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Author Topic: ALS fear s going crazy help pls...  (Read 625 times)

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Offline Roman

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Re: ALS fear s going crazy help pls...
« Reply #10 on: April 03, 2014, 08:29:31 AM »
Good morning, the symptoms you describe are not remotely related to als. Als is a motor neuron desease what you describe is sensory. Als is a desease of muscle weakness not numbness or tingling or pain, although als patients do experience pain when their muscles waste and cramp. The onset of als is very subtle like not being able to open a water bottle or constantly tripping. Have you seen a neuro. Have you had an emg. You don't have als it doesn't present in this way. 
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Offline Hypo84

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Re: ALS fear s going crazy help pls...
« Reply #11 on: April 03, 2014, 09:07:30 AM »
Of course she doesn't have ALS.

The disease is in fact rare enough that she shouldn't even supposed to know what ALS is.

Anyway, in a few months when your condition doesn't get much worse, you'll see it wasn't ALS.
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Offline bittersweetlife

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Re: ALS fear s going crazy help pls...
« Reply #12 on: April 03, 2014, 09:52:18 AM »
*Ahhh, reminds me of my ALS days. not to mention the muscle twitching too. I used to be obsessed of ALS

And now everytime i get aches and pain on my body i think of Lymphoma! And now i am obsessed of lymphoma!
Hang in there hun, you are fine!
cross fingersxx
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Offline albert

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Re: ALS fear s going crazy help pls...
« Reply #13 on: April 03, 2014, 01:00:09 PM »
Let me tell you one thing about ALS, it does not cause pain.  The only time it does is when you muscles are starting to waste.  Which if it was your case you wouldn't be able to walk to move really.  Twitching always comes almost at the end of the illness, it's when your muscles are so atrophied which means that they don't move and the muscles are wasting away.  Don't worry about it I was there for many years and it just passed once I realized I can still do the things I do.  I hope this helps!!! hang in there you'll be alright.
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Offline Daisy55

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Re: ALS fear s going crazy help pls...
« Reply #14 on: April 03, 2014, 01:11:09 PM »
How rare is ALS?
 Of course HA always thinks "I'm the rare one"    arghhhhh
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Offline Roman

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Re: ALS fear s going crazy help pls...
« Reply #15 on: April 03, 2014, 01:26:27 PM »
It affects 1-2 /100,000 it is rare
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Offline anagargano

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Re: ALS fear s going crazy help pls...
« Reply #16 on: April 03, 2014, 06:14:36 PM »
thx everyone....trying to hang in there
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Offline anagargano

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Re: ALS fear s going crazy help pls...
« Reply #17 on: April 03, 2014, 06:58:13 PM »
whats scaring me the most is the hand /finger weakness and numbness ....so scarey wierd not to b able do things can usually do.......ALS flashes before my eyes........
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Offline anagargano

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Re: ALS fear s going crazy help pls...
« Reply #18 on: April 03, 2014, 07:17:53 PM »
is that how als starts.......i really am going crazy right?
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Offline Roman

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Re: ALS fear s going crazy help pls...
« Reply #19 on: April 04, 2014, 07:38:49 AM »
Sounds like classic carpel tunnel to me tap your wrist and see if you can feel nerve pain radiating into your hand if so prob carpel tunnel.
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