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Author Topic: TMD Sufferers... Please advise!!!  (Read 242 times)

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Offline darris77

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TMD Sufferers... Please advise!!!
« on: March 20, 2014, 01:51:42 PM »
Hello all, long-time lurker here, first-time poster.  Iím looking for some advice from those of you that suffer from chronic facial pain, headaches and TMD.
 
A bit of background... I have struggled with headaches and jaw pain for as long as I can remember, but this past year, things really seemed to get out of hand.  Instead of the occasional bad day, I started to have brief episodes of my jaw locking and clicking.  I also started to experience daily facial pain and intense pressure, mostly centered in my cheeks, across the bridge of my nose and into my temples (sometimes I will also feel pain down my ears, at the back of my head, behind my eyes, and at the top of my head).  Along with all that, I started to frequently feel dizzy and light-headed.  I didnít experience blurred or impaired vision, but I did find that it felt like I was working very hard to make my eyes focus.  Both the pain and dizziness were made worse by quick movements of the head.
 
I have seen an ENT because initially my GP thought the problem was sinus-related.  Sinus CT came back with some findings of congestion and muscosal thickening but nothing that could account for the daily pain and pressure.  I also saw a vestibular rehabilitation specialist who gave me some exercises for my dizziness.  I do find that consistently doing these exercises helps.  My GP and I discussed the possibility of something called ďmid facial segment pain syndromeĒ and I was prescribed 20 mg Amitriptyline for that.  This does seem to help a bit, but I can still get very bad days.  Changes in the weather and lack of sleep seem to be the primary triggers.  Finally, I went for a check-up with my dentist and described the symptoms to him.  He did some x-rays and carefully evaluated my bite, finally telling me that I had TMD.  He also said that all the symptoms I had been describing could be attributed to my jaw being out of alignment.
 
So... what Iím wondering is, given the symptoms Iíve described, how plausible does the TMD diagnosis sound to you fellow sufferers?  Of course, being a health anxiety sufferer, I did spend many months looking up horrible diseases online and fearing that I had a brain tumour or MS or something ridiculous.  However, as this pain has been going on for almost a year now without any neurological symptoms, I donít realistically think thatís what Iím dealing with.
 
I have sometimes found that gently massaging the painful area can help a bit, as does a small amount of tiger balm.  My dentist is planning to fit me for an orthotic that I would wear 24/7 at first.  Iím also wondering about alternate treatments like acupuncture, facial massage and laser therapy.  Has anyone out there had any experience with these treatments?
 
Thanks in advance everyone!
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Offline darris77

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Re: TMD Sufferers... Please advise!!!
« Reply #1 on: March 20, 2014, 05:37:16 PM »
Anyone? :)
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Offline famv5

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Re: TMD Sufferers... Please advise!!!
« Reply #2 on: March 20, 2014, 08:40:19 PM »
I was diagnosed with TMJ about 20 years ago following a car accident.  I'm not sure what the difference is between TMJ and TMD but I thought I would post.

I guess mine isn't really too bad, though.  What I get is the popping/clicking whenever I open my mouth to wide, like biting into a hoagie or something.  I'm supposed to wear a night guard when I sleep to prevent me from clenching my teeth together but I've never had one made. 

I do get pains in both sides of my jaws continuously and I'm not sure if that is TMJ related or not.  I have a lot of teeth work to be done so I always blame it on my teeth. 

When I was first diagnosed, I went to a TMJ dentist for a month or two and did some sort of therapy.  They stuck on these wires on both sides of my cheeks (jaws) and then turned on this electrical pulse or something.  I would sit with that on for 20 minutes or so.  I think it was supposed to help relax the muscles.  I forget. 

Anyway, not sure what help I've been.  Just wanted to share my experiences.  I hope you get some relief.

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"Our anxiety does not empty tomorrow of its sorrows, but only empties today of its strengths" - Charles H. Spurgeon

Offline 2jrts

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Re: TMD Sufferers... Please advise!!!
« Reply #3 on: March 22, 2014, 05:57:10 PM »
I know this post is a couple days old, but I wanted to reply that I have had TMJ for years. I first got it at summer camp when I was about 12 when my jaw locked. Since then I have had jaw locking, facial tingling, headaches, ear clicking, sore tmjs, itchy ears, throat pain, inability to open my mouth all the way - all related to TMJ. Stress exacerbates it A LOT. When mine get bad, I take Advil and heat up one of those pillow type things that has rice in it and hold it on my joints. Moist heat is very good for this. You should get fitted for a mouth guard. I am a jaw clencher and the mouth guard really helps. I also want to add that you can google tmj symptoms - you will be amazed at how two small joints affect the entire body.
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Offline LaRielera

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Re: TMD Sufferers... Please advise!!!
« Reply #4 on: March 22, 2014, 07:06:45 PM »
I get exactly the same thing. My jaw locks on the right side if I accidentally sleep on my back, and I get a lot of pain and pressure on that side of the face and my neck (not actually in the jaw, though.)
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Offline Daisy55

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Re: TMD Sufferers... Please advise!!!
« Reply #5 on: March 22, 2014, 08:46:20 PM »
TMJ causes a lot of symptoms.
I have a wonky jaw that clicks, clunks, shifts, aches.   
Like a previous post, stress makes it hurt more and I will use a clean sock filled with rice heated in the microwave or a moist heated washcloth on the area.   My chiropractors have helped, but of course when I tense up, it will act up again.
Some helps are a guard, chew slow and equally on both sides.  I find I cannot chew gum.

Hope you find relief helps.
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You will know the truth, and the truth will set you free.  
John 8:32

Offline DeLellis123

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Re: TMD Sufferers... Please advise!!!
« Reply #6 on: March 22, 2014, 11:38:34 PM »
I read somewhere that some of it has to do with your back and neck muscles, they need to be relaxed and strengthened over a long period of time. My tmj gets so bad that my jaw basically dislocates snaps, I hear a loud ping, then i have an overbite. Those mouth guards are suppose to work good. But I think the key is finding a relaxing yet strengthening routine for your jaw and neck muscles.
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Offline Bella41123

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Re: TMD Sufferers... Please advise!!!
« Reply #7 on: March 25, 2014, 03:47:32 AM »
Two months I had my tooth extracted and the aftermath was I got tmj inflammation till this day I still have it ;( I get scalp pain facial pain like you described, shoulder and back aches as well my neurologist prescribed me naxophen idk how to spell it lol but it's antiflammatory medication that really helps ease my pains! I try not to think of em and they don't bother me as much. I have the condyle bone right in front of my eat and sinks in when I open my mouth it doesn't lock but I hear a click. My advise to you is rest your jaw and muscles take some natural antiflammatory supplements or ibuprofen which ever but that helps me a lot don't worry your not alone !
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Offline worriedmomofone

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Re: TMD Sufferers... Please advise!!!
« Reply #8 on: March 25, 2014, 09:29:57 AM »
I have TMJ and I thought I was stuck with the clicks, the pops, and the scalp and facial pain forever.  I went to a chiropractor and he basically fixed it.  He had special training in TMJ relief, though.
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