I am new to this forum but I am not new to health anxiety. My HA began in the beginning of July 2013 where I awoke to my left my hand and left foot both tingling. I was sleeping on my left side, and was abruptly awoken with them both tingling. It was the strangest thing ever. I instantly thought the worst and went to the hospital thinking it was MS. The funny thing is, during the periods before this, I was in and out of the hospital thinking I had a bunch of other diseases that I didn't have. I spent about a month going from doctor to doctor, and running blood test to blood test, because I was having many weird symptoms, like swollen lymph nodes and canker sores. First i thought I had lymphoma, then it went to crohn's, then it was HIV, and then it was diabetes. After the doctor looked at me as if I was crazy to even think that I had MS (there was no other symptoms besides the annoying tingling) he sent me home saying I had slept wrong and irritated nerves. For some reason, I couldn't buy it. The thought of MS consumed me. I began googling it non-stop, only to make the paranoia worse. I saw a neurologist a few days later and after his examination, he wouldn't even order me an MRI, even though I was asking for one. Satisfied, I went home, thinking I could close the book on that entire mini fiasco that lasted a good week. However, thats when the twitches began. Any muscle, you name it, and it's twitched.
I had a brain MRI done in september, and it came back normal. When I heard my results were normal, it seemed as if all my symptoms disappeared. It was as if the weight of the world was lifted off of my shoulders. I couldn't believe it. However, since then, I havent been too lucky. Many of my symptoms seemed to have returned around December.
This is a list of many of the symptoms that I have felt:
-Transient pins and needles sensations
-Hot and cold patches on the skin (sometimes even severe burning)
-wide spread muscle twitching
-vibrating feeling under my skin (lately, my right shin has been vibrating really bad, actually has me worried a little bit)
-My eyes ache Like a headache in the eye, those are really annoying
-I get a sensation that my muscles seem to be tearing. I guess a more proper way of saying it is the feeling you get of the onset of a cramp, however it never fully goes to a cramp, rather, it just goes away once i massage the area (Usually triceps/calves)
-Developed heart palpitations
-developed GERD, with the classic lump in the throat sensation (had it on and off for a month)
-Legs feel heavy and tire at times
-Weird electrical kind of pulse that happens on my knee area every now and then. It's a really weird sensation but when I put my hand on the area it almost immediately goes away, then when I take my hand off, it begins again (..please tell me Im not the only one thats felt this...???)
-Pain in rib cages and in base of neck
It is a long list, but lately, my symptoms seem to be focused entirely on my left side. My left leg seems to constantly be tingling around the shin area. It is a very light tingle, and it feels as if someone is gently brushing the hairs of my legs. When I'm wearing jeans, it isnt even noticeable, however, when the area is exposed, i feel it, and it is very irritating. Sometimes the tingling begins on my left forearm as well, although that tingling is not nearly as constant as the leg. Does anyone else happen to have tingling symptoms localized to one side of the body? The fact is, I have seen 5 different neurologists, and none of them have diagnosed me with anything. 2 of them were MS specialists. I have a follow up with one of them in july, and I have scheduled another appointment with another neurologist that specializes in sensory issues in 2 weeks. He would be the sixth one I see. At this point, I am so convinced I have MS. I flip flop back and forth throughout the day deciding whether I have it or not. I just feel as if I'm stuck in limbo, and the neurologists are just waiting until I have an obvious attack so they can confidently diagnose me. I know that anxiety can mimic many of the symptoms of MS, however, I just can't seem to catch any relief nowadays. The things I have going for me is a clear brain MRI with contrast, and the opinions of 5 different neurologists that what I am suffering from is "probably all from anxiety" (darn that liability crap, I just want some straight answers!).
I'm just so sick of it all. I've read all the horror stories online about how people go years without being diagnosed although they obviously have symptoms until something major happens, and they finally get the dx. Obviously i never want to get the dx, but at this point I just feel so lost from it all. I guess I'm just looking for some support, and if you took the time to read that all, thanks. I hope we all get out of this unscathed, although i lose more and more hope, the longer this drags on