I was never diagnosed with Celiac because on my endoscopy no biopsy was done. I went GF on my own, and now I won't eat it again to get a proper test. I felt awful on and off for the first year I went GF. My son had the same experience. And we did it in different years, so it wasn't what it was eating. 1) If you stopped gluten, went back on and had a bad reaction, you most likely have celiac or gluten intolerance. If you also have two first degree relatives who are diagnosed, it's almost a no brainer. 2) There is gluten everywhere, so the on/off good/bad feeling is adjustment. Soy sauce, chap stick...it's everywhere. You will learn. 3) My original symptoms started to dissipate 2 weeks after stopping gluten. They slowly faded away as time went on. I think I've heard nine months for it to leave the system. 4) Silly things will cause you problems. My dishwasher rinse cycle was broken - that one caused an early colonoscopy for me because it caused such pain for 4 months that my doc got concerned. I was getting glutened every day. 5) Which bring me to the point that if you can get everyone in your house to be GF you will be much more successful and feel better. 6) There is no "for the most part GF" for me. As an example, I ate out and ordered a GF dessert. The waitress was busy flirting with a friend, and didn't write down that the cake was supposed to be GF - they have the same cake in a regular version. I ate three bites and had a migrane and threw up for 24 hours.
Good luck - I'm sure you will start to feel better soon! And once you get used to the diet it's no big deal at all!