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Author Topic: They don't know what it is!  (Read 146 times)

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Offline Zearth

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They don't know what it is!
« on: March 31, 2014, 11:07:04 AM »
Okay, recap for those new to my situation; I have lumps on my hand. They're making me freak out, and experience all manner of highly stressful reactions as a result. My general practitioner didn't know what the lumps were. My orthopedist didn't know what the lumps were. I got an MRI and now today I got the results and guess what? THEY STILL DON'T KNOW WHAT THE DAMN LUMPS ARE!

The report is full of phrases like, "nonspecific soft tissue prominence" "no well-defined mass flow voids or cysts noted" or "ill-defined" over and over for each lump! They have NO CLUE what it is, and now they're recommending a rheumatologist! They apparently got crystal clear pics of who-knows-what!

I am PANICKING and have waited so long to finally get an answer and THIS is what I get?! The only, the ONLY, saving grace here is that he said if it was anything like a tumor, it'd have been obvious from the scan. I just don't know what to do aside from call some NEXT doctor and roll the dice AGAIN!

Help?
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Offline Hypo84

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Re: They don't know what it is!
« Reply #1 on: March 31, 2014, 11:28:22 AM »
So why are you freaking out? You got results, they don't know what it is but it's obviously not smth serious... Don't worry, be happy ;)
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Offline Zearth

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Re: They don't know what it is!
« Reply #2 on: March 31, 2014, 11:41:28 AM »
Yes, it not being a tumor is a great relief. Watching my Uncle rot away via lung cancer is one of my more haunting experiences.

BUT that's all they know, and I have never handled the "unknown" well. These painful lumps aren't going anywhere. Their best guess until I contact this next specialist on the ever-growing list is "vasculitis" or "dermomyositis", which they specify is only a "consideration" at best.
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Offline Zearth

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Re: They don't know what it is!
« Reply #3 on: March 31, 2014, 03:47:51 PM »
So can anyone tell me what to expect from this "rheumatologist" if/when I call and set up an appointment? Never been to one before, I don't know what to expect.
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Offline wegngis

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Re: They don't know what it is!
« Reply #4 on: March 31, 2014, 04:08:41 PM »
In my experience, they draw blood, take x-rays, and really delve into more detailed numbers that GP's don't know much about.
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MOST anxiety happens at the subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state.  - AnxietyZone member Sixpack

Offline skyisblue

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Re: They don't know what it is!
« Reply #5 on: March 31, 2014, 04:09:55 PM »
Hi Zearth,

The rheumatologist is probably looking for tissue inflmmations that are causing these lumps.

Please try to relax, the tests have put aside your worst fear. I am sure that this is very treatable!
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