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Author Topic: Introduction and my story  (Read 292 times)

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Offline LASD

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Introduction and my story
« on: April 11, 2014, 10:33:53 PM »
Hello everybody,

I am new to this forum but I am not new to health anxiety. My HA  began in the beginning of July 2013 where I awoke to my left my hand and left foot both tingling. I was sleeping on my left side, and was abruptly awoken with them both tingling. It was the strangest thing ever. I instantly thought the worst and went to the hospital thinking it was MS. The funny thing is, during the periods before this, I was in and out of the hospital thinking I had a bunch of other diseases that I didn't have. I spent about a month going from doctor to doctor, and running blood test to blood test, because I was having many weird symptoms, like swollen lymph nodes and canker sores. First i thought I had lymphoma, then it went to crohn's, then it was HIV, and then it was diabetes. After the doctor looked at me as if I was crazy to even think that I had MS (there was no other symptoms besides the annoying tingling) he sent me home saying I had slept wrong and irritated nerves. For some reason, I couldn't buy it. The thought of MS consumed me. I began googling it non-stop, only to make the paranoia worse. I saw a neurologist a few days later and after his examination, he wouldn't even order me an MRI, even though I was asking for one. Satisfied, I went home, thinking I could close the book on that entire mini fiasco that lasted a good week. However, thats when the twitches began. Any muscle, you name it, and it's twitched.


I had a brain MRI done in september, and it came back normal. When I heard my results were normal, it seemed as if all my symptoms disappeared. It was as if the weight of the world was lifted off of my shoulders. I couldn't believe it. However, since then, I havent been too lucky. Many of my symptoms seemed to have returned around December.


This is a list of many of the symptoms that I have felt:

-Transient pins and needles sensations
-Hot and cold patches on the skin (sometimes even severe burning)
-wide spread muscle twitching
-brain fog
-vibrating feeling under my skin (lately, my right shin has been vibrating really bad, actually has me worried a little bit)
-My eyes ache Like a headache in the eye, those are really annoying
-I get a sensation that my muscles seem to be tearing. I guess a more proper way of saying it is the feeling you get of the onset of a cramp, however it never fully goes to a cramp, rather, it just goes away once i massage the area (Usually triceps/calves)
-Developed heart palpitations
-developed GERD, with the classic lump in the throat sensation (had it on and off for a month)
-Legs feel heavy and tire at times
-Weird electrical kind of pulse that happens on my knee area every now and then. It's a really weird sensation but when I put my hand on the area it almost immediately goes away, then when I take my hand off, it begins again (..please tell me Im not the only one thats felt this...???)
-Pain in rib cages and in base of neck


It is a long list, but lately, my symptoms seem to be focused entirely on my left side. My left leg seems to constantly be tingling around the shin area. It is a very light tingle, and it feels as if someone is gently brushing the hairs of my legs. When I'm wearing jeans, it isnt even noticeable, however, when the area is exposed, i feel it, and it is very irritating. Sometimes the tingling begins on my left forearm as well, although that tingling is not nearly as constant as the leg. Does anyone else happen to have tingling symptoms localized to one side of the body? The fact is, I have seen 5 different neurologists, and none of them have diagnosed me with anything. 2 of them were MS specialists. I have a follow up with one of them in july, and I have scheduled another appointment with another neurologist that specializes in sensory issues in 2 weeks. He would be the sixth one I see. At this point, I am so convinced I have MS. I flip flop back and forth throughout the day deciding whether I have it or not. I just feel as if I'm stuck in limbo, and the neurologists are just waiting until I have an obvious attack so they can confidently diagnose me. I know that anxiety can mimic many of the symptoms of MS, however, I just can't seem to catch any relief nowadays. The things I have going for me is a clear brain MRI with contrast, and the opinions of 5 different neurologists that what I am suffering from is "probably all from anxiety" (darn that liability crap, I just want some straight answers!).

I'm just so sick of it all. I've read all the horror stories online about how people go years without being diagnosed although they obviously have symptoms until something major happens, and they finally get the dx. Obviously i never want to get the dx, but at this point I just feel so lost from it all. I guess I'm just looking for some support, and if you took the time to read that all, thanks. I hope we all get out of this unscathed,  although i lose more and more hope, the longer this drags on  :(
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Offline Sunlover

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Re: Introduction and my story
« Reply #1 on: April 12, 2014, 02:10:41 PM »
That ALL sounds like anxiety!   Did your doctor ever tell you that?   I've had ALL those symptoms at some point on and off for years and years and years.  CURRENTLY I get chills in the calf of my right leg, chills on the right side of my head, sometimes left.  I have a numb kneecap (I think I injured that a few years ago though), muscle twitching in various parts (back of shoulder, side of stomach, INSIDE my left ear, left cheek, you name it.  (not all at the same time, but various things at various times) - I sometimes have a pulse thing going on in the back of the leg behind the knee.   MANY of these things EVERYONE gets, but we tend to focus on them, other things are there because we keep thinking about it.
My legs have felt like I am wearing lead boots the past few days and they feel all shaky and weak - that was right after my beautiful cat was diagnosed with a nasal tumor that is probably cancerous.  I've had those "funny" legs since I was at the vet's on Tuesday.  So right there I KNOW it's stress/anxiety.  That's what legs like that normally signify.  You don't necessarily have to have had any bad news to get that, but merely WORRYING about something (your health for instance) will cause that.
Without dissecting each symptom you wrote - they can all be put down to anxiety.
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Offline greend

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Re: Introduction and my story
« Reply #2 on: April 12, 2014, 02:38:52 PM »
LASD, I can relate to what you have written. I have had neurological symptoms on and off for quite some time and all my testing including MRI's have been normal. I have been to the neurologist 3 times in the past 10 years and I will be going again soon, as I have a prickly sensation in the skin of both my legs and it is driving me crazy. It has been determined that I do not have MS.  I really just want to feel normal again.

Here is to all of us feeling better.

Let us know how it goes.
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Offline LASD

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Re: Introduction and my story
« Reply #3 on: April 12, 2014, 09:30:34 PM »
Thanks for the replies guys. I guess the thing that is worrying me the most is the fact it seems to be centered on my left side. I feel as if my skin is super sensitive. It's not pins and needles necessarily, just a slight tingle, and when I place my hand over the area that is tingling, I can't really feel it tingling anymore. It's really weird. Does anyone else seem to have similar problems?
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Offline greend

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Re: Introduction and my story
« Reply #4 on: April 30, 2014, 07:59:01 PM »
LASD, I am just wondering how you are making out?
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Offline LASD

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Re: Introduction and my story
« Reply #5 on: May 04, 2014, 06:53:39 PM »
Hey greend,

So i went to my neuro appointment on the 29th. He was by far my favorite neurologist I had seen.

The beginning of our appointment was rough. I arrived 20 minutes late due to traffic, and he wasn't too happy about that since I was his last appointment. After reviewing my records he noticed that I had seen three of his colleagues before him, making him a bit more agitated saying "all three neuro's you saw are terrific, they would have caught something if it was there." After the awkwardness kind of settled, he finally asked me what was bothering me. I told him about my one sided tingling issues, the brain fog, the neck pains, the twitches blah blah blah....He just looked at me and said "Yeah so? A lot of people have those." However, the reason why he was my favorite was because he was willing to run more tests. He ran a NCV to test my nerves on my left side, and he said that I had  the healthiest nerves he had ever seen. After I told him that I still had my MS fears, he took a look at my brain MRI and said that its perfectly normal, and that I simply don't have MS. He flat out just told me to stop worrying about it. He ordered my an MRA to see if theres something going on with the arteries in my brain, because all of my symptoms started after a whiplash on a rollercoaster.

Currently, a feel a little better. The tingling was finally gone for about a week, but now its back unfortunately. I'm getting kind of used to it now, which i guess is a good thing. Ill be undergoing the MRI this week hopefully, so i hope the results come back normal again, as this would be my follow up MRI that i've been desperately wanting.
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Offline greend

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Re: Introduction and my story
« Reply #6 on: May 05, 2014, 08:00:35 AM »
LASD, I am happy to hear everything went well at the doctor's.  The human body is a weird thing.
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