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Author Topic: Diagnosed with Fibro today.  (Read 3933 times)

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Offline ~ JustMe ~

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Re: Diagnosed with Fibro today.
« Reply #10 on: March 14, 2014, 01:25:08 AM »
To me, I feel like fibro, stress and anxiety all seem to hold hands skipping down a street having a good old time at my expense. All jokes aside, I feel like they all interfere and play with each other. One triggers one symptom, in return leads to another, then another.. Then I find myself sitting in the doctors office wanting to put them in timeout but its not that simple. You have to work hard everyday and remind yourself you are boss and you have to try the best you can to keep all these symptoms in place. I hope one day there will be a simpler fix, but for now we have to rely on support from each other to overcome.
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Offline jkw86

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Re: Diagnosed with Fibro today.
« Reply #11 on: March 17, 2014, 09:10:05 AM »
So what i wonder is, Fibro really anxiety....have they just put a label on the aches and pains? I'm sure before they would have said' oh this is anxiety and depression.'
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Offline msgb98

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Re: Diagnosed with Fibro today.
« Reply #12 on: March 18, 2014, 05:49:19 PM »
I was diagnosed with Fibro 23 yrs ago because of a car accident. It is not another name for anxiety.
It is associated more the the virus that causes epstein barr syndrom or mono and chronic fatigue.
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Offline NeverAgain2

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Re: Diagnosed with Fibro today.
« Reply #13 on: March 18, 2014, 09:58:43 PM »
So what i wonder is, Fibro really anxiety....have they just put a label on the aches and pains? I'm sure before they would have said' oh this is anxiety and depression.'

Despite claims that there is a virus or pathogen that causes Fibro, it is simply not the case.  Period.   Doctors for the most part are not comfortable  saying to a patient that their aches and pains are caused by anxiety and depression, because the patient then hears that "it is all in your head", and will get upset at the doctor, so the medical community settled on "something" to call all the symptoms which wouldn't be insulting to the patient, and they set about treating the symptoms.  The human condition is prone to ups and downs, but some of us are wired a little more sensitively than others, and our nerves get the best of us, and our emotions and environment amplify the initial panic or symptoms. 

Then, if you go to a shrink, many will claim that emotions and environment and nerves cannot cause actual physical problems, but can make them worse, so you are left guessing at the cause of it all and will still be lost in the world between mind and body. 

The latest in thinking is that emotions and environment and nerves do, in fact, cause maladies, and this can now be imaged in the brain, where there are neat little sections for parts of the body.  Even anticipatory action (fear) of moving some way that excites pain in a certain body part, can register.

The thing to do is if all your tests are negative, then stop searching and disregard labels, such as Fibro.  Is it depression and anxiety?  Yes.  Is depression and anxiety Fibro?  Yes. 

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Offline Jazeraca

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Re: Diagnosed with Fibro today.
« Reply #14 on: May 03, 2014, 10:43:26 PM »
Apologies, I haven't been coming to this website much lately, but I thought I would check in and see what's up with this forum.

The Cymbalta + CBT has helped immensely with my anxiety, for which I am grateful. The fibromyalgia, not so much. It's a tiny bit better, especially the pain in my neck, but it's mostly still there.

NeverAgain, I have to respectfully disagree with you. I have been attending fibro support groups and the topic of anxiety and depression has come up many times. Beside the sadness that people feel about their symptoms, most of the people whom I have spoken to with fibro do -not- have symptoms of an anxiety or depressive disorder, have never been diagnosed with such and seemed to be polar opposites of me when I was feeling anxious. They did not feel abnormal levels of anxiety or depression, compared to healthy people.

Correlation does not equal causation. Because anxiety and fibro are similar doesn't mean that anxiety causes fibro. That used to be what was thought, that it was a somatic illness, but any pain illness can be described as somatic, doesn't make it so.

I realize this is anecdotal, but if it were simply caused by anxiety, why would I still feel intense pain when I would be seriously sedated by 3 mg of Ativan?

It's quite possible that anxiety caused similar symptoms in you that fibro would've, and you were misdiagnosed, but that doesn't mean it's the same for everyone.

The claim that doctors know full well that fibro is caused by anxiety and depression but are unwilling to say so is preposterous; ask anyone on the Health Anxiety forums, they will tell you that doctors are very willing to describe their symptoms as being a result of anxiety. Plus, there is no conspiracy by doctors, and most doctors are not secretive when it comes to being upfront with their patients.

Anyway, I do appreciate your posts, and I wish you well!


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Dx: GAD, DESNOS, Fibro and other physical issues. Nothing serious, but of course my anxious mind will often find something very serious as with other things in my life. Anxiety is a fraud. Anxiety is not YOU or ME, it is an illness.

Offline NeverAgain2

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Re: Diagnosed with Fibro today.
« Reply #15 on: May 04, 2014, 12:45:32 AM »
Apologies, I haven't been coming to this website much lately, but I thought I would check in and see what's up with this forum.

The Cymbalta + CBT has helped immensely with my anxiety, for which I am grateful. The fibromyalgia, not so much. It's a tiny bit better, especially the pain in my neck, but it's mostly still there.

NeverAgain, I have to respectfully disagree with you. I have been attending fibro support groups and the topic of anxiety and depression has come up many times. Beside the sadness that people feel about their symptoms, most of the people whom I have spoken to with fibro do -not- have symptoms of an anxiety or depressive disorder, have never been diagnosed with such and seemed to be polar opposites of me when I was feeling anxious. They did not feel abnormal levels of anxiety or depression, compared to healthy people.

You can certainly disagree with me, but there is a certain group think/group identity/group conclusions that go along with "support" groups.  Did you know that pain is sometimes the only symptom of depression?  That people often aren't aware of their anxiety and/or depression?  Just the fact that people are attending a support group lends a certain de facto conclusion that they are feeling anxiety over this mysterious syndrome. 



Correlation does not equal causation. Because anxiety and fibro are similar doesn't mean that anxiety causes fibro. That used to be what was thought, that it was a somatic illness, but any pain illness can be described as somatic, doesn't make it so.


Actually the latest thinking on Fibro is that is it the "central sensitization" of the  nervous system and that the pain that was acute becomes chronic because of behavioral and biological changes and plastic changes to the brain and because all pain has its origin in the brain, imaging has shown that even the anticipation of movement that has caused pain in a person shows up as pain in that body part in the imaging.  A person who has phantom limb pain will show pain in the portion of the brain that is just above where the limb was.  Somatic is not a definition I use, because it is too simple. The pain Fibro patients feel is real, the pain myofascial patients feel is real, and you just can't wish it away by deciding that it is "all in your head" Often a combination of treatments are needed, especially if the pain is long standing.  The main barrier to overcome, which is helped by CBT or Cognitive Restructuring,  is the fear of the pain and symptoms.  It is this fear which lights up the brain which sends out pain signals.  This is simplified, but basically represents the latest in thinking.


I realize this is anecdotal, but if it were simply caused by anxiety, why would I still feel intense pain when I would be seriously sedated by 3 mg of Ativan?

Yes.  Ativan is a band aid and not a cure. The underlying pain-thinking-fear is still there.  Ativan can help to lessen the symptoms in some so they can work to resume a normal life, but unless the origin of the pain and pain itself is understood, there is no "cure".

It's quite possible that anxiety caused similar symptoms in you that fibro would've, and you were misdiagnosed, but that doesn't mean it's the same for everyone.

Nobody is the same when it comes to medical maladies.


The claim that doctors know full well that fibro is caused by anxiety and depression but are unwilling to say so is preposterous; ask anyone on the Health Anxiety forums, they will tell you that doctors are very willing to describe their symptoms as being a result of anxiety. Plus, there is no conspiracy by doctors, and most doctors are not secretive when it comes to being upfront with their patients.

Not all doctors by any means are convinced that Fibro is caused by a misfiring central nervous system or anxiety/depression/ or stress.  In fact, if you ask a doctor what causes Fibro, if they are honest, they will say they do not know --that is if they don't offer some of the things i mentioned.  That you can be certain of is that there is no missed virus, bacteria, pathogen or genetic defect that causes Fibro

Anyway, I do appreciate your posts, and I wish you well!

I am well, thanks. I'm not a doctor, don't claim any miracles, but I have been where you have been, and what you are suffering is unique to you but not unique in the annals of medical history.  It is just that a divorce took place about sixty years ago between doctors attributing certain illnesses to the mind, and that is because most doctors are not trained to think holistically and now especially cannot spend much time with their patients. 

I don't know how long you have had Fibro, but let's look at the fact that you are on an anxiety site, and if you have any history of medical treatment for Fibro you know that it is not that effective.  What do you have to lose by taking it to another level and looking at a closer mind/body connection?  Also, it has been my experience and others -- and studies do back this up -- that support group can, in fact, have a negative effect on a person, because it is a reminder of what is considered by society (and some people themselves) to be a defect in their person
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Offline Jazeraca

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Re: Diagnosed with Fibro today.
« Reply #16 on: September 16, 2014, 08:16:59 AM »
Are you a physician, or a scientist? If not, please keep your opinions to yourself that fibro is merely somatic. I appreciate that you have your own opinion, but quite frankly I don't care for it at this time.

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Dx: GAD, DESNOS, Fibro and other physical issues. Nothing serious, but of course my anxious mind will often find something very serious as with other things in my life. Anxiety is a fraud. Anxiety is not YOU or ME, it is an illness.

Offline NeverAgain2

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Re: Diagnosed with Fibro today.
« Reply #17 on: September 16, 2014, 05:56:31 PM »
Are you a physician, or a scientist? If not, please keep your opinions to yourself that fibro is merely somatic. I appreciate that you have your own opinion, but quite frankly I don't care for it at this time.

Jazeraca, I'm sorry you are suffering, but you plainly do not understand what I am saying.  Fibro is not merely somatic, but all pain -- all pain-- originates and is processsed in and by the brain.  You can look that up.  It is science.  What this means is that there is real pain caused by physiological and biological changes to the body, to your nerves, muscles, tendons, etc.; and your central nervous system "learns" this new pain. In addition, fear about the symptoms adds many anxiety symptoms ontop of the original ones. 

You know, you're not talking to someone who wasn't where you apparently are, so while you want to shut me down as to my opinion, I'm afraid that it stands. You really do not appreciate that I have my own thoughts; you would delete my opinon if you could.  Let's be honest.  If you do not like my opinion then don't read it.  Pretty simple.   I had Fibro, so I'm as qualified as you are to add my opinion.

You might be better off not listening to doctors and scientists who, in many cases, lag years behind in the latest research, and find it much easier to just pin a "disease of exclusion" on a person.

I hope you recover, and when you feel like it you can apologize for being rude.
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Offline crazykoz

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Re: Diagnosed with Fibro today.
« Reply #18 on: November 28, 2014, 11:14:13 AM »
Hi   I am so interested in this post.  I had big issues with my upper back in July 14 with pins and needles in my arms etc because of it. I am sorry to say I let it spiral into , I feel, pretty much a breakdown on my part as I was worrying anout all manner of things such as ms. I had 2 months of chronic insomnia.

Doctors say my upper back issues are all to do with posture so I am doing pilates to try and strengthen my back. My doc put me on  Lyrica which solved the insomnia, settled my anxiety a little but hasn't helped with the pain in my back or the pain I get in my hands and feet.

I am constantly on stand by looking for aches and pains and fatigue worrying I have or will develop Fybromalgia. My anxiety level isn't as high as it was but is still there  I sleep really well considering.

I have just ordered 2 books, one by Abraham Low and one by Claire Weeks who both teach that nervous conditions can manifest themselves in physical symptoms.

If possible I would love more info from Never Again to explain how they have dealt with there past issues.

I really want to fight this and I need support and help.

xxxx
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