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Author Topic: Phantom Smell  (Read 253 times)

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Offline albert

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Phantom Smell
« on: April 01, 2014, 10:57:39 AM »
Hello all, my name is Albert I'm fairly new to this site.  I have found over the years that this site has helped me a lot in reassuring myself in the darkest moments of my life.  I have been a hypochondriac since I was 15 years old.  Things started pretty sudden and have gradually gotten worse, I started with the usual HIV scare when I was in high school and went through the cancer, ALS, and MS scare.  It was not easy having to keep asking family for reassurance, everyone would avoid being with me because of the questions I would ask.  I was also married and I'm not saying this was the one thing, but it was the beginning of the end for my marriage.

For the past few months I've been smelling what I can associate closest to cigarette smell, I never really paid much attention to it.  It happened a couple times last week with the smell going from a few minutes to a few hours.  I googled this symptom and Brain Tumor came up, I completely lost it.  I read that if you have partial seizures that you are conscious and alert, I was afraid I was having those small seizures due to a Brain Tumor.  I went to the doctor and he found a sinus infection.  I tried to tell him that the smell had been there long before the sinus infection but he didn't really seem to care all that much.  Now this is something that has taken over my everyday life, I can't sleep I don't get hungry I stopped going to the gym because I am so depressed.  Could anyone out tell me if you have gone through the same thing??  thanks in advance, sorry for the long post.
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Offline Gemmal

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Re: Phantom Smell
« Reply #1 on: April 01, 2014, 12:37:44 PM »
Albert I know exactly what you are going through !

My mum recently underwent sinus surgery due to chronic sinustitis and smelling the smoke was something she complained of . The surgeon said they don't really know why it happens but it is to do with the mucus build up after a cold or infection. I stupidly googled too but trust me it works the same way as the link between a headache and a brain tumour : there is a much more common and benign cause .

Now I have too started too smell smoke . Not sure if this is anxiety related but  Always when I'm choked up . Obviously having anxiety I'm not going to lie and say I don't get nervous but I know deep down it's nothing ! I had a bad dose of the phantom smell last night but again I have a cold just now !

Completely harmless !

I hope your feeling better

Gemma :)
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Offline albert

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Re: Phantom Smell
« Reply #2 on: April 01, 2014, 02:49:53 PM »
Thank you that helped me to understand that I'm not alone.  It's just this condition that I hate so much, every time there has been something good in my life there is always a lingering thought of being sick or having a serious Illness.  I don't understand why this got me so bad, I had smelled it so many times before when I was younger but now curiosity got the best of me and when I checked with Dr. google all hell broke loose.  Again thank you for taking the time to read my post and this is an amazing support site.
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Offline mama00

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Re: Phantom Smell
« Reply #3 on: April 01, 2014, 04:42:11 PM »
I smell things that aren't there all the time.   Right now we are having paint issues in one room that was painted and still smells like paint >cue in my panic about chemicals< anyway although the smell is confined to that room I smell it everywhere even away from my house.  I think once your brain fixates on something you can reproduce smells in your brain that aren't there.  For example.  My PBJ sandwich smelled like paint.  No lie.  I hate hate hate anxiety.
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Offline albert

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Re: Phantom Smell
« Reply #4 on: April 03, 2014, 12:33:15 PM »
So I went to my doctor yesterday, he said honestly I don't think you have a brain tumor.  He explained to me he had a patient that did have a brain tumor and that the patient actually lost her sense of smell and had seizures.  He checked my eyes saying that with a tumor you might start to see some pressure.  He checked my reflexes and also said that with a tumor you will see more severe symptoms such as seizures.  But he sent me to an ENT and if I need be a scan.  He said he doesn't think it's necessary though but just for my peace of mind.
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Offline Gemmal

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Re: Phantom Smell
« Reply #5 on: April 03, 2014, 03:13:54 PM »
Thanks for posting back Albert ! I was never brave enough to go to my doctor ! Quite relieved now as I have had this for almost six months ! I guess I would be experiencing more severe symptoms by then ! Hope everything goes okay with the ent and I'm sure you scan will be normal !

Gemma
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Offline skimbleshanks34

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Re: Phantom Smell
« Reply #6 on: April 03, 2014, 03:17:00 PM »
This happens to my mom, and she really doesn't seem worried about it, but I am! Being me, I ultimately assume the worst. She's had it on and off since august.
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Offline albert

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Re: Phantom Smell
« Reply #7 on: April 03, 2014, 04:06:38 PM »
I feel a lot more relaxed now that I addressed the issue with my doctor, he said there is  ton of information out there in the internet that isn't meant for people like us that really are not trained.  He said that we should leave the doctor work to them who have been trained for many years.  He said how would you like it if I went to your work and started telling you what to do without me having any training.

Don't get me wrong I still have that thought linger in my mind, but starting now I'm trying to go about my life as normal.  I've decided that I will go back to the gym after work, like I've always done, and that the least time I spend at home in my room being worried and let my mind go nuts, I'm going to do the best I can to keep my mind off of it.  I'm trying my best to not go to the internet trying to look for reassurance, it's just making the condition worse.  I'm also seeing my therapist again next Tuesday and hopefully with the combination of the ENT visit and my therapist I can finally put this to rest.

We need to try to enjoy our life's, I know it's not easy and I am probably the last person to say this but how long, how many times have we thought we were dying just to realize that it was all in our heads?  Every time this happens I regret it so much because I just threw away days, weeks, and sometimes months out of my life when I can be enjoying myself, family, and friends.  I know this is something that I have to live with for the rest of my life but if we try to find ways to help ourselves we can keep the outbreaks to a minimum.  I know It takes a lot of effort to get better, but I know we all can.  Thank you all for taking the time to read my post and I will update once I get the ok from my insurance to see the ENT specialist.
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