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Author Topic: Just saw gastroenterologist and scared  (Read 335 times)

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Offline nole23

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Just saw gastroenterologist and scared
« on: May 20, 2014, 08:42:54 PM »
I just saw the gastroenterologist for my follow up appointment. I have been having weird stomach issues and really thought I would leave feeling reassured, but no. He told me that they found undigested fat in my stool and want to perform a colonoscopy and gastroscopy. I asked what could cause this and he said either a problem in the small intestine or the pancreas... Does he mean cancer? What problem??? I don't think it can be coeliac as I am already completely gluten free. My diet is good, I'm a healthy weigh... There were so many questions I wanted to ask but of course I froze in the moment and didn't ask any! Now I'm feeling really anxious  >:( Had anyone ever had or heard of I digested fat in stool? My stools have been fairly pale and vary in consistency (sorry TMI). I'm scared. And now I have to wait 2 weeks for the procedure.
I should also mention that my blood tests for kidney and liver function were normal. If I had something really bad would they be a little off? My CBC was also normal and my inflammation markers were normal. Please help.
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Offline Lindsay2427

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Re: Just saw gastroenterologist and scared
« Reply #1 on: May 20, 2014, 08:54:05 PM »
No idea what that could be but try not to stress. Do your stools float? Sometimes that's a sign of fatty or gassy stool.
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Offline jayorz128

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Re: Just saw gastroenterologist and scared
« Reply #2 on: May 20, 2014, 09:12:27 PM »
Unfortunately most speciality doctors are not the kind to give you any type of reassurance. Call your family doctor and see if he/she can answer your questions and give you some reassurance.
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Offline nole23

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Re: Just saw gastroenterologist and scared
« Reply #3 on: May 20, 2014, 09:16:55 PM »
Yeah my stools do float sometimes. The gastroenterologist said he thinks he will find something that he can fix 100% which did make me feel a bit better. But then he mentioned pancreas and I freaked. It's such a scary organ that pancreas! Stomach issues are the worst. I'm so worried :(
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Offline nole23

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Re: Just saw gastroenterologist and scared
« Reply #4 on: May 20, 2014, 09:23:43 PM »
Can I also ask: if it were something horrible like pancreatic C would my blood tests suggest it? Would my liver or kidney function tests be out of whack? I really hate HA...
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Offline IAMHEALTHY

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Re: Just saw gastroenterologist and scared
« Reply #5 on: May 21, 2014, 01:07:11 AM »
Do or did your stools have a unique odor sense this began?

Does it smell sour or like sulfur and eggs?

Also what was the appearance of your stool?

I dont know if I have this.aswell

Thanks in advance, I apologize if you dont want to answer

wishing you health and stremgth op :)

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Offline nole23

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Re: Just saw gastroenterologist and scared
« Reply #6 on: May 21, 2014, 04:42:52 AM »
Hi iamhealthy,
I'll PM you with details (might be a bit TMI for forum chat)

I went to my GP and asked her to explain it all to me. She said it's a malabsorption issue and was not concerned about malignancies or anything like that. So I feel a bit better but it's in my nature to worry and obsess. Just trying to stay away from google.
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Offline Sunlover

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Re: Just saw gastroenterologist and scared
« Reply #7 on: May 21, 2014, 05:58:41 AM »
jayorz is right - specialists DO NOT give reassurance I think they purposely make you worry!  I went to an eye specialist for a weird problem with my eye (he found nothing with that, but found a dark pigment on my retina - I asked what it could be and he didn't HESITATE to say, "could be melanoma" !!!  I freaked until I went to another doctor who said it's "probably not that", I ended up stressing so bad and losing 20% of my body weight in ONE month over it.   Turns out it was merely a scar from an old retinal hole that closed up. So try not to stress (I KNOW, I KNOW!  It's not easy to do) but it's probably something totally benign!) - it may be something as simple as just not having enough acid in your stomach - THAT would cause the fatty stool.  And not to use the catchall here, but ANXIETY can cause stool to pass through too quickly and not absorb things it supposed to and fat will pass out in it.  So try to stay calm and know that there are a LOT more benign things it can be rather than horrible stuff.
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Offline livelaughlove

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Re: Just saw gastroenterologist and scared
« Reply #8 on: May 21, 2014, 06:08:03 AM »
HI I work in gastro and you should not worry. So, they found fecal fat in your stool. I actually went through the same thing and never got an answer (i am a patient and i also work there). For me, my small bowel biopsy when i had upper endoscopy looked like celiac disease becuase i had crypt hyperplasia and increased duodenal IELs so i was Marsh 2. IN the differential it could be systemic autoimmune disease, SIBO, NSAID use, H pylori, celiac, crohn's. Well i was negative for everything and don't use NSAIDS so i never got an answer. I do not carry DQ2 and DQ8 genes therefore i cannot have celiac. I don't use Nsaids. I had lactulose breath test which came back suggestive of small bowel bacterial overgrowth. That's only suggestive. So i never got a real answer. I have had WBCs in my stool and fecal lactoferrin high... that is seen in inflammatory bowel and infections... but my colonoscopy with random biopsies is completely negative. I had my stool checked for fecal fat and it was negative. I know what you are going through and you may never get an answer. I never fully got a definitive answer. Very frustrating. So i just do my own thing and eat healthy. The answers aren't out there for people with weird problems because science is just not there yet. Since they found fecal fat in your stool it has nothing to do with cancer. It's more from malabsorption or that the pancreas is not producing as many digestive enzymes. That happens with age, with alcohol abuse, with people that have high triglycerides/cholesterol... obese people that continue to eat a high fat diet, cystic fibrosis, stuff like that. Your problem could be as simple as just taking a pancreatic enzyme supplement to help you digest fats in foods. Since you are gluten free.. the only test you could do to exclude a celiac possibility would be genetic markers for it to see if you carry DQ2 and DQ8 genes, but even if you do, that is still not definitive unless you also have a biopsy for it, and for that, you would also need to go back on gluten and then biopsy. It sucks when you have strange problems. I have very odd problems, and i work in the medical field, and i know the answers just aren't there fully and it is very frustrating. SO i gave up trying and now i just do my own thing... eat clean and healthy, avoid what bothers me, and do stretching and stuff like that.
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Offline nole23

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Re: Just saw gastroenterologist and scared
« Reply #9 on: May 21, 2014, 08:02:57 AM »
Livelaughlove, your post was SO helpful! And sunlover, I was thinking about the low Hcl possibilIty- I really hope it's that!
I so know how frustrating it is to never get an answer. I do everything right, eat healthy, don't drink alcohol, take vitamins, exercise... And yet my digestion is NOT ok and no-one can tell me why. I do actually have the coeliac gene (but only one of them) and have been told that I am mildly lactose intolerant. Now they want to test for coeliac and I have to eat gluten for two weeks until the endoscopy, which sucks because it makes me feel so rotten. Plus I don't think that's adequate time to even do enough damage for coeliac to show up in a biopsy, so I'm questioning it, but will do what the doc wants and hopefully at some point I'll stop goin around in circles. I was pretty much like you livelaughlove, just avoiding things I knew didn't agree with me, eating healthy, stretching. And then I started feeling nauseous, gassy etc and hopped right back on the GI bandwagon.
The doc did blood tests for inflammation which came back normal and he checked for signs of crohns which were clear. I really hope it's something simple. Would love to just be able to eat a meal and not feel the consequence! And I wish it wouldn't cause so much anxiety!!
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Offline Sunlover

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Re: Just saw gastroenterologist and scared
« Reply #10 on: May 21, 2014, 09:04:25 AM »
Not enough acid WILL cause GI problems.  You need an adequate amount of acid to digest your foods.  Not enough acid you end up with bad indigestion, certain vitamins and minerals, etc cannot be broken down and absorbed into the blood (they end up being passed right out of the body) - sounds like it's the doctor game going on there (let's test for EVERYTHING under the sun THEN we'll do a PH test which seems to be one of the more obvious/easy choices (but I think they'll do that with the endoscopy.)
Dr. Sunlover is diagnosing very low PH. :winking0008:
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Offline IAMHEALTHY

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Re: Just saw gastroenterologist and scared
« Reply #11 on: May 21, 2014, 12:04:13 PM »
HI I work in gastro and you should not worry. So, they found fecal fat in your stool. I actually went through the same thing and never got an answer (i am a patient and i also work there). For me, my small bowel biopsy when i had upper endoscopy looked like celiac disease becuase i had crypt hyperplasia and increased duodenal IELs so i was Marsh 2. IN the differential it could be systemic autoimmune disease, SIBO, NSAID use, H pylori, celiac, crohn's. Well i was negative for everything and don't use NSAIDS so i never got an answer. I do not carry DQ2 and DQ8 genes therefore i cannot have celiac. I don't use Nsaids. I had lactulose breath test which came back suggestive of small bowel bacterial overgrowth. That's only suggestive. So i never got a real answer. I have had WBCs in my stool and fecal lactoferrin high... that is seen in inflammatory bowel and infections... but my colonoscopy with random biopsies is completely negative. I had my stool checked for fecal fat and it was negative. I know what you are going through and you may never get an answer. I never fully got a definitive answer. Very frustrating. So i just do my own thing and eat healthy. The answers aren't out there for people with weird problems because science is just not there yet. Since they found fecal fat in your stool it has nothing to do with cancer. It's more from malabsorption or that the pancreas is not producing as many digestive enzymes. That happens with age, with alcohol abuse, with people that have high triglycerides/cholesterol... obese people that continue to eat a high fat diet, cystic fibrosis, stuff like that. Your problem could be as simple as just taking a pancreatic enzyme supplement to help you digest fats in foods. Since you are gluten free.. the only test you could do to exclude a celiac possibility would be genetic markers for it to see if you carry DQ2 and DQ8 genes, but even if you do, that is still not definitive unless you also have a biopsy for it, and for that, you would also need to go back on gluten and then biopsy. It sucks when you have strange problems. I have very odd problems, and i work in the medical field, and i know the answers just aren't there fully and it is very frustrating. SO i gave up trying and now i just do my own thing... eat clean and healthy, avoid what bothers me, and do stretching and stuff like that.

I guess but I have this worry aswell. I hope it isn't PC, but of the pancreas isnt working properly then it's just not that simple. Im also afraid of chronic pancreatitis.

Im hoping it's anxiety or a problem caused by antibiotics
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