It's been a while since I posted as I have been doing better with the HA and generalized symptoms. However, I could use some advice. Here is the background. I am a 30 year old woman, and BRCA 2 positive (for those unfamiliar, this means my risk of breast cancer throughout my lifetime is approx. 60%). Oddly, I do not have a strong family history of breast cancer (both mother's and father's sisters, as well as maternal great-grandmother had BC, no one under 50--although both aunts were around 50 when diagnosed). While my doctors agree that there may be other factors we don't know of that influence penetrance of the gene, they said I could not jump to that conclusion about my family esp. because there are not that many women in it, which might account for the low number of women in my family with breast cancer. (the gene comes from my mom's side so my dad's sister's cancer was most like sporadic [non-genetic] BC).
Now, I am terrified, absolutely terrified, of breast cancer. I have read a lot about it and am aware that a lot of common myths aren't true--for instance, all we have to do is catch it early and you're fine; mammograms save lives, etc. It's now known that many forms of the disease are simply very aggressive from the get-go and are more or less destined to kill, regardless of the point at which you catch them. I have a mammogram and MRI every six months because of my high risk factor. When I am due for one of those, I am anxious for weeks before and usually in full-blown panic for 24 hours prior.
My fear and anxiety is so great that I am considering a prophylactic mastectomy so I basically don't have to worry anymore. However, I don't know if this is overreacting/reasonable. I do plan to have children and of course would like to breast feed, but on the other hand am not at that point in my life now, and am not sure if I am willing to wait just for that. I also do care about my appearance--of course I would have reconstruction but I'm also aware it might not be the same and also is sort of traumatizing to have your body parts removed. I am sure that would be psychologically difficult for me. I would like some advice from others about whether what I am considering is reasonable, or not. Thank you so much for any help.