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Offline emily1994

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When to trust the doctors
« on: March 02, 2014, 10:37:51 AM »
So, my health anxiety has definitely calmed down a bit... I'm worrying, but not actively worrying, if that makes sense. Anyway, last week I went back to the neurologist for a follow up appointment, and told him about all my symptoms (including the palinopsia- trails off of moving objects and after images), and he wasn't concerned.

He said neurologically he can't find anything wrong with me, and basically said bye until anything comes up. He reviewed the MRI I had done in November, and said it looks as normal as normal gets, and if that was his MRI he would be happy.

My problem is this: how am I supposed to trust his judgement when palinopsia is a symptom of a brain tumor? He said it's really not, and things like double vision and loss of vision are. Can I really rely on this MRI that was taken months ago, without contrast?

I have an ENT follow up appointment on Tuesday for my tinnitus, which is STILL there, so hopefully I can convince him to send me for another MRI. It's just hard too say, "Ok, I don't have a brain tumor" when palinopsia is linked to them... It makes me not trust the neurologist.
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Offline emily1994

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Re: When to trust the doctors
« Reply #1 on: March 02, 2014, 01:50:22 PM »
Yes, the tinnitus started randomly though. I never had it before. Sometimes it gets randomly louder, too.

As for the trails, is it definitely not normal... In the morning I see major trails coming off of my hand or arm if I move it. I also get after images; I will look at something and look away and still see a faint image of it. They get worse randomly, especially in the morning. Certainly not normal!  :(
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Offline Scaredofsymptoms

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Re: When to trust the doctors
« Reply #2 on: March 03, 2014, 10:27:28 AM »
Have you seen an eye doctor?
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Offline emily1994

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Re: When to trust the doctors
« Reply #3 on: March 03, 2014, 11:11:00 AM »
Yes many times
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Offline Allytiel90

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Re: When to trust the doctors
« Reply #4 on: March 03, 2014, 02:10:33 PM »
I wasn't going to comment, but I honestly don't think you have a brain tumor. I think you are paranoid and over analyzing. If I'm driving down the road and I stare straight ahead a see a black tunnel that moves quickly forward in front of me . Looks like I'm going into hyperspace like they do in Star Wars. Also at night when I lay in bed and look around the room or at the ceiling, dark waves flicker off and on and the whole room will go black if I keep my eyes open long enough. I have floaters, after images, all those things, but I don't focus on them. I had a brain tumor fear about 4 years ago because of a stabbing 2 week ice pick headache. I got an MRI, no tumor. Since then I've not had a tumor fear. I def have weird things I see. I don't have a tumor, and I'm pretty darn sure you don't either.... Btw I also have had ringing in my ears on and off for years... Also nothing. I'm 23.
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Offline emily1994

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Re: When to trust the doctors
« Reply #5 on: March 03, 2014, 02:19:49 PM »
Do you think I can really rely on an MRI without contrast that was taken almost 4 months ago, though? These symptoms are just so strange.  :(
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Offline Kimdrah

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Re: When to trust the doctors
« Reply #6 on: March 03, 2014, 02:30:02 PM »
Part of health anxiety is wanting more reassuring, even if you have another it will only satisfy you temporarily.  Trust your doctor he does this for a living. Good luck.
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The Dalai Lama,was most surprised by Man.He sacrifices his health to make money. He sacrafices money for his health,he is so anxious about the future so he does not enjoy the present, he does not live in the present or the future,he thinks he will never die, then he dies having never lived.

Offline Allytiel90

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Re: When to trust the doctors
« Reply #7 on: March 03, 2014, 02:37:08 PM »
My MRI had no contrast either and I trusted my doctor. I think you need to get help for your anxiety. I have a lymphoma fear and I am seeing a therapist and on a light dose of lexapro. It's helping me. I just got a very particular blood test to look for lymphoma and it came back totally normal. I'm still having a hard time accepting I don't have lymphoma because after all, I'm still having my symptoms like sweating at night. So I understand where you are and how hard it is to trust doctor and shake your fears. Now you have to try and get help for your real issue, anxiety.
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Offline emily1994

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Re: When to trust the doctors
« Reply #8 on: March 03, 2014, 02:43:10 PM »
Yeah, it is hard... I am on Prozac, but I'm not quite sure it's working. I have another psychiatrist appointment this week, so hopefully I can get this sorted out. I just wish these symptoms would go away  :fragend005:
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Offline clippergoodwill

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Re: When to trust the doctors
« Reply #9 on: March 03, 2014, 03:27:57 PM »
Little known secret - your doctor isn't the only one to view your MRI. Other doctors, the imaging technicians, and nurses see it as well. If you had anything wrong, trust me it would've been caught. I have said it in numerous posts but there's truth and comfort to it - when it doubt, ask a nurse. They tend to know problems right off the bat, and have real world advice that can help you far better. It was good nurses that convinced me of my anxiety and it's power to trick the mind into thinking of tumors, strokes, cancer, etc. The dr's did very little to comfort my fears and explain my situation in detail, the nurses were the ones that did.

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