I don't think he meant to be hurtful. I think sometimes when people with HA have it under control, it may be harder for them to understand others whose HA is out of control at the moment.
We try to be helpful and supportive on here, so sorry about that. But do stop googling. Gosh I wasn't even aware about your problem having anything to do with ALS. I'm sure it's so remote and doesn't happen often. That's why googling gets us in trouble so often. It doesn't matter how rare, we still believe we are the ones who will get it.