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Offline Nk904

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Four months this Monday
« on: April 30, 2014, 06:59:08 PM »
This Monday will mark four months of my nonstop calf twitching. I know they'll still be there come Monday, so why not celebrate? Four months of twitching in my calfs (mainly left) and other spots not as frequent has to definitely tell me I don't have ALS. While I've read some stories about doctors saying wait three months, four months, six months and even eight months. I personally believe that if this was the big one, I'd have experienced weakness by now (knock on wood). Trying to get my anxiety  under control. I feel like this is a big hurdle! Accept what's happening and be positive! Thank you everyone who's helped me on here!
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Offline Nk904

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Re: Four months this Monday
« Reply #1 on: April 30, 2014, 07:01:29 PM »
I'd also like to mention I refuse to get an EMG and spend more money on potentially health anxiety issues. I believe this is also a breaking point for us HA sufferers. Three doctors visits roughly three weeks after the twitching and all good neuro exams point away from ALS. I'm also 22.
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Offline Nk904

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Re: Four months this Monday
« Reply #2 on: April 30, 2014, 08:37:21 PM »
 :P
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Offline Nk904

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Re: Four months this Monday
« Reply #3 on: May 01, 2014, 11:56:19 AM »
Geeze no encouragement
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Offline Anxiousmind77

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Re: Four months this Monday
« Reply #4 on: May 01, 2014, 01:58:41 PM »
That's the spirit! Keep it up my friend. Positivity is key :)
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Offline potternut

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Re: Four months this Monday
« Reply #5 on: May 01, 2014, 03:11:51 PM »
I first noticed twitching when I was 15.  I just turned 46 and no ALS!  I notice it more when I'm anxious and/or tired.  It has never gone away and it has never gotten worse. 

Stay positive!  You're fine.
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It does not do to dwell on dreams and forget to live.

Offline greend

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Re: Four months this Monday
« Reply #6 on: May 01, 2014, 03:23:15 PM »
Nk, in my opinion you are doing the right thing by not paying for and EMG.  I wouldn't either.  Also, repeated doctor visits only increase anxiety, I know.  I will be seeing a neurologist in June and I really wish I hadn't started this whole process.  It is freaking me out.

You are handling your twitching commendably.   :happy0151:
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Offline Nk904

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Re: Four months this Monday
« Reply #7 on: May 01, 2014, 04:10:21 PM »
That's the spirit! Keep it up my friend. Positivity is key :)

Thanks!!
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Offline Nk904

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Re: Four months this Monday
« Reply #8 on: May 01, 2014, 04:11:27 PM »
I first noticed twitching when I was 15.  I just turned 46 and no ALS!  I notice it more when I'm anxious and/or tired.  It has never gone away and it has never gotten worse. 

Stay positive!  You're fine.

Eh, mine feels worse but it's not that bad. I've developed small cramps but it is what it is..
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Offline Nk904

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Re: Four months this Monday
« Reply #9 on: May 01, 2014, 04:12:20 PM »
Nk, in my opinion you are doing the right thing by not paying for and EMG.  I wouldn't either.  Also, repeated doctor visits only increase anxiety, I know.  I will be seeing a neurologist in June and I really wish I hadn't started this whole process.  It is freaking me out.

You are handling your twitching commendably.   :happy0151:

What are you going for? Well, it's been four months of twitching and small cramps so I figure I'd be weak by now if it were serious. Knock on wood.
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Offline greend

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Re: Four months this Monday
« Reply #10 on: May 01, 2014, 05:24:22 PM »
I am going to the neurologist because I get a prickly sensation in the skin of both of my legs and a surging feeling through my chest. I have had these symptoms for a long time and it is very annoying.
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Offline Nk904

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Re: Four months this Monday
« Reply #11 on: May 01, 2014, 05:44:04 PM »
Greend, I wish you the best of luck. If it's been a whole I'm sure it's nothing bad. I'd bet on it!
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Offline ShawnW

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Re: Four months this Monday
« Reply #12 on: May 01, 2014, 07:55:07 PM »
I have been twitching for about the same amount of time.  I have seen one study that said 6% of those with the grandpapi start with twitching.  But, an expert in the field said in 40 years of practice he has never seen that...and that's all he sees.  Twitching always follows weakess in those cases. 
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

Offline Nk904

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Re: Four months this Monday
« Reply #13 on: May 01, 2014, 10:10:41 PM »
I have been twitching for about the same amount of time.  I have seen one study that said 6% of those with the grandpapi start with twitching.  But, an expert in the field said in 40 years of practice he has never seen that...and that's all he sees.  Twitching always follows weakess in those cases.


Did you actually see that survey? I'm sure it was online and skewered. I'm sure that same survey those people got weakness within four months time. I think we are ok. What area is your twitching and how bad? Also, grandpappi start?
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Offline ShawnW

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Re: Four months this Monday
« Reply #14 on: May 02, 2014, 07:37:30 AM »
I have been twitching for about the same amount of time.  I have seen one study that said 6% of those with the grandpapi start with twitching.  But, an expert in the field said in 40 years of practice he has never seen that...and that's all he sees.  Twitching always follows weakess in those cases.


Did you actually see that survey? I'm sure it was online and skewered. I'm sure that same survey those people got weakness within four months time. I think we are ok. What area is your twitching and how bad? Also, grandpappi start?

The subspecialist of 40 years treats 600 people at a time with *** and has never seen that in his entire career.  That tells me all I need to know.  He said once twitching starts there are always abnormalities on physical.
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My insight, thoughts, experiences or advice that may be posted in this forum are not meant as a substitution for the advice of your physician.

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