3. About 14 months, off and on
4. Yes, I like to run (two or three times per week) and also walk when I can, usually twice or three times per week in addition to running.
5. When the fasciculations started, yes, I had been following a low-carb diet off and on for about 3 months.
6. I have been taking Zoloft since last July, but I'm tapering off (almost done, actually) because it did nothing for my anxiety and definitely made my fasciculations worse.
7. Had EMG, brain MRI without and with contrast, EEG, three rounds of blood work -- all thankfully negative. My neurologist recommended that I really work hard on addressing my anxiety.
9. Have had fasciculations everywhere, but most often in fingers, legs, feet, face. Occasionally arm, thigh, small muscles in knees.
10. I definitely notice a correlation between fasciculations and anxiety level.
My neurologist did caution me about not working out too hard, as he said that can make some of these physical symptoms worse. I reassured him that I'm not a crazy exerciser.
If I had to guess, I would say that for years I had a subclinical anxiety disorder that I managed through exercise. But for various reasons I had to stop exercising for about a year and a half, my anxiety ramped up over time (though I did not recognize exactly what was happening), and then I went through a significant period of stress (illness in family). Pretty much as soon as that crisis passed, I started with the fasciculations, which catapulted me into a battle with HA that has lasted 14 months. I'm feeling better lately, though.
My neurologist's advice notwithstanding, I find that exercise helps with both my anxiety and my physical symptoms.
Hi Everyone I am taking a little poll, then I will post the results based upon responses. It is in regard to benign fasciculation syndrome. I would like to hypothesize the cause of it amongst all of us, what makes it worse, and what helps to make it stop some. So here it goes:
1. Did BFS happen after infection and describe infection (norovirus, adenovirus, flu, lymes disease, gastroenteritis, etc).
2. How long after infection before symptoms occurred? Did you notice any weird rashes before it occurred, or acne type lesions like folliculitis on your spine or back?
3. How long have you had BFS for?
4. Are you athletic and how many days per week do you work out?
5. Are you on a high protein diet? Or do you consume more meat, vegetables, fruits vs bread and pasta?
6. Are you on any SSRIs or SSNIs/etc and what are they? (zoloft, buspar, xanax, prozac, etc).
7. Have you had brain MRI and EMG? Have you been tested for lymes? Everything negative? So now you are left with no advice on how to make it stop?
8. Any diagnosed co-existing health conditions?
9. What parts of your body fasciculate the most? Is it below the knees or elsewhere? How often is it, is it all day long?
10. When do you notice it is worse?
Just reply back with the number in front of it and your answer.