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Author Topic: What I believe will be my last post concerning *** fear. *Possible trigger*.  (Read 748 times)

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Online thenomnomnomicon

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There are some very rare case studies of people who twitched shortly before disease progression. 


I'd trust since I saw a neurologist two days after twitching began and had an EMG I'm probably still in the clear.
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Online ShawnW

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There are some very rare case studies of people who twitched shortly before disease progression. 


I'd trust since I saw a neurologist 2 days after it began and had an EMG I'm probably still in the clear.

You are good.
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Online thenomnomnomicon

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You're a good guy, dude. You need a medal. Someone get this guy a medal.

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Online ShawnW

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You're a good guy, dude. You need a medal. Someone get this guy a medal.

No medal needed.  It helps me to get out of my own head when I help others.  And I have battled this beast you are battling and it's a bad one.  Glad to be of help.
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Offline Nk904

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Shawn, if I self induce cramping in my big toes (stretch only the big toe so it goes below the rest of the toes) they take like 5 seconds to slowly re align back with the other toes unless I forcefully make them. What's up with that? Freaky. They sort of click back into their right spot slowly and surely.
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Online thenomnomnomicon

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I went ahead and did the math and young-onset (before age 38-40, whatever it was) is 1 in 450,000. This is an extremely hyperbolic estimate. Actual occurrence is likely closer to 1 in 700,000-ish. The type of onset documented in those case studies, assuming early-onset, is far more rare than 1 in a million. Like, 50 million, maybe.
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Offline Nk904

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Also, it'll twitch a few times when I do the big toe self inducing :3
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Online ShawnW

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Shawn, if I self induce cramping in my big toes (stretch only the big toe so it goes below the rest of the toes) they take like 5 seconds to slowly re align back with the other toes unless I forcefully make them. What's up with that? Freaky. They sort of click back into their right spot slowly and surely.

It's that microtetany phenomenon I see with hyperexcitable nervous systems possibly coupled with chronic hyperventilation.  Its a state where the muscle likes to stay contracted when you try to induce a cramp.  At my worst, I was able to do things similar to this with my wrists...my right specifically which had a clean EMG.
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Online ShawnW

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I went ahead and did the math and young-onset (before age 38-40, whatever it was) is 1 in 450,000. This is an extremely hyperbolic estimate. Actual occurrence is likely closer to 1 in 700,000-ish. The type of onset documented in those case studies, assuming early-onset, is far more rare than 1 in a million. Like, 50 million, maybe.

That sounds about right.  It's a crazy small number specifically in that age group.
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Offline Nk904

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And twitching after self induced cramps?
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Online ShawnW

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And twitching after self induced cramps?

Very common.
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Online ShawnW

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And twitching after self induced cramps?

BTW: I drank an extra cup of coffee today and that's all my body needed to cramp and twitch after flexing a muscle group....Pretty much any muscle group.
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Offline Nk904

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See I don't have coffee or anything else. I eat pretty well. I don't get it, Shawn.
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Offline Nk904

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Some twitches I see and feel. Some are long and last for a few minutes while there hit once and are gone. Some I feel and can't see. Some twitches I can and can't feel. This makes no sense. I heard patients don't feel them. If I can see some but not feel them, what's that mean? Not good..
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Online ShawnW

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Some twitches I see and feel. Some are long and last for a few minutes while there hit once and are gone. Some I feel and can't see. Some twitches I can and can't feel. This makes no sense. I heard patients don't feel them. If I can see some but not feel them, what's that mean? Not good..

You have probably also heard those with brain tumors have headaches.  If you have a headache does that mean you have a brain tumor?  Brother you are engaged in catastrophic thinking.  I can't see all my twitches.  Most with BFS can't see all their twitches.  I could name specialist after specialist who state the nature of the twitch means nothing.  The only thing that means something?  Weakness...atrophy.  Even then *** is wayyy down on the list of differential diagnosis.  Most of the time it's coming from the spine...like a disc.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

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