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Author Topic: Coping with MRI result that wasn't "all clear"  (Read 276 times)

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Offline Louise8322

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Coping with MRI result that wasn't "all clear"
« on: January 16, 2014, 05:47:14 PM »
Hi everyone.  I am new to the forum and just wondering if anyone has had a similar experience to me?
I had a one of incident where I felt faint and seemed to lose some of my vision while driving on a motorway. I managed to pull over and seen paramedics who couldn't find anything wrong.  I went yo my doctor the next day and they wanted to treat me for labyrinthitis but it didn't agree with the diagnosis so asked to be referred to a neurologist for peace of mind.  During this time I tried driving again and was fine until I was on a busy motorway again then felt like I couldn't focus and had to pull over.  The neurologist agreed to do an MRI scan although said he didn't expect to find anything but would help rule things out and put me at ease.  However the MRI came back showing some "white matter lesions" on my brain which he said would be typical in someone with MS - he did stress that I haven't shown any other typical symptoms so at this time just wants to monitor me and scan again in 6 months to see if any changes.  He also said that some people just happen to have this and if they had never done an MRI I would never have known and it would never have bothered me. 
I have now researched MS symptoms and low and behold I feel like I have them - light headedness, tingling and feeling tired!  From reading other posts on here I can see that a lot of people convince themselves that they have symptoms and become paranoid and I am trying really hard to tell myself that it is anxiety that is causing them and it is too much of a coincidence to start getting them as soon as MS was mentioned to me!  Have also noticed that I feel better when in company or busy and mainly when I am alone that I start feeling these things. 
Would love to hear from anyone else in a similar situation x
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Offline hypochondrius

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Re: Coping with MRI result that wasn't "all clear"
« Reply #1 on: January 17, 2014, 07:53:24 AM »
One of the reasons that doctors are often reluctant to perform imaging like an Mri is that there are often benign abnormalities found that just lead to more risky and invasive testing for nothing where the abnormality would likely never cause problems.
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Offline Anna

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Re: Coping with MRI result that wasn't "all clear"
« Reply #2 on: January 17, 2014, 08:21:10 AM »
The specialist said that you probably wouldn't have known if you hadn't of had the MRI. IF he thought it was serious then I would think that he would want to run more tests and see you again sooner than in 6 months time.  That's the problem when we ask for these tests as things can be found that we wouldn't have known about otherwise, things that won't cause us any harm but only stress and anxiety. Keep yourself occupied for a few days and then look back and ask yourself if you remember having any symptoms over those days when you wasn't thinking about them.
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Offline greend

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Re: Coping with MRI result that wasn't "all clear"
« Reply #3 on: January 17, 2014, 09:05:21 AM »
Hi Louise.  I agree with hypo, an MRI is a test that can just lead to more testing for no reason.  MRI's are very good at detecting abnormalities even if they are benign.  My sister and I are good examples of this.  She has the white lesions you are speaking of and her neurologist said that she probably shouldn't have even known that she had them, because in her case they meant nothing.  In my case I had an MRI on my lower back and it showed something on my liver.  I was mortified.  Well lo and behold it was some cluster of veins that happen in millions of people and mean nothing.  He said I should never have know I had this because it is complete benign and will never turn into anything. 

I really wouldn't worry.  The fact you are better around others speaks volumes. Try working on your anxiety.

Feel well.
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Offline hayter

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Re: Coping with MRI result that wasn't "all clear"
« Reply #4 on: January 17, 2014, 10:10:12 AM »
When i had my MRI - they came across an empty sellar. something i had never heard of. My neruo asked if i had ever hit my head and was knocked out. Which i wasnt. He said the finding was innocent and its probably common but not everyone gets an MRI so its just not found very often.

Ofc that didnt help me and i was soon fixated on this. But its now forgotten about.
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Offline Louise8322

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Re: Coping with MRI result that wasn't "all clear"
« Reply #5 on: January 17, 2014, 11:55:47 AM »
Thank you so much for all your replies.  It's great just to hear from other people that have had things show up on MRIs and haven't necessarily had anything wrong! 
I would never have believed how much anxiety could affect you before this happened! 
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