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Author Topic: Als fear  (Read 189 times)

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Offline Roman

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Als fear
« on: May 28, 2014, 08:34:23 AM »
I have been struggling with this for 6 months. I believe I have als symptoms and in six months have seen 6 neuros and 2 als specialists, all of which said I don't have it. I have had 2ct scans one with contrast one without and 2 mris both with contrast one of my brain and one of my cervical spine. All the brain scans were normal. I then had an emg only on my right limbs, c7, l4 and my left thenar. The results came back that I have carpel tunnel in both arms with no positive sharp waves fribs or fasics on limbs tested. I also have a neuropathy in my legs. My mris came back with severe spondylosis at c5,6,7 with sever flattening of the ventral chord at c5. I have been noticing that my left hand and forearm looks smaller that the other one, possibly atrophy. The final als dr. Didn't even make a big deal out of it nor did he want to see me again to evaluate. I can't stop thinking that the emg was only done on my right side and my left thenar, which is starting to get ting painful as well as my left shoulder tricep and forearm it feels like I've been lifting weights but haven't done anything. If anybody reading this could ease my fears alittle because now every dr. Including 2 als specialists think I'm crazy. I can't go on like this I have all my strength I scored a 5+ on every strength given. Why don't I believe my dr.s I have great insurance so I could keep finding dr.s and keep going but I don't want to I'm sick of giving myself strength tests and seeing dr.s . I'm a police officer and have encountered sooooooo many dangerous situations and dealt with them fine how come I can't beat this fear it's terrible someone please help. I want another full emg on all of my body.
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Offline ShawnW

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Re: Als fear
« Reply #1 on: May 28, 2014, 09:52:42 AM »
Roman, you have had two guys who ALL they do is look at MND.  Guys who don't get there without significant intelligence and understanding of disease processes.  They don't miss ***.  You are actually fortunate in one sense...you have an answer for much of your problems.  Cervical myleopathy can mimic *** and we know you have that.  It's actually the most common reason someone would have atrophy or weakness.  I have said this before over at the BFS board but it bears saying again.  Even if someone comes in with asymmetric reflexes, true clinical weakness, and atrophy of just one limb, it's still mathematically more likely to be something other than ***.  The most common is carpal tunnel and cervical myelopathy.  You have both.  At this point you have no reason to be afraid.  Deal with what you know you have.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Want to know how to address your anxiety?
http://www.anxietyzone.com/index.php/topic,93402.msg521266.html#msg521266

Offline Roman

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Re: Als fear
« Reply #2 on: May 28, 2014, 10:36:49 AM »
Shawn thanks maybe it's time to address my neck issues and go in another direction instead of obsessing about als. I need to take care of the things I definitely do have and stop worrying about the things I may never thanks a lot.
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Offline ShawnW

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Re: Als fear
« Reply #3 on: May 28, 2014, 11:16:28 AM »
Shawn thanks maybe it's time to address my neck issues and go in another direction instead of obsessing about als. I need to take care of the things I definitely do have and stop worrying about the things I may never thanks a lot.

That's a $$$ post.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Want to know how to address your anxiety?
http://www.anxietyzone.com/index.php/topic,93402.msg521266.html#msg521266

Offline Lindsay2427

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Re: Als fear
« Reply #4 on: May 28, 2014, 12:14:51 PM »
Hi roman! I just had to post because you were such a support to me during my anxiety. It sounds like you have gone above and beyond to prove you do not have what you fear. After all of those CTs and MRIs there is no doubt in my mind they would have caught ***. You know as well as I do questioning your doctors and doubting is one of the many horrible things that comes with health anxiety. Please rest assured of your diagnosis of the benign cause of your symptoms. 
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Offline jilllayy

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Re: Als fear
« Reply #5 on: May 28, 2014, 04:01:31 PM »
I have this same fear and after my two emgs of right arm right leg left leg an tongue my symptoms have gone to my left arm. Only one that wasnt tested. Its amazing what the mind can do
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