My story is so simple but in my head everything is so scary and complicated...
Thank you in advance for taking the time to read it.
I am male 35 years old.
One month ago i brought in an issue with an MRI i made 2 years ago that showed a few small non specific hyperintensities - I repeated the MRI twice and every doctor re-assured me that nothing is wrong. I want to note that at this point i have no symptoms.
I must say that there was not an initial MS symptom, i just made the MRI in private (without doctors advice) purely because of migraine and fear.
During this month i visited around 10 Neurologists, had VEPs and all the possible potentials, spent much money.
I had huge difficulty to cope with my work and with my home responsibilities (husband and father of a 9 month son).
Finally once i was convinced that i must take it easy with the possibility of MS - i started to have fasciculations in several parts of my body and especially in my right bicep.
This one was continuous for almost 2 days. Also i felt some strange muscle tremors when i made efforts in my neck and hands. I translated that as a "muscle weakness" due to possible atrophy.
Googled and found this ALS neurological disease... I was really terrified and in panic. I arranged immediately an EMG.
Went yesterday to the doctors office and EMG result was normal.
The fasciculation in the bicep was present during the EMG and still all looked normal...
Magically today there is no fasciculation.
Instead of relaxing and forgetting about it i still make researches - i now have fully focused on my tongue and check for symptoms - Went just to the ER Neurologist and asked him to check if there is weakness and atrophy in my sternocleidomastoid muscle (because of the tremors i mentioned earlier) and gladly he mentioned all is fine. He said that since i had a normal EMG i should not worry because some of the muscles that were checked would have shown something.
I am afraid that maybe its still the start of this ALS and EMG couldnt catch it yet...
I am terrified about the future and every morning i find it really hard to get out of bed. I am very depressed, scared and wish that all of these issues are simply in my head and there is nothing serious with my health.
Thank you for taking the time - It really helps to share my story