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Author Topic: constant worry about als what do i do?  (Read 453 times)

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Offline anagargano

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constant worry about als what do i do?
« on: February 09, 2014, 01:28:58 AM »
I am soooo tired of worrying and of not living my life to the fullest. Its always something isnt it I am sure everyone can relate. About a month ago I started having his bitter taste in my mouth it is pretty constant...I started googling like crazy...bad...and came up with an article from 2003 of a few cases they found with people with bitter taste in thier mouth who later developed ALS....it wsa an observation and I catn find any more research on the topic....but it is all I can think of day and night ......I know I have spoken of this before but I just cant get it out of my head ...I have been to the dr twice she put me on zantac for acid reflux but it has done nothing.....I tried to explain to her about the article I read , and she smiled at me and sadi she never heard of it.....Im desparate its all I can think of .....I havent googled in while bc I just hate the thing , its evil for us !!!! But I cant get this damn article out of my head....I suppose I need to go back to the dr, because while I have this taste in my mouth all I can think about is death ...lovely isnt it??? Any ideas ??? Thoughts??? Anything????
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Offline Gomubukai

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Re: constant worry about als what do i do?
« Reply #1 on: February 09, 2014, 01:43:51 AM »
I know it's hard but try to stop focussing on it.

I think I've answered another one of your posts about this. My friends mum has a slow moving version of ALS and her symptoms were pretty unmistakeable. Trust me when I say if you had something like ALS a bitter taste in your mouth would be the least of your worries.

Have you changed anything recently? Like moved to a new area where you might be unfamiliar with the taste of the water there, got a new water bottle, started a new medication etc?

You've been worrying about this for a couple of months now if I'm right? You would have more symptoms than a vague bitter taste by now if you DID have ALS. Which you don't :) it usually moves very quickly. 
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Offline Potatoes

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Re: constant worry about als what do i do?
« Reply #2 on: February 09, 2014, 02:12:11 AM »
Have you thought of checking with your Dentist? I'm sure you take very good care of your mouth, but they specialize in mouths. My girlfriend is a Dental Hygienist and she knows more about the mouth than I ever wanted to know.

It could possibly be something involving your teeth or gums too, Maybe inquire with them?
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Offline anagargano

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Re: constant worry about als what do i do?
« Reply #3 on: February 09, 2014, 02:18:34 AM »
This damn article ......so angry with googling this....it said they seem to have this taste thing for a while before they had any other symptoms.....damn it
dentist ...mayb ?....its possible I suppose...
thanks for answering guys
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Offline Potatoes

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Re: constant worry about als what do i do?
« Reply #4 on: February 09, 2014, 02:33:57 AM »
Dr. Google has the worst reputation for malpractice and misdiagnosis.
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Offline anagargano

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Re: constant worry about als what do i do?
« Reply #5 on: February 09, 2014, 02:48:27 AM »
Do u think we might be able to sue him for malpractice???, becasue I have almost died sooooo many times.....lol
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Offline Gomubukai

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Re: constant worry about als what do i do?
« Reply #6 on: February 09, 2014, 03:06:28 AM »
Seriously ALS is really REALLY rare. I'm sure there are a million more benign things that this could be caused by.

Just out of curiosity. How old are you? ALS usually hits at a very specific age group as well.

I would just about guarantee you don't have ALS. The fact your doctor smiled at you when you mentioned it tells you just HOW unconcerned people with actual medical knowledge are about this.

Try not to focus on it. :)
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Offline anagargano

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Re: constant worry about als what do i do?
« Reply #7 on: February 09, 2014, 03:10:07 AM »
Im 45 so its quite possible right.........
I will try, try , try not toooo focus on it.......
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Offline Gomubukai

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Re: constant worry about als what do i do?
« Reply #8 on: February 09, 2014, 03:40:04 AM »
I REALLY wouldn't go so far as to say its 'quite possible'.

ALS is incredibly rare. I really do stick by what I know from my friends mum's experience. If the doctor isn't worried and you havnt had any obvious symptoms.

And despite what you read on a forum like the one you were visiting. ALS symptoms really are very obvious.

Something to keep in mind is that visiting specific disease related forums can make things like ALS seem much more common than they are. These people have formed a community of people who are going through something really intense. They are probably a community of people who have found each other from all around the world - and are helping support each other as they would be pretty isolated in their home towns.

The chances of getting ALS even with the age group or risk factors are less than 0.009% according to a quick percentage calculator I ran on the population of the USA and the estimated population of people in the USA living with ALS (it said 'estimated that up to' that number of people have it. So it's probably even less likely than that)

Not sure if it helps :)

Edit: I just noticed you're Australian! (Me too!) I think that percentage would be pretty much the same for Oz as we are still a western type society.

What I'm trying to say is, your chances of not having this are SO MUCH greater than having it.
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Offline Sunlover

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Re: constant worry about als what do i do?
« Reply #9 on: February 09, 2014, 06:33:57 AM »
This damn article ......so angry with googling this....it said they seem to have this taste thing for a while before they had any other symptoms.....damn it
dentist ...mayb ?....its possible I suppose...
thanks for answering guys

Could have been just a coincidence, the bitter taste may have had nothing to DO with ALS in that article you read.   For instance, I was getting a pain in my big toe, if 3 weeks from now I come down with a cold, does that mean a hurting big toe is a symptom of a cold?  No.
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Offline anagargano

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Re: constant worry about als what do i do?
« Reply #10 on: February 09, 2014, 06:39:18 AM »
Wow another aussie.....!
yes I know You are all prob right.....but how do I get this out of my head ...I know have this association with the aweful taste in my mouth and ASL / something sinister.....how to shake it///...logic .....? YOU WLD THINK THAT WLD BE enough right?
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Offline Hypo84

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Re: constant worry about als what do i do?
« Reply #11 on: February 09, 2014, 12:03:02 PM »
I have bitter taste in my mouth for the past 10 days. No idea what is causing it, probably acid, anxiety maybe, but I am sure as hell it is not ALS. ;)
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Offline anagargano

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Re: constant worry about als what do i do?
« Reply #12 on: February 09, 2014, 03:58:50 PM »
Really u do? And u havent googled or gone to dr? You must be doing really well...thats great...I wish I could get it into my head ...maybe I shouyld go to doctor again and try and get a better explanation ...exhausted
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Offline anagargano

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Re: constant worry about als what do i do?
« Reply #13 on: February 09, 2014, 05:58:50 PM »
I didnt even know what ALS was before this happened ....wish i didnt know
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Offline anagargano

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Re: constant worry about als what do i do?
« Reply #14 on: February 09, 2014, 08:55:10 PM »
my symptom ...about a month
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