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Author Topic: Lymphoma  (Read 290 times)

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Offline skywizzard

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Lymphoma
« on: December 05, 2013, 11:24:47 AM »
So in the last 2 months i had two throat aches, one of which was a tonsillitis. The first throat ache was not all that awful and went away on its own within a few days but the second one, which according to the doctors was tonsillitis was pretty bad, i could bearly swallow for a few days. Anyhow all of this wouldn't concern me all that much if it wasn't for the fact that only one of my tonsils is swollen. And it's been swollen since august this year, i know this because at the time i went to the GP for some allergy issues, he didn't seem overly concerned about it and since it caused no discomfort neither did i. Recently it has, however been causing me troubles and i'm a nervous reck. The bulk of tonsillitis resolved a few weeks ago but i still feel discomfort on the right side when swallowing and that tonsil is still enlarged. GP did a CBC which came back normal, it didn't really convince me because, as i'm sure we all know CBC's do not necessarily pick up lymphoma, so one night i went to the ER. The doctor there told me the tissue on the tonsilis looks idenctical and therefore in the worst case scenario its some kind of chronic infection, didn't even mention lymphoma but because i was concerned he gave me a refferal to the specialist. I went to one specialist the very next day, he basically reiterated what the guy in the ER said. About a week after that i had a bout of stomach virus, which freaked me out that my immunity is compromised so i called back asking for a second opinion. Manage to get it as well, the second doctor repeated what all the doctors before had said, said i had two swollen lymph nodes on each side of roughly 0.5cm. This was 3 weeks ago, i still feel the discomfort on the right side when swallowing and today i woke up with this god damn neck stiffness like when you are about to get fever, however my temp is measuring between 36.3 and 36.6 C. Tonsil still didn't reduce in size, i dont dare to poke around my neck in search of lymph nodes, especially on the right side, for the fear of what i might find potentially. Anyhow, it's pretty scary, i am scared i might have lymphoma in particular, the fact that every single article on googles equates unilateral tonsillar enlargment to potential malignancy doesnt help either. The specialists i've seen have both told me that they do not find it necessary to remove my tonsils and didn't even want to perform any further investigation, like say the scan of the neck for the lymph nodes or some such thing. I don't dare to call again, even with the GP, cos i am pretty certain that they are fed up with me and my suspicions of lymphoma, i'll admit im slightly ashamed myself. Would quite appreciate some advice.
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Offline hamsterswheel

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Re: Lymphoma
« Reply #1 on: December 05, 2013, 11:57:32 AM »
I went see an ENT about fluid behind ears. However he also did a scope of my throat at my request and a thorough neck exam. He also did this 3 months ago for me.

Anyway he told me categorily that if I had cancer of of the throat, tonsils or lymphoma then he would see something, or feel something. He also said that they nodes in lymphoma grow very big very quickly. And that they are stickin out of your neck. He showed me the camera going Ito my throat etc and said all was perfectly normal looking. Of course I'm still doubting he missed something.

But I guess my post to you is to say that these are the people who diagnose tonsil cancer, throat cance and lymphoma. They see healthy people and unfortunately they see people when they are sick. I  pretty sure that they know when something is of concern and needs further investigation.

How much bigger is the tonsil? When it says unilateral enlargement it means massive difference and even then does not always mean cancer. One could be full of tonsil stones more than the other. My right tonsil had more than my left and has always looked a tiny bit bigger. As my doctor keeps telling me, the body is not symmetrical.

Also I have an obsession with nodes in my neck at the moment. My gp has felt numerous times as has the ENT specialist and his assistant and they always tell me there is nothing to feel. But I can feel them!!! But the reality is that when google talks about thins being enlarged to the average public it means visibly or sticking out.

What non anxious person does what we do and claws into their neck under the skin to feel bumps????? No one. I don't even think my family had even felt their necks looking for lumps. It's not how it works.

So whilst google is saying this , bear in mind it's not talking to he health anxious amongst us. And remember that are an abundance of things that cause minor issues x
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Offline skywizzard

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Re: Lymphoma
« Reply #2 on: December 05, 2013, 12:34:01 PM »
Thanks for the reply. With regards to the size there is conflicting evidence. On one hand, i dont know how big it was when my GP noticed it in august, it didnt concern me backthen so i didnt check, during the tonsillitis it was rather large, maybe twice the size of the other tonsil and coated in yellowish/white pus. Since the tonsillitis it did reduce in size somewhat but on my first visit to the ENT, he checked wether there is an abcess, which indicates to me that its quite big, cos with peritonsilar abcess the affected tonsil increases in size quite a bit. No abcess was found. The second ENT remarked that its "slightly enlarged" and that he think that if he would remove it they would be of simillar size, currently the right one only appears bigger because of its positioning in the mouth, wild guessing if you ask me. Id say that after the infection the right one is about 50% to 75% bigher than the other, so its not extreme but its far from negligable.
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Online Gemmal

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Re: Lymphoma
« Reply #3 on: December 05, 2013, 01:19:04 PM »
Hi Skywizard

I'm so sorry to hear your going through the lymphoma fear too  ::) it has been plaguing me for 22 months now!

I really am just repeating what hamsterswheel said and my GP said the same too, these lymphoma lumps grow huge they are sticking right out your neck that even a normal person without hypochondria would know something was not right. ( I need to remind myself of this more often)

Plus Im sure you would have developed other symptoms after a period of months too.

Besides you have seen an ENT , I can't even get to that stage I think my GP thinks im being that ridiculous.

I hope you are feeling better and manage to ease this fear soon :happy0151:
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Offline hamsterswheel

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Re: Lymphoma
« Reply #4 on: December 05, 2013, 04:54:59 PM »
Skywizard

The ENT is the specialist and they diagnose cancer when there is cancer to diagnose.

I also think the positioning has a lot to do with it. When I look in my own mouthy right looks bigger but when I look closer I can see its more forward than the left. I can also see tissue further down on the right which I can't see on the left. But when I went to the gp she said it is on the left side too but I just can't see it.

Have you thought about the possibility that they always looked as they do now?
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Offline stephtronic

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Re: Lymphoma
« Reply #5 on: December 05, 2013, 09:11:03 PM »
I've had major lymphoma fears for a few months now even though every doctor I've gone to has either told me that the "node" that I feel isn't worrisome or that they couldn't feel anything at all. From what I've collected, what everyone else has said is pretty accurate - swollen lymph nodes associated with lymphoma have the tendency to be pretty obvious and they get *BIG*. If you gone so far as to go to an ENT, someone who is super knowledgeable about lymph nodes in the neck and structures of the throat, and they've said you're good to go - then you're good to go! Easier to say than actually believe, I know. I still worry about mine sometimes and think that I feel them "ache." I've got asymmetric tonsils too... but I've had multiple people look down my throat in the past couple of weeks and no one has said a word to me about it, so I'm trying not to worry!
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