too much. What i experience is full body BFS all day long none stop but i also get stiffness with it and the sleep disorder with it. Sometimes my muscles just stiffen up, the other day happened at work, had no control over my hand, and I spilled my coffee all over the place. My hand kept on wanting to close up in a fist position. I have a hard time walking when the temp drops below 65 because my always tight hip muscles get extremely tight making it hard to walk. I also get depressed breathing... feeling like i cant get enough oxygen (because it affects the muscles used for respiration) though i have not had that in a few weeks since i have been on a low potassium diet. I have had elevated creatinine for over a year now and that is common with this. How is that anxiety? IT IS NOT. I am not anxious or depressed. IF anything, people saying it is anxiety made me worse. I felt no one believed me and i blamed myself i guess. Finally, i came to except it is just something i have to live with forever. It is rare. Most doctors know nothing about it. It is the mildest form of neuromyotonia. It has nothing to do with ALS or MS. It happens likely after infection with Group A Strep or viral infection (happens within a 6 month period similar to what happens with PANDAs in pediatric patients). It NEVER progresses. Getting sunlight and not eating a lot of vegetables helps me (avoiding things too high in potassium or if i want them just only a few bites).