Hello. I'm fairly new here and often come here to "talk myself off the ledge" as I'm a diagnosed hypochondriac in treatment. It all started with a fear of MS and I want to share my story because it will help some/many of you afraid of this disease. At age 12, my heel went numb.... at age 14, my lip went numb, and so on and so forth through my life (I'm now 37) I experienced all of the below -
Anywhere - YOU NAME IT - all over the body numbness that shows up in patches (patches of dead skin to varying degrees)
Weakness of the legs and arms/hands
Double vision (diagnosed diplopia caused by a 3rd nerve palsy where I couldn't see straight for 6 weeks)
Tongue numbness/taste problems
Wooshing in ears
Pretty much every neurological prob one could have, I've had! In the beginning, I'd just go to my GP and they'd blow me off.. when I got my first bout of double vision, however, at age 27, I got into a neuro-opthamologist in NYC who ran MRIs and the whole nine yards (first MRIs for me, but I had had symptoms for over 10 years).. 100% clear, showed noting, vision went back to normal. Since then, have probably seen 6 different neurologists, and eventually started going to MS specialists bc I wanted to be tracked/taken seriously. I've had about 10 rounds of MRIs, a spinal tab, blood work, the whole work up. Nothing has showed up that would point to MS. My scans have been done on the best MRI machines there are! Seen Drs in some of the best hospitals on the east coast and my current "doctor" is an MS specialist and has point blank told me "I don't have it.". He said that as crazy as it sounds, he has a lot of patients who just have random neuro symptoms that no one figures out. Does that mean I'll never get diagnosed..? Who knows. But I'll tell you what, if this is MS and I've had it for 25 years, it is what it is and I'll be OK. I take the best care of myself possible and I'm always working on my anxiety problem surrounding my health (I pretty much hop from disease to disease like many of you... therapy is helping me, I may go on Zoloft).
Anyway, wanted to share this as I am a case of someone who is a text book MS patient and has all clear tests... I know that stress activates my symptoms. I'm OK. Most of the posts I read in here about people afraid of MS I can promise you that you don't have it. I have always wanted to respond w my story and now I have.
Hope it helps!